“Home Thoughts from Abroad”: Reflections on the History of Participatory Health Research in the UK

Springett, Jane

doi:10.1007/978-3-319-92177-8_16

Cited by 1 publication

(1 citation statement)

References 61 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Van Bekkum et al [ 77 ] highlight that UK funders can determine the boundaries of researchers and often view citizen engagement as a ‘problem-solving tool for improving science’ (p. 9) rather than emphasizing the potential of more inclusive approaches driven by democratic imperatives. This is rather counterintuitive, because health inequalities and poverty are increasing in Western societies, which calls for renewed guidance for participatory research on the policy level which is more explicit regarding the values of social justice [ 74 , 77 ].…”

Section: Discussionmentioning

confidence: 99%

Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search

et al. 2021

View full text Add to dashboard Cite

Although public engagement in research is increasingly popular, the involvement of citizens living in vulnerable circumstances is rarely realized. This narrative review aims to describe and critically analyse concerns and corresponding strategies, tools, and methods that could support the inclusion of these citizens in health research. The 40 studies that are included were thematically analysed using the socioecological model. Concerns originate most often on the intrapersonal level of the socioecological model, but concerns were also identified at institutional, community, and policy levels. It is thought-provoking that there is a lack of attention for the research and policy structure in which engagement practices are designed, implemented and evaluated. More research is needed to explore how these cultures could be changed in a way that promotes rather than restrains the engagement of citizens living in vulnerable circumstances in research and policymaking.

show abstract

Section: Discussionmentioning

confidence: 99%