HIV-related disabilities: an extra burden to HIV and AIDS healthcare workers?

Egeraat, Leonie van; Hanass-Hancock, Jill; Myezwa, Hellen

doi:10.2989/16085906.2015.1084938

Cited by 10 publications

(10 citation statements)

References 20 publications

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“…Second, respondents noted that lack of integration creates barriers to provision of holistic care for people living with HIV-related disability. Most notably, HIV services often are not designed to accommodate the needs of people with disabilities, whether HIV-related or otherwise, a finding which has been gaining increasing attention in other research [ 31 – 34 ]. This situation may be changing as key informants noted, for example, the increasing engagement of DPOs to promote mainstreaming of disability within HIV prevention and care services, though funding gaps for needed resources remain.…”

Section: Discussionmentioning

confidence: 99%

Knowledge of HIV-related disabilities and challenges in accessing care: Qualitative research from Zimbabwe

et al. 2017

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IntroductionWhile the rapid expansion in antiretroviral therapy access in low and middle income countries has resulted in dramatic declines in mortality rates, many people living with HIV face new or worsening experiences of disability. As nearly 1 in 20 adults are living with HIV in sub-Saharan Africa–many of whom are likely to develop disabling sequelae from long-term infection, co-morbidities and side effects of their treatment–understanding the availability and accessibility of services to address HIV-related disabilities is of vital importance. The aim of this study thus is to explore knowledge of HIV-related disabilities amongst stakeholders working in the fields of HIV and disability and factors impacting uptake and provision of interventions for preventing, treating or managing HIV-related disabilities.MethodsIn-depth, semi-structured interviews were conducted with ten stakeholders based in Harare, Zimbabwe, who were working in the fields of either disability or HIV. Stakeholders were identified through a priori stakeholder analysis. Thematic Analysis, complemented by constant comparison as described in Grounded Theory, was used to analyse findings.ResultsAll key informants reported some level of knowledge of HIV-related disability, mostly from observations made in their line of work. However, they reported no interventions or policies were in place specifically to address HIV-related disability. While referrals between HIV and rehabilitation providers were not uncommon, no formal mechanisms had been established for collaborating on prevention, identification and management. Additional barriers to accessing and providing services to address HIV-related disabilities included: the availability of resources, including trained professionals, supplies and equipment in both the HIV and rehabilitation sectors; lack of disability-inclusive adaptations, particularly in HIV services; heavy centralization of available services in urban areas, without accessible, affordable transportation links; and attitudes and understanding among service providers and people living with HIV-related disabilities.ConclusionsAs people living with HIV are surviving longer, HIV-related disabilities will become a major source of disability globally, particularly in sub-Saharan Africa where infection is endemic. Preventing, treating and managing HIV-related disabilities must become a key component of both HIV response efforts and rehabilitation strategies.

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Section: Discussionmentioning

confidence: 99%

Knowledge of HIV-related disabilities and challenges in accessing care: Qualitative research from Zimbabwe

et al. 2017

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“…This lack of knowledge therefore may be seen as a failure of the health system in many respects, rather than the fault of individual patients. A recent study targeting health care workers in the same setting indicated that nursing and other non-therapy staff exclusively used referral systems in cases of disablements in their patients living with HIV [20]. The study also revealed that these health care workers were not aware of what happened with these referrals and what kind of additional intervention or therapy their patients were taking up.…”

Section: Increasing Knowledge Of Health Condition and Medicationmentioning

confidence: 95%

“…The silence surrounding one's HIV status is common amongst PLHIV throughout the world [23] and may be further fuelled in South Africa by the prevailing stigmatisation of PLHIV in their own communities [24][25][26]. The stigma associated with HIV and AIDS is further compounded by the stigma of disability [20,27]. From their interview responses, it would appear that the participants were far more comfortable talking about the symptoms, impairments and activity limitations associated with HIV than they were discussing the disease itself.…”

Section: Tackling Stigmamentioning

confidence: 99%

“…Some of the health conditions and physical impairments related to HIV are documented and include weakness or paralysis of muscles [29], peripheral neuropathy [30], inflammatory joint conditions [31], impaired lung function [30] and the widespread prevalence of pain [20]. Physiotherapists are directly concerned with treating the impairments related to the neurological, musculoskeletal and respiratory complications of HIV infection, as well as providing rehabilitation to counter the activity limitations and participation restrictions related to these impairments.…”

Section: Overcoming Impairments Activity Limitations and Participatimentioning

confidence: 99%

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Physiotherapy rehabilitation in the context of HIV and disability in KwaZulu-Natal, South Africa

Cobbing¹,

Hanass-Hancock

Deane³

2014

Disability and Rehabilitation

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PLHIV who experience disability are affected in major life areas but the current model of delivering rehabilitation provides a number of barriers to patients. A more accessible approach of delivering HIV-care and rehabilitation needs to be developed. Implications for Rehabilitation Physiotherapists and other rehabilitation professionals, particularly those working in the South African public sector, need to consider developing and implementing home-based rehabilitation interventions for patients living with HIV and disability. This will counter some of the barriers these patients face in accessing hospital-based therapy. With the increasing incidence of HIV-related disabilities as PLHIV live longer lives, rehabilitation professionals working with this patient population should keep up to date with recent literature and practical training courses related to the disease and its management.

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“…However, to date it has not been utilized as widely in epidemic and pandemic research. The ICF was chosen to explore the pervasive impact of Human Immunode ciency Virus / Acquired Immune De ciency Syndrome in Africa by van Egeraat et al (15) for its ability to provide a holistic approach. It has also been utilized in a study of people with obesity (16), to describe the impact of functional limitations on quality of life for this population.…”

Section: Functioning Disability and Healthmentioning

confidence: 99%

The Functional Impacts of the Covid-19 Pandemic: A Rapid Review

Hitch

Cramer

Adcock

et al. 2020

Preprint

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Background: The Covid-19 pandemic is having a severe and unprecedented impact on human functioning, due to its influence on bodily functions and structures, the activities we participate in and the environments in which we live. The aim of this rapid review is to inform health services planning and decision making, by identifying and synthesizing the potential functional impact of the Covid-19 pandemic on human health and wellbeing.Methods: This rapid review was completed within four weeks during April – May 2020. The review focused on primary sources describing and evaluating the functional impact of the SARS, MERS and Covid-19 coronavirus pandemics, published since January 2000 in peer reviewed journal articles. All included sources were evaluated for quality, and the International Classification of Function provided a theoretical structure for synthesizing the available evidence.Results: A total of 65 sources met the inclusion criteria for this review. The majority (n=42, 61.6%) were related to the SARS pandemic, and originated from Asia for North America. Almost half of the reviewed sources (n=32, 49.2%) investigated the impact of coronavirus pandemics on the community, with smaller evidence bases related to people with coronaviruses and their families (n=19, 29.2%) and healthcare workers (n=17, 26.1%). Of the research sources available, the majority utilized descriptive quantitative methods via cross sectional data collection.The functional impact of the Covid-19 pandemic is likely to spread far beyond infected patients, to influence the wellbeing of healthcare workers and the entire community in both positive and negative ways. The findings of this review indicate that health services must engage with the inter-sectionality of pandemic experiences, collaborate with other sectors as part of society-wide responses and prioritize function as a key outcome.Conclusions:Based on the experience of past coronavirus pandemics, and the experience to date of the current Covid-19 outbreak, every health service in all health systems must be prepared to prevent and manage the functional impacts of the Covid-19 pandemic, possibly for decades to come. This review highlights the multitude of avenues available for health service prioritization and planning, and emphasized that a multi-dimensional, multi-service (and ideally multi-systems) approach is needed.

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HIV-related disabilities: an extra burden to HIV and AIDS healthcare workers?

Cited by 10 publications

References 20 publications

Knowledge of HIV-related disabilities and challenges in accessing care: Qualitative research from Zimbabwe

Knowledge of HIV-related disabilities and challenges in accessing care: Qualitative research from Zimbabwe

Physiotherapy rehabilitation in the context of HIV and disability in KwaZulu-Natal, South Africa

The Functional Impacts of the Covid-19 Pandemic: A Rapid Review

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