HIV as Chronic Illness: Caregiving and Social Networks in a Vulnerable Population

Mignone, Javier; Mercedes, Paula; Harvey, Carol D. H.; Davis, Jennifer C.; Madariaga-Vignudo, Lucia; Pindera, Carla

doi:10.1016/j.jana.2014.09.002

Cited by 13 publications

(19 citation statements)

References 26 publications

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“…However, it should be emphasized that the results presented in this study indicated that the growth of publication on medication adherence showed relatively faster upward growth than that on HIV/AIDS in general. Second, the shift in HIV/AIDS disease paradigm from an acute untreatable infectious disease to a chronic illness that requires a high degree of adherence [ 57 – 59 ]. Third, the international aids and support to African countries with high prevalence of HIV/AIDS which created a momentum of international collaboration between developed countries and many African countries in research pertaining to HIV/AIDS including medication adherence research [ 60 , 61 ].…”

Section: Discussionmentioning

confidence: 99%

Global research output on HIV/AIDS–related medication adherence from 1980 to 2017

Sweileh

2018

BMC Health Serv Res

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Background“Human Immunodeficiency Virus (HIV)” and Acquired Immunodeficiency Syndrome (AIDS) are global health burden. Medication adherence in people living with HIV (PLWH) is a key element in reducing morbidity and mortality. Quantitative and qualitative assessment of research activity helps identify research gaps as well as efforts implemented to improve adherence behaviors in PLWH. The aim of the current study was to assess and analyze literature on HIV/AIDS–related medication adherence using bibliometric methods.MethodsSciVerse Scopus was used to accomplish the purpose of the current study. The study period included all times up to 2017. The analysis was restricted to documents published in academic journals.ResultsSearch strategy retrieved 3021 documents with an average of 32.5 citations per document, an h-index of 136, and an average of 4.4 authors per documents. The volume of literature on HIV/AIDS-related medication adherence constituted 1.3% of the overall HIV/AIDS literature. There was a significant (p < 0.01; r = 0.9) correlation between the growth of publications in AIDS-related stigma and medication adherence. The regions of America (567.9) had the highest research output per one million infected people (567.9) followed by the European region (314.3), Western Pacific Region (70.7), Eastern Mediterranean region (31.4), South East Asia (34.0), and Africa (19.3). Geographical distribution of publications showed an active contribution of certain countries in the Southern and Eastern region of Sub-Saharan Africa. Harvard University (8.4%; n = 254) was the most active institution. The top cited documents focused on the impact of adherence on disease outcome and the impact of text messages on improving medication adherence.ConclusionResearch on medication adherence in PLWH showed regional variations. International research collaboration with high burden regions such as Sub-Saharan Africa needs to be strengthened to achieve the global target of ending AIDS as a public health threat by 2030.Electronic supplementary materialThe online version of this article (10.1186/s12913-018-3568-x) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Global research output on HIV/AIDS–related medication adherence from 1980 to 2017

Sweileh

2018

BMC Health Serv Res

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“…In the subgroup populations of people with HIV/AIDS disadvantaged, caregivers often have fewer resources to perform its role placing them at greater risk of overload (fatigue experienced by care), this can be increased if the person has maintained a stigmatizing condition presents disruptive behaviour or abuse of substances [34]. It has come to consider care for people with HIV similar to that offered to the elderly AIDS as it extends over time and often leads to health problems for the caregiver own [36]. In Spain, as in other developed countries, there are few studies designed specifically for caregivers of people with HIV / AIDS.…”

Section: Life Quality Of Hiv/aids Patientsmentioning

confidence: 99%

Social Care for HIV/AIDS Patients in Spain

2015

hccr

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“…Peer support does not suit everybody, nor is it relevant at every stage of HIV trajectories, however, knowing that peer networks exist increases support options for recently diagnosed PLHIV. Furthermore, enacting peer support offers the potential for reciprocal benefits (Hatala et al, 2018;Mignone et al, 2015). Peers are rarely passive service recipients.…”

Section: The Importance Of Building Strong Flexible and Sustained Somentioning

confidence: 99%

Social Support Networks of People Recently Diagnosed with HIV in Queensland: A Qualitative Exploration

Hollingdrake¹,

Fitzgerald²,

Dean³

et al.

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Background: Biomedical successes have transformed Human Immunodeficiency Virus (HIV) from a life-limiting disease to a chronic, manageable condition. With this shift, the onus has turned to people living with HIV (PLHIV) to self-manage. HIV self-management is frequently framed as the individualistic pursuit of health behaviours with success measured in terms of antiretroviral (ART) uptake and adherence. Less attention has been paid to the social contexts in which self-management occurs, and the social networks that support self-management. Social networks are an important resource for people living with chronic conditions. Alongside the provision of support for health behaviours, social networks can promote a sense of value, belonging and solidarity. Yet little is known of the social networks that support recently diagnosed PLHIV, their experiences of seeking and mobilising network support, and how these experiences are shaped by the pervasive stigma that continues to surround HIV.

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HIV as Chronic Illness: Caregiving and Social Networks in a Vulnerable Population

Cited by 13 publications

References 26 publications

Global research output on HIV/AIDS–related medication adherence from 1980 to 2017

Global research output on HIV/AIDS–related medication adherence from 1980 to 2017

Social Care for HIV/AIDS Patients in Spain

Social Support Networks of People Recently Diagnosed with HIV in Queensland: A Qualitative Exploration

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