Home Caregivers of the Person With Advanced Cancer

Aranda, Sanchia; Hayman-White, Karla

doi:10.1097/00002820-200108000-00011

Cited by 155 publications

(122 citation statements)

References 15 publications

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“…Family members who witness the patient's distress may experience psychological anguish and guilt if they are unable to comfort the patient or obtain the necessary medical assistance to relieve the patient's suffering (3). As well, the burden of caring may adversely affect family members who lack adequate resources or are poorly prepared for the caregiving role (16)(17)(18).…”

Section: Health Of the Family Membersmentioning

confidence: 99%

Palliative Care for Families: Remembering the Hidden Patients

2004

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F amilies of patients receiving palliative care are profoundly affected by the challenges of the illness. They must manage daily caregiving expectations, alterations to their roles, and changing responsibilities within the family. They also confront shifts in their understanding of the meaning of life and relationships as they come to recognize the terminal end point of the patient's illness. Family members manage physical care changes and practical difficulties with daily living while they handle their own emotional distress about the patient's care and concerns about the future. Families bring with them diverse histories and different approaches to coping. Some may experience the palliative care phase of an illness as a time of closeness, reflection, and enhanced family interactions. Others may bend under the burden of the illness and communication difficulties, and dysfunctional family patterns may emerge. Memories about the palliative care experience follow families in the bereavement period, sometimes complicating their grief and leaving them with feelings of regret. A family's perceptions of the care experience may also affect their health and family functioning

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Section: Health Of the Family Membersmentioning

confidence: 99%

Palliative Care for Families: Remembering the Hidden Patients

2004

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“…The caregiving burden of terminally ill patients' FCs has been well studied, 12,14,17,[21][22] but few studies have used a longitudinal design to examine changes in caregiving burden. Terminally ill patients' physical condition deteriorates quickly.…”

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confidence: 99%

Longitudinal Changes and Predictors of Caregiving Burden While Providing End-of-Life Care for Terminally Ill Cancer Patients

Lee

Chang

Chou

et al. 2013

Journal of Palliative Medicine

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Background: The effect of caring for a dying cancer patient on caregiving burden has been explored primarily in Western-based studies with small samples or in studies that did not follow up until the patient's death, but has not yet been investigated in Taiwan. Objective: The study's goals were (1) to identify the trajectory of caregiving burden for family caregivers (FCs) of terminally ill cancer patients in Taiwan, and (2) to investigate the determinants of caregiving burden in a large sample and with longitudinal follow-ups, until the patient's death. Method: A prospective, longitudinal study was conducted among 193 FCs. The trajectory and determinants of caregiving burden were identified by a generalized estimation equation approach. Results: Caregiving burden did not change as the patient's death approached. FCs experienced heavy caregiving burden when their relative suffered from greater symptom distress or if they were spousal caregivers; provided high intensity of assistance to the patient while spending fewer hours providing care; reported financial insufficiency; or had lower social support, fewer psychological resources, or less confidence in caregiving. Conclusions: Taiwanese family caregivers' carrry moderate caregiving burden which did not change significantly as the patients' death approached. The effects of caregiving burden while providing EOL care to terminally ill cancer patients may be tempered substantially by enhancing family caregivers caregiving confidence, social support, and psychological resources.

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“…Therefore, the health and well-being of cancer caregivers have attracted accelerating interest in recent years, and have been studied well in Western countries. [4][5][6][7] Quality of life (QOL) is a term used widely to indicate an individual's general well-being, and has been applied in the field of caregiving for years. Studies conducted in Western countries have *Correspondence: Lie Wang, PhD, Department of Social Medicine, School of Public Health, China Medical University, No.…”

mentioning

confidence: 99%

“…3 Therefore, the health and well-being of cancer caregivers have attracted accelerating interest in recent years, and have been studied well in Western countries. [4][5][6][7] Quality of life (QOL) is a term used widely to indicate an individual's general well-being, and has been applied in the field of caregiving for years. Studies conducted in Western countries have reported that factors associated with caregiver's QOL during the cancer caregiving period could be divided into four categories: (i) sociodemographic characteristics; (ii) caregiving demands; (iii) available psychological and social resources; and (iv) caregiving situation.…”

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confidence: 99%

Quality of life and related factors among cancer caregivers in China

Pan

Sun

et al. 2010

Psychiatry Clin Neurosci

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Aims: The present study was designed to investigate quality of life (QOL) among caregivers of cancer inpatients, and to explore the related factors with the long-term goal to improve QOL of cancer caregivers in China. Methods:A cross-sectional study was performed during the period January-March 2008. Subjects comprised 358 caregivers of cancer inpatients. The questionnaires pertaining to QOL, sociodemographic characteristics, caregiving demands, available social resources, caregiving situation, and caregiver's health status were used. Data were collected by nurses through interviews. Results:The average QOL score of these subjects was 5.26. General linear model analysis showed that caregiver's QOL was significantly associated with, in standardized estimate sequence, spousal relationship, patient's activities of daily living, and chronic disease (no). Overall spousal relationship to patient had the strongest association with caregiver's QOL.Conclusions: Psychological well-being and social concerns of cancer caregivers were disrupted more seriously than spiritual well-being and physical wellbeing. In addition, spousal relationship, patient's disability, and caregiver's health status could affect the caregiver's QOL.Key words: burden, cancer, caregiver, oncology, quality of life. C ANCER REMAINS ONE of the leading causes of morbidity and mortality worldwide. According to the World Cancer Report estimated by the World Health Organization, cancer rates have increased at an alarming rate, from 10 million new cases globally in 2000 to 15 million in 2002, 1 and it has been estimated that, in 2020, the world's cancer population will increase to 7.5 billion, which will include 15 million new cancer cases and 12 million cancer deaths.2 However, cancer has an effect not only on patients, but also on family caregivers, because cancer patients need long-term care due to the long duration of the disease and the treatment, such as surgery, chemotherapy and radiotherapy. In a study of family caregivers of cancer patients, 66.8% of caregivers quit work or made major life changes in order to provide care, 68.0% of families lost most of their savings, and 55.0% of families lost their main source of income. Therefore, the health and well-being of cancer caregivers have attracted accelerating interest in recent years, and have been studied well in Western countries. [4][5][6][7] Quality of life (QOL) is a term used widely to indicate an individual's general well-being, and has been applied in the field of caregiving for years. Studies conducted in Western countries have *Correspondence: Lie Wang, PhD, Department of Social Medicine, School of Public Health, China Medical University, No. 92 Beier Road, Heping District, Shenyang, 110001, China. Email: liewang@mail.cmu.edu.cn Received 9 November 2009; revised 14 June 2010; accepted 11 July 2010. Psychiatry and Clinical Neurosciences 2010; 64: 505-513 doi:10.1111/j.1440-1819.02131.x 505 © 2010 The Authors Psychiatry and Clinical Neurosciences © 2010 Japanese Society of Psychiatry ...

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Home Caregivers of the Person With Advanced Cancer

Cited by 155 publications

References 15 publications

Palliative Care for Families: Remembering the Hidden Patients

Palliative Care for Families: Remembering the Hidden Patients

Longitudinal Changes and Predictors of Caregiving Burden While Providing End-of-Life Care for Terminally Ill Cancer Patients

Quality of life and related factors among cancer caregivers in China

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