High-priority employment concerns of Hispanics/Latinos with multiple sclerosis in the United States

Roessler, Richard T.; Rumrill, Phillip D.; Li, Jian; Daly, Katherine; Anhalt, Karla

doi:10.3233/jvr-160817

Cited by 8 publications

(7 citation statements)

References 16 publications

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“… 35 Several studies showed that the employment rates were low for non-Caucasian Americans with MS. Hispanics, Afro-Americans, and Afro-American women with MS all had low levels of employment in the US. 35 , 38 , 39 In a recent American study on work loss due to the Covid-19 pandemic, it was found that non-Caucasian persons with MS reported work loss to a higher extent than those identifying as white. 33 …”

Section: Resultsmentioning

confidence: 99%

“…From these studies, it is known that the employment rates for non-Caucasian Americans with MS are low, eg. 38 An American survey study on employment states that African American women with MS are a group that has been given very little attention. 39 Ethnic discrimination in the labor market has been documented among the general population as well.…”

Section: Discussionmentioning

confidence: 99%

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Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability

Ståhl¹,

Bjereld²,

Dunér³

2022

JMDH

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Multiple sclerosis (MS) is a chronic neurological disease with an increasing prevalence. As such, most studies are devoted to various medical aspects of the disease. The theoretical framework used in this scoping review was the social model of disability – a perspective focusing on environmental barriers and discrimination that disabled people face in society. The aim was to explore previous research on disabling barriers and discrimination against persons with MS, and to identify research gaps in connection with this population. The scoping review was performed in two steps: (1) a main search in 8 databases, followed by (2) citation and reference searches. The final sample consisted of 96 included articles. The result showed that most studies had been conducted in the US, and the dominant area of research was employment discrimination. Previous research has studied MS related to various areas, such as employment, social welfare and social services, transportation, housing and accessibility of public places, health services, and in relation to others within society. However, this scoping review showed that although several areas of disability and MS had been included in the previous research, most of the identified areas were researched in few studies without the possibility to generalize the findings to a larger population or a cross-cultural context. Few studies compared differences between persons with MS based on gender, age, and ethnicity. What impact the invisible symptoms of MS had on disability was also researched to a limited extent. The findings have implications for future research and clinical practice. To better understand living conditions for persons with MS from a global perspective, more research across countries is needed. Healthcare professionals need to assess the individual’s situation regarding both symptoms of the disease and the impact of societal barriers and discrimination to optimize care of persons with MS.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability

Ståhl¹,

Bjereld²,

Dunér³

2022

JMDH

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“…The PSM procedure utilized in this study en- with an employer, can be a difficult task (Roessler et al, 2016).…”

Section: Discussionmentioning

confidence: 99%

“…Preliminary studies of the employment issues facing Hispanics with MS indicate that these individuals have a lower rate of labor force participation and a lower rate of job satisfaction than do Caucasians with MS (Roessler et al, 2016…”

Section: Introductionmentioning

confidence: 99%

Differences in employment concerns between Hispanic and Caucasian persons with multiple sclerosis: A propensity score matching analysis

Rumrill

Sánchez

et al. 2021

JVR

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BACKGROUND: Little is known about the experiences and concerns of Hispanic Americans with multiple sclerosis (MS), especially how their experiences and concerns compare to those of Caucasian Americans with MS. OBJECTIVE: The purpose of this study was to examine differences in satisfaction with the overall employment situation between two matched samples of adults with MS, namely, Hispanics and Caucasians. METHODS: Participants in this study responded to a national survey of the employment and community living concerns of people with MS. A propensity score matching (PSM) procedure was used to match participants based on demographic and MS-related variables. RESULTS: A two-sample Hotelling T2 test revealed no statistically significant between-group differences on satisfaction regarding fair treatment in the workplace but between-group differences were observed on satisfaction regarding legal rights and personal-environmental resources related to work. CONCLUSIONS: Implications for future research and clinical practice in rehabilitation counseling in the COVID-19 era are discussed.

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“…For instant they had problem with having the accommodation in a short period of time, requesting for assistive technology for their jobs and requesting changes in their tasks without fear of losing their job. [85] is difficult process of requesting accommodation and changing their responsibilities at their job could have a negative impact on keeping their current position. Hence, health professional has an important role in guiding and helping MS patients to remain active at their work.…”

Section: Discussionmentioning

confidence: 99%

Impact of delayed treatment on exacerbations of multiple sclerosis among Puerto Rican patients

Zarei

Maldonado

Franqui-Dominguez

et al. 2019

Surgical Neurology International

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Background: There are limited data on multiple sclerosis (MS) patients in underserved groups, including Puerto Rico. In this study, we analyzed the characteristic of MS symptoms and number of relapses in Puerto Rican patients. We then compare these characteristics with MS patients from the US. The number of MS relapses is highly correlated with the treatment onset and adherence. Patients in Puerto Rico have been experiencing lengthy treatment delay. We will discuss the possible causes of such delay and its impact on MS prognosis. Methods: This retrospective cohort study consisted of the evaluation of 325 medical records from MS patients attending the Caribbean Neurological Center from 2014 to 2019. We gathered symptoms and comorbidities data as binary objects. The treatment delay was calculated based on the mean value of days between diagnosis and treatment onset for these groups of patients. Results: We found that on average, the treatment delay for MS patients in Puerto Rico (PR) to receive their medication was 120 days. The most common MS subtype was relapsing-remitting 72.8%, with a mean of 1.684 relapses per year. Initial symptoms were sensory 54%, visual 33.1%, motor 28.8%, coordination 23.2%, fatigue 9.7%, memory 7.3%, depression 6.5%, urinary 4.9%, gastrointestinal 2.4%, and sexual dysfunction 1.6%. The most common comorbidities were hypertension 18.4%, asthma 13.6%, and thyroid disease 12.8%. When we compared the comorbidities between the two populations, immune thrombocytopenia had the highest percent change with the value of almost 200% (0.001% of US patient vs. 0.8% of Puerto Rican MS patients). Conclusion: Patients from Puerto Rico had a 33% higher relapse rate compared to the one reported for MS patients in the US. This higher rate may be related to the long delay in receiving their medications. They also had a higher rate of complex comorbidities such as immune thrombocytopenia or thyroid disease. Our findings provide a proof of concept that delay in receiving medications can increase the number of relapses and complex comorbidities among MS patients.

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High-priority employment concerns of Hispanics/Latinos with multiple sclerosis in the United States

Cited by 8 publications

References 16 publications

Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability

Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability

Differences in employment concerns between Hispanic and Caucasian persons with multiple sclerosis: A propensity score matching analysis

Impact of delayed treatment on exacerbations of multiple sclerosis among Puerto Rican patients

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