HIV-Related Stigma among People with HIV and their Families: A Qualitative Analysis

Bogart, Laura M.; Cowgill, Burton O.; Kennedy, David P.; Ryan, Gery W.; Murphy, Debra A.; Elijah, Jacinta; Schuster, Mark A.

doi:10.1007/s10461-007-9231-x

Cited by 183 publications

(169 citation statements)

References 54 publications

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“…Our formative work and the literature suggest that women and heterosexual men often describe stigma in the context of being a parent (Bogart et al, 2007;Murphy et al, 2006). Therefore, we have included 3 items on this theme to maximize the relevance of the 28-item instrument to a more diverse group of PLHA (items 7, 8, 12).…”

Section: Discussionmentioning

confidence: 99%

“…Therefore, it is important to develop and evaluate measures of stigma among groups whose demographics reflect the diversity of the HIV epidemic. For example, studies of women and minorities living with HIV reveal that many mothers and fathers experience stigma in the form of stereotypes and blame directed toward HIV-positive parents (Bogart et al, 2007;Murphy et al, 2006;Sandelowski and Barroso, 2003). However, the dimensions of stigma that may be experienced as a parent have been left out of measures to date.…”

Section: Introductionmentioning

confidence: 99%

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Development and Psychometric Assessment of a Multidimensional Measure of Internalized HIV Stigma in a Sample of HIV-positive Adults

Sayles¹,

Hays

Sarkisian³

et al. 2008

AIDS Behav

170

153

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There is a need for a psychometrically sound measure of the stigma experienced by diverse persons living with HIV/AIDS (PLHA). The goal of this study was to develop and evaluate a multidimentional measure of internalized HIV stigma that captures stigma related to treatment and other aspects of the disease among sociodemographically diverse PLHA. We developed a 28-item measure of internalized HIV stigma composed of four scales based on previous qualitative work. Internal consistency reliability estimates in a sample of 202 PLHA was 0.93 for the overall measure, and exceeded 0.85 for three of the four stigma scales. Items discriminated well across scales, and correlations of the scales with shame, social support, and mental health supported construct validity. This measure should prove useful to investigators examining in the role of stigma in HIV treatment and health outcomes, and evaluating interventions designed to mitigate the impacts of stigma on PLHA.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Development and Psychometric Assessment of a Multidimensional Measure of Internalized HIV Stigma in a Sample of HIV-positive Adults

Sayles¹,

Hays

Sarkisian³

et al. 2008

AIDS Behav

170

153

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“…Considering that camp attendance reduces the sense of stigma, which is considered to be a major impediment to HIV medication adherence (Bogart et al, 2008), a second valuable area for future research would be the impact of camp attendance on adherence to medication.…”

Section: Discussionmentioning

confidence: 99%

“HIV/AIDS Isn’t Here”

Hyba¹

2017

cswr

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Ce document est protégé par la loi sur le droit d'auteur. L'utilisation des services d'Érudit (y compris la reproduction) est assujettie à sa politique d'utilisation que vous pouvez consulter en ligne.https://apropos.erudit.org/fr/usagers/politique-dutilisation/ Cet article est diffusé et préservé par Érudit.Érudit est un consortium interuniversitaire sans but lucratif composé de l'Université de Montréal, l'Université Laval et l'Université du Québec à Montréal. Il a pour mission la promotion et la valorisation de la recherche. 203 "HIV/AIDS ISN'T HERE" A Case Study of a One-Week Recreational Camp for Individuals Affected by HIV Naomi HybaAbstract: In this case study we examine the experiences of campers and volunteers at a one-week residential camp for individuals and families affected by HIV in Canada. The data presented was gathered during the camp session held in July 2013, and was derived from 26 interviews with campers and volunteers and from 40 self-administered surveys. This data highlights five themes: the camp as a "family" with a strong sense of community; a sense of belonging not experienced elsewhere due to stigma; the crucial role of peer social support; the camp as the intersection of diverse cultural and social groups; and reduced significance of one's HIV status in the camp environment. This study recommends that social workers, whose caseloads include HIV-affected individuals or families, make greater use of such camps --for example, systematic referrals, to boost social support. This article also calls on social workers to invest themselves in this type of community programming in order to enhance the quality and quantity of services offered. 204Revue canadienne de service social, volume 33, numéro 2 données font ressortir cinq thèmes : le camp vu comme une « famille » ayant un fort esprit de solidarité; le sentiment d'appartenance qui ne se ressent pas ailleurs à cause de la stigmatisation; le rôle crucial du soutien social entre pairs; le camp vu comme la rencontre de divers groupes culturels et sociaux; et la diminution de l'importance de la séropositivité de la personne au camp. L'étude recommande que les travailleurs sociaux dont la charge comprend des personnes ou des familles affectées par le VIH tirent davantage profit de tels camps -par exemple, en adressant systématiquement ces personnes à ce genre de camp pour qu'elles profitent d'une dose accrue de soutien social. L'article invite aussi les travailleurs sociaux à s'investir dans ce type de programmes communautaires afin d'améliorer la qualité et la quantité des services qu'ils offrent.

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“…In this sense, revealing the diagnosis of HIV/ AIDS is a painful process of confrontation, considering that the greatest fear is of social isolation and loss of support of important persons, in addition to the risk of having to live with discriminatory attitudes (11) . Revealing themselves as carriers means being exposed to judgments and exclusion, with the first threat perhaps not being the disease, as a physiopathologic process, but disease as the cause of a pathological social condition, generating fear of the consequences impacting on day-to-day family, social and working life relationships (12,13) . This fact shows the uniqueness of family care-giving to the child with HIV/ AIDS because, in addition to the normal demands of care, one has to avoid others in order to keep the secret (14) .…”

Section: Discussionmentioning

confidence: 99%

Face singular do cuidado familiar à criança portadora do vírus HIV/AIDS

et al. 2012

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Objective: To understand the lived experience of the family in caring for children with the HIV/AIDS virus. Methods: The study was conducted in a university hospital in the first semester of 2010. Participants included seven family caregivers. Data were collected through semi-structured interviews and analyzed using thematic analysis. Results: There was evidence of a silencing of the diagnosis by the family caregiver whose life function became that of caregiver for the child. In terms of difficulties for care, these included: the health conditions of the mother or her death; hospitalizations that compromised schooling and reveaed the diagnosis; and fear of telling the diagnosis to the child. Conclusion: It is believed that health/nursing professionals need to employ strategies that enable these families to better cope with everyday life, advising them about care, providing information on HIV/AIDS to people in their social circle, and diminishing stigma and discrimination to which these children are exposed. Keywords: Caregivers; Family; Child care; Acquired Immunodeficiency Syndrome/nursing RESUMO Objetivo: Conhecer as vivências da família no cuidado à criança portadora do vírus HIV/AIDS. Métodos: Foi realizado em um hospital universitário no primeiro semestre de 2010. Participaram sete familiares cuidadores. Os dados foram coletados por entrevistas semiestruturadas e analisados pela técnica de Análise Temática. Resultados: Evidenciou-se o silenciamento do diagnóstico pelo familiar cuidador que passa a viver em função do cuidado à criança. Como dificuldades para cuidar, destacam-se as condições de saúde da mãe ou sua morte, as hospitalizações como comprometedoras da escolarização e reveladoras do diagnóstico e o medo em contar o diagnóstico à criança. Conclusão: Acredita-se que os profissionais da saúde/enfermagem necessitam empregar estratégias que possibilitem a essas famílias melhor enfrentamento do cotidiano, assessorando-as para o cuidado, fornecendo informações sobre o HIV/AIDS às pessoas de seu círculo social, diminuindo o estigma e a discriminação a que estão expostas essas crianças. Descritores: Cuidadores; Família; Cuidado da criança; Síndrome de imunodeficiência adquirida/enfermagem RESUMEN Objetivo: Conocer las vivencias de la familia en el cuidado del niño portador del virus VIH/SIDA. Métodos: Fue realizado en un hospital universitario en el primer semestre de 2010. Participaron siete familiares cuidadores. Los datos fueron recolectados por medio de entrevistas semiestructuradas y analizadas por la técnica de Análisis Temático. Resultados: Se evidenció el silenciamiento del diagnóstico por parte del familiar cuidador quien pasa a vivir en función del cuidado al niño. Como dificultades para cuidar, se destacan las condiciones de salud de la madre o su muerte, las hospitalizaciones como comprometedoras de la escolarización y reveladoras del diagnóstico y el miedo para comunicar el diagnóstico al niño. Conclusión: Se cree que los profesionales de la salud/enfermería necesitan emplear estrategia...

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HIV-Related Stigma among People with HIV and their Families: A Qualitative Analysis

Cited by 183 publications

References 54 publications

Development and Psychometric Assessment of a Multidimensional Measure of Internalized HIV Stigma in a Sample of HIV-positive Adults

Development and Psychometric Assessment of a Multidimensional Measure of Internalized HIV Stigma in a Sample of HIV-positive Adults

“HIV/AIDS Isn’t Here”

Face singular do cuidado familiar à criança portadora do vírus HIV/AIDS

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