Hooked on a feeling? Exploring desires and ‘solutions’ in infertility accounts given by women with ‘atypical’ sex development

Abstract

Sociocultural meanings accorded to infertility, and rapid developments in assisted reproductive technologies, have long been central concerns in feminist and social scientific research. However, knowledge is scarce concerning how individuals make sense of infertility when it is disclosed in adolescence, for example as the result of an 'atypical' sex development, rather than as a result of failed conception. This article examines how understandings of desires, kinship and 'solutions' take shape and are negotiated in the accounts women give of infertility resulting from 'atypical' sex development. Through a thematic analysis it demonstrates how the interviewees described their desire for relationships and connectedness, which they considered to be made possible through pregnant embodiment, and details how these desires connected to a preference for medical 'solutions'. Specifically, the article discusses how the interviewees' accounts exemplifies how biological kinship can be 'done' without giving precedence to genetics. By addressing the specificities of finding out about infertility as a result of 'atypical' sex development, it furthermore highlights gaps in the common medical definition of infertility. These findings underscore the urgency of examining how definitions of infertility obscure certain experiences and consequently limit affected individuals' access to support and treatment. In conclusion, it is suggested that the article contributes to a more positive discourse on infertility in feminist scholarship by teasing out the temporal dimensions of how affected individuals 'make active use' of assisted reproductive technologies to mitigate uncertainty and maintain hope, while at the same time renegotiating dominant norms of kinship.

The Ethics of the Societal Entrenchment-approach and the case of live uterus transplantation-IVF

“…Equating the absence of a uterus with being involuntarily childless risks glossing over the fact that not all women with UFI desire UTx-IVF. This equation, we hold, is problematic, since it reinforces ideas about an unmet need for UTx-IVF and assumptions about women’s reproductive desires and the desire for a uterus although research into the perspectives of women with UFI is very scarce (see however Guntram 2018).…”

Doing infertility: an agential realist approach to the experiences of women with ‘atypical’ development of the reproductive system

“…Infertility is not a new theme in feminist scholarship. Given the centrality traditionally ascribed to reproduction in normative models of femininity, several feminist authors (Thompson, 2002;Shanley & Asch, 2009;Guntram, 2018) have addressed the issue of involuntary childlessness over the decades, stressing, for example, how the essentialist notion of motherhood as necessary to womanhood characterises a source of particular suffering and stigma for women diagnosed as infertile. In recent years, however, issues of women's reproductive health have become increasingly prominent in feminist literature, particularly in the context of current debates about the political, economic, and cultural implications of the emergence of new reproductive technologies (e.g.…”

May I have your uterus? The contribution of considering complexities preceding live uterus transplantation

“…1: 105–21. 10.1177/146470011246857; Lisa Guntram (2018) , ’Hooked on a Feeling? Exploring Desires and ’Solutions’ in Infertility Accounts Given by Women with ’Atypical’ Sex Development’, Health 22, no.…”