Home enteral nutrition recipients: patient perspectives on training, complications and satisfaction

Boland, Karen; Maher, Niamh; O’Hanlon, Carmel; O’Sullivan, Maria; Rice, Niamh; Smyth, M.; Reynolds, John V.

doi:10.1136/flgastro-2016-100736

Cited by 15 publications

(26 citation statements)

References 14 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Besides the shortage of home dental services, the lack of dietician follow‐ups among our patients was also mentioned; this was also discussed in previous literature (Boland et al., ; Silver et al., ). Boland et al.…”

Section: Discussionsupporting

confidence: 57%

See 1 more Smart Citation

Caring for patients on home enteral nutrition: Reported complications by home carers and perspectives of community nurses

Lim

Yong

Mar

et al. 2018

Journal of Clinical Nursing

View full text Add to dashboard Cite

show abstract

Section: Discussionsupporting

confidence: 57%

“…Boland et al. () reported that only 18% of the patients on HEN were reviewed by a community‐based dietician. Similarly, Silver et al.…”

Section: Discussionmentioning

confidence: 99%

Caring for patients on home enteral nutrition: Reported complications by home carers and perspectives of community nurses

Lim

Yong

Mar

et al. 2018

Journal of Clinical Nursing

View full text Add to dashboard Cite

show abstract

“…In accordance with other studies , participants described a variety of problems associated with the ET and strategies that they employed to manage them. The qualitative approach of the present study enabled participants to freely describe issues with their enteral nutrition, although there are well documented limitations with an interview approach .…”

Section: Discussionmentioning

confidence: 58%

The experiences and support needs of people living at home with an enteral tube: a qualitative interview study

Green

Townsend

Jarrett

et al. 2019

J Human Nutrition Diet

View full text Add to dashboard Cite

Background The number of people with an enteral tube (ET) living at home is increasing globally and services to support them to manage this complex and life‐changing intervention vary across regions. The present study aimed to gain an understanding of the experiences of people living at home with an ET and their carers, as well as to explore their views of supporting services and ET‐related hospital admissions. Methods A qualitative inductive descriptive design was employed. Semi‐structured, face‐to‐face interviews with a purposive sample of people with an ET living at home and carers were undertaken. Interviews were transcribed, initial codes were assigned for salient constructs, and these were then grouped and developed into themes and sub‐themes. Results Nineteen people with ETs and 15 carers of people with ETs were interviewed. Five themes were generated: home better than hospital, feelings about the tube, living with the tube, help when you need it and cost for health service. Participants indicated the ET significantly influenced daily life. Participants described becoming used to coping with the ET at home over time and developing strategies to manage problems, avoid hospital admission and reduce resource waste. Variation in supporting services was described. Conclusions People with ETs and their carers need considerable support from knowledgeable, responsive healthcare practitioners during the weeks following initial placement of the ET. Twenty‐four hour services to support people with ETs should be designed in partnership with the aim of reducing burden, negative experience, waste and hospital admissions. National frameworks for home enteral nutrition could set the standard for support for people with ETs.

show abstract

“…Participants in this study described a variety of problems associated with the tube and the strategies that they employed to manage them. Other studies have reported a wide range of complications (Chang et al , Correa et al , Halliday et al , Lim et al , Rogers et al ) with blockage and infection being cited as common in adults (Boland et al, ). A recent survey of home carers in Singapore reported constipation, abdominal distension and vomiting as common complications (Lim et al, ).…”

Section: Discussionmentioning

confidence: 99%

People with enteral tubes and their carers' views of living with a tube and managing associated problems: A qualitative interview study

Green

Townsend

Jarrett

et al. 2019

Journal of Clinical Nursing

View full text Add to dashboard Cite

Background Nutrition by enteral tube is a complex therapy requiring significant management to ensure safe, timely delivery of nutrients and avoidance of complications. In the home setting, people with enteral tubes and their carers are required to self‐manage the therapy, including the need to cope with problems that arise. Whilst previous studies have conveyed experiences of people with enteral tubes, few have described views on enteral tube problems. Aims and objectives Drawing on the findings of a previously reported study (Journal of Human Nutrition and Dietetics, 2019), this paper aims to describe in‐depth the experiences of people with enteral tubes and their carers of living with the tube day to day and managing problems that arise. Design A qualitative descriptive design using semi‐structured in‐depth interviews was employed. Methods A purposive sample of 19 people with enteral tubes and 15 carers of people with tubes participated. Interviews were recorded and transcribed. Using a thematic analysis approach, codes were defined and applied; themes developed and refined. Five themes with associated subthemes were generated, of which one, “living with the tube,” is reported in‐depth. The COREQ checklist was used. Results Participants described the tube affecting both physical and psychosocial being and revealed it had resulted in significant changes to their daily living, necessitating adaptation to a new way of life. Participants reported spending much time and effort to manage tube problems, at times without support from healthcare practitioners knowledgeable in tube management. Discomfort associated with the tube was commonly described. Conclusions Living with an enteral tube impacts significantly on daily life requiring adaptations to normal routine. People with tubes and their carers use a range of strategies to manage common complications. Relevance to clinical practice Knowledge and understanding of how people with enteral tubes live with their tube and manage issues as they arise will enable healthcare practitioners to provide better support.

show abstract

Home enteral nutrition recipients: patient perspectives on training, complications and satisfaction

Cited by 15 publications

References 14 publications

Caring for patients on home enteral nutrition: Reported complications by home carers and perspectives of community nurses

Caring for patients on home enteral nutrition: Reported complications by home carers and perspectives of community nurses

The experiences and support needs of people living at home with an enteral tube: a qualitative interview study

People with enteral tubes and their carers' views of living with a tube and managing associated problems: A qualitative interview study

Contact Info

Product

Resources

About