Home-based Care: A Need Assessment of People Living With HIV Infection in Bandung, Indonesia

Ibrahim, Kusman; Haroen, Hartiah; Pinxten, Lucas

doi:10.1016/j.jana.2010.10.002

Cited by 12 publications

(18 citation statements)

References 9 publications

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“…Although a universal health insurance system has been in place in the country since 2005, it has not worked as well as planned [6, 7], and economically disadvantaged patients still typically have to rely on family members to care for them rather than seeking professional treatment [8]. Unsurprisingly, wealthier patients generally tend to have better treatment outcomes than financially disadvantaged ones [9].…”

Section: Introductionmentioning

confidence: 99%

Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: a pilot study of basic skills training

2017

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BackgroundPalliative care in Indonesia is problematic because of cultural and socio-economic factors. Family in Indonesia is an integral part of caregiving process in inpatient and outpatient settings. However, most families are not adequately prepared to deliver basic care for their sick family member. This research is a pilot project aiming to evaluate how basic skills training (BST) given to family caregivers could enhance the quality of life (QoL) of palliative care cancer patients in Indonesia.MethodsThe study is a prospective quantitative with pre and post-test design. Thirty family caregivers of cancer patients were trained in basic skills including showering, washing hair, assisting for fecal and urinary elimination and oral care, as well as feeding at bedside. Patients’ QoL were measured at baseline and 4 weeks after training using EORTC QLQ C30. Hypothesis testing was done using related samples Wilcoxon Signed Rank. A paired t-test and one-way ANOVA were used to check in which subgroups was the intervention more significant.ResultsThe intervention showed a significant change in patients’ global health status/QoL, emotional and social functioning, pain, fatigue, dyspnea, insomnia, appetite loss, constipation and financial hardship of the patients. Male patient’s had a significant effect on global health status (qol) (p = 0.030); female patients had a significant effect on dyspnea (p = 0.050) and constipation (p = 0.038). Younger patients had a significant effect in global health status/QoL (p = 0.002). Patients between 45 and 54 years old had significant effect on financial issue (p = 0.039). Caregivers between 45 and 54 years old had significant effect on patients’ dyspnea (p = 0.031).ConclusionsBasic skills training for family caregivers provided some changes in some aspects of QoL of palliative cancer patients. The intervention showed promises in maintaining the QoL of cancer patients considering socio-economic and cultural challenges in the provision of palliative care in Indonesia.

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Section: Introductionmentioning

confidence: 99%

Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: a pilot study of basic skills training

2017

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“…Though basic nursing services was not documented as a main reason for home visit, it was however found to be the second most frequent service provided to patients during home visits and this could be related to the advanced stage of disease found in a majority of the patients as well as the recurrent need during follow up visits. Indeed, basic nursing care, along with psychological care and spiritual care have been acknowledged as essential and much need services in HBC (Ibrahim et al, 2011). Most of the nursing services in this category were not practicable in the clinic as the setting, job description and staff strength was not tailored towards providing such adept nursing services.…”

Section: Discussionmentioning

confidence: 99%

“…The patients lost to follow up could not be traced by the tracking team and may have died, relocated residence or sought healthcare elsewhere without requesting an appropriate referral from the facility. Most developing countries present a similar picture of scarce clinical staff and overwhelming patient load which results in services provided at sub optimal levels and this is further complicated by psychosocial issues in the patients such as poverty and stigma (Ibrahim et al, 2011;Jaffar et al, 2009). This study illustrates how collaboration between facility care and HBC has been utilized as a strategy to extend the continuum of care beyond the facility into the home with the involvement of support group members.…”

Section: Discussionmentioning

confidence: 99%

“…The World Health Organisation, the government of several countries as well as care givers of PLWHA have acknowledged HBC as a necessary component of HIV care and support (WHO, 2002;Pindani et al, 2013;Ibrahim et al, 2011;WHO, 2000). HBC programmes have been developed with a view to assisting families and care givers in providing HIV-related care to patients, and this has aided in reducing the burden on hospitals caring for PLWHA (Makoae and Jubber, 2008).…”

Section: Introductionmentioning

confidence: 99%

“…It has been estimated that up to 90% of illness care may be provided in the home by untrained family and associates (Ogden et al, 2006). In resource constrained settings burdened by HIV/AIDS such as found in sub-Saharan Africa, home based care plays a valuable and strategic role in complementing existing health care services by extending the continuum of care for PLWHA and their families into the home, thus bridging the gap between facility and home care (Ibrahim et al, 2011;Ogden et al, 2006;Aantjes et al, 2014). HBC is ideally provided by trained members of the community, and is meant to supplement hospital care not replace it.…”

Section: Introductionmentioning

confidence: 99%

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Pattern of home-based care in human immunodeficiency virus-infected patients attending adult antiretroviral therapy clinic of Jos University Teaching Hospital, Nigeria: A review from September, 2008 to December, 2013

Sule¹,

Agaba²,

Patrick³

et al. 2016

J. AIDS HIV Res.

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Home based care (HBC) is a key component of care and support for people infected with human immunodeficiency virus (HIV). Understanding the pattern of HBC needs in a population is beneficial in planning and providing optimal HBC services for the people. This retrospective study assessed the pattern of home based care needs and services in patients of the adult antiretroviral therapy (ART) clinic of Jos University Teaching Hospital (JUTH), Jos, Nigeria. All documented home based care visits to patients of the clinic from September 2008 to December 2013 were reviewed. Relevant information was obtained from the patients' clinical and home visit records. Data was analysed using Epi info version 7 statistical software. A total of 152 patients with 542 home visits were reviewed. There were 112 (73.7%) females and 40 (26.3%) males, with a mean age of 34±8.9 years at the time of initial home visits. The three commonest primary reasons for home visits were psychological counselling (22.7%), adherence counselling (15.5%) and ill-health (12.4%), while follow up visits accounted for 32.5% of the home visits. The 3 most frequent services provided during home visits were counselling on clients medication for adherence (77.5%), basic nursing care (61.6%), and psychological counselling (41.5%). By December 2013, out of 152 patients reviewed, 61.8% were alive, 15.1% had died and 23.1% were lost to follow up. The services provided during home visits extended beyond the patients' perceived needs (primary reasons for visit). Home based care brings to light some patient needs that may not be evident or catered for at the facility level of care. This supports the endorsement of home based care as a useful strategy to complement facility care towards achieving an overall patient well-being.

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Enroling and retaining human immunodeficiency virus (HIV) patients in their care: A metasynthesis of qualitative studies

Flores

Leblanc

Barroso

2016

International Journal of Nursing Studies

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Objectives To report the findings of a metasynthesis review of qualitative studies on patient and provider experiences and perspectives on linkage and retention in HIV care. Design The review is an extraction, aggregation, interpretation and synthesis of qualitative findings based on the Sandelowski and Barroso method. Data sources A search of the literature was conducted in the databases Cumulative Index to Nursing and Allied Health, PubMed and PsycInfo for articles published from 2008–2013. Inclusion criteria were qualitative research articles published in English from across the world and in peer-reviewed journals. Literature reviews, conference abstracts and grey literature were excluded from this metasynthesis. Review Methods The review consisted of a) comprehensive search, b) study classification, c) abstraction of findings, d) synthesis. Of the 4640 citations screened, 69 articles were included for this metasynthesis. Results 69 unique articles from 44 countries were included. This metasynthesis takes into account the perspectives of at least 2263 HIV-positive participants (740 men, 1008 women, 78 transgender individuals and 437 unspecified sex) and 994 healthcare providers, family members and community members. The most salient barriers and facilitators to HIV linkage and retention in HIV care affirm ecological factors that are mostly beyond individual patients’ control. Triadic streams of influence concurrently affect care engagement that include a person’s psychological state upon diagnosis and their informational challenges (intrapersonal stream); one-on-one interactions with providers and their immediate community (social stream); and life demands, overall quality of care experiences and other structural barriers (cultural-attitudinal stream). Each stream’s influence on HIV care engagement varies at any given point to reflect an individual’s evolving and unique experiences with HIV infection throughout the illness trajectory. Conclusion There is sufficient evidence that detail how to best link and retain patients in HIV care. Themes identified indicate going beyond individual-level factors and towards shifting attention and resources to systems that patients navigate. Forceful structural-level actions are needed to correct these long-identified barriers and enhance care engagement facilitators.

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Home-based Care: A Need Assessment of People Living With HIV Infection in Bandung, Indonesia

Cited by 12 publications

References 9 publications

Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: a pilot study of basic skills training

Enhancing the quality of life for palliative care cancer patients in Indonesia through family caregivers: a pilot study of basic skills training

Pattern of home-based care in human immunodeficiency virus-infected patients attending adult antiretroviral therapy clinic of Jos University Teaching Hospital, Nigeria: A review from September, 2008 to December, 2013

Enroling and retaining human immunodeficiency virus (HIV) patients in their care: A metasynthesis of qualitative studies

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