Hope After TBI Begins with Rehabilitation

Armstrong, Tiffany; Murtaugh, Brooke

doi:10.1097/cnj.0000000000000734

Cited by 2 publications

(2 citation statements)

References 17 publications

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“…Several findings related to support were noted which have important implications, such as limited psychological support for carers across injury types, and inconsistent care and communication in hospitals. Support was especially limited for carers supporting a person without a TBI, particularly regarding the provision of rehabilitative care; whereas in the case of TBI, professional care in the community was given, this corroborates existing evidence [ 26 ].…”

Section: Discussionsupporting

confidence: 74%

A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors

Hudson

Radford

Kettlewell

2022

IJERPH

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Background: Following traumatic injury, an informal carer is often required to support recovery. Understanding the impact of caregiving is important to inform intervention design. Aim: to explore the impact of caring on family and caregiver finances, employment, social life, and psychological wellbeing. Method: Semi-structured interviews conducted with carers of traumatic injury survivors. Interviews were audio recorded, transcribed and thematically analysed, informed by the Roy Adaptation Model (RAM) and International Classification of Functioning, Disability and Health (ICF). Results: Ten participants were interviewed. Key themes included (1) financial impact/employment issues, (2) relationships and support and (3) psychological impact. Most carers did not receive professional support with daily care post-discharge. Carers’ employers responded positively, supporting them even after extensive leave. Carers received inconsistent communication whilst visiting trauma survivors in hospital; carers with healthcare experience were favoured. Navigating and receiving benefits was complex. Some carers found it difficult to accept the trauma survivor’s injury, whilst others focused on achieving goals. Conclusions: Support from professional services is limited outside hospital settings for non-brain injuries. Future interventions and healthcare services should acknowledge the lack of psychological support for carers. Researchers should consider using the ICF/RAM when designing interventions to ensure the full impact on carers is addressed.

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Section: Discussionsupporting

confidence: 74%

A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors

Hudson

Radford

Kettlewell

2022

IJERPH

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“…Research with consumers of specialist brain injury services supports the jurors' While our findings may be challenging and confronting to both clinicians and hospital administrators, some of the themes generated and recommendations made by our critically detached jurors mirror the concerns highlighted in other research investigating consumer preferences and experiences in brain injury rehabilitation. 28,38,39 These included the importance of hope in recovery which has been reported by both clinicians 40,41 and people with lived experience, 42 increasing public awareness of brain injury 34 and the need to involve family as partners in rehabilitation. 30,31 It is acknowledged, however, that none of these issues are straightforward.…”

Section: Advocacymentioning

confidence: 99%

Public perspectives on acquired brain injury rehabilitation and components of care: A Citizens’ Jury

Lannin

Coulter

Laver

et al. 2020

Health Expectations

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Background Brain injury rehabilitation is an expensive and long‐term endeavour. Very little published information or debate has underpinned policy for service delivery in Australia. Within the context of finite health budgets and the challenges associated with providing optimal care to persons with brain injuries, members of the public were asked ‘What considerations are important to include in a model of care of brain injury rehabilitation?’ Methods Qualitative study using the Citizen Jury method of participatory research. Twelve adult jurors from the community and seven witnesses participated including a health services funding model expert, peak body representative with lived experience of brain injury, carer of a person with a brain injury, and brain injury rehabilitation specialists. Witnesses were cross‐examined by jurors over two days. Results Key themes related to the need for a model of rehabilitation to: be consumer‐focused and supporting the retention of hope; be long‐term; provide equitable access to services irrespective of funding source; be inclusive of family; provide advocacy; raise public awareness; and be delivered by experts in a suitable environment. A set of eight recommendations were made. Conclusion Instigating the recommendations made requires careful consideration of the need for new models of care with flexible services; family involvement; recruitment and retention of highly skilled staff; and providing consumer‐focused services that prepare individuals and their carers for the long term. Patient and public contribution As jury members, the public deliberated information provided by expert witnesses (including a person with a head injury) and wrote the key recommendations.

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Hope After TBI Begins with Rehabilitation

Cited by 2 publications

References 17 publications

A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors

A Qualitative Study to Understand the Impact of Caring for Traumatic Injury Survivors

Public perspectives on acquired brain injury rehabilitation and components of care: A Citizens’ Jury

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