Home Care for Children with Chronic Respiratory Failure

“…] KEYWORDS. Chronic lung disease parents, intervention, caregiving Children with chronic lung disease include a medically fragile population that require frequent episodes of intervention and the assistance of life sustaining technologies (Keens, Jansen, Dewitt, & Davidson, 1990). These children, many of whom resided in health care facilities until recent years, are increasingly now living at home in the care of family members (Baumgardner & Burtea, 1998;Wang & Barnard, 2004).…”

mentioning

confidence: 99%

An Evaluation of Dyadic Peer Support for Caregiving Parents of Children with Chronic Lung Disease Requiring Technology Assistance

Nicholas

Keilty

2007

Social Work in Health Care

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This study evaluated a dyadic peer support pilot intervention for parents of technology-assisted children with chronic lung disease. These medically-fragile children, living at home in the primary care of their parents, require continuous or intermittent assistance from technological support such as home oxygen, respiratory or cardiac monitors and/or mechanical ventilators. The intervention consisted of matching parents with similar caregiving responsibilities, in order to reciprocally engage in parent-to-parent support. Results identified mixed outcomes based on quantitative and qualitative methods. Participants conveyed benefits and limitations of this modality of peer-based support. They generally favoured peer support as a clinical resource for caregiving parents as the intervention offered a valued opportunity for mutual sharing with another parent who could understand the unique realities particular to caring for a medically-fragile child. Sharing daily experiences was reported to reduce isolation, increase knowledge, and provide an important sense of feeling understood. Challenges associated with peer support included scheduling difficulties and personality incompatibility. Recommendations for program development in clinical settings are described.

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“…5,6 All patients met published standards of care 7,8 and the ward admission criteria, as written jointly by the institution's pediatric intensivists and the pediatric pulmonologists. All patients admitted to these two units were continuously or partially ventilator-dependent and all had tracheostomy.…”

Section: Methodsmentioning

confidence: 99%