Hope in Palliative Care: A Thematic Analysis

Beng, Tan Seng; Xin, Cheah Ai; Ying, Yeoh Kee; Khuen, Lim Poh; Yee, Anne; Zainuddin, Sheriza Izwa; Chin, Loh Ee; Loong, Lam Chee

doi:10.1177/0825859720948976

Cited by 17 publications

(11 citation statements)

References 13 publications

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“…Establishing rapport was represented by spending time, having easy and positive interactions with patients, and developing trust by balancing optimism and honesty. These elements of palliative care are well‐represented in the literature 47 . However, it is important to also consider the purposes of rapport building.…”

Section: Resultsmentioning

confidence: 99%

‘When a patient chooses to die at home, that's what they want… comfort, home’: Brilliance in community‐based palliative care nursing

Hodgins

Womsley

Collier

2023

Health Expectations

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Introduction To redress the scholarly preoccupation with gaps, issues, and problems in palliative care, this article extends previous findings on what constitutes brilliant palliative care to ask what brilliant nursing practices are supported and promoted. Methods This study involved the methodology of POSH‐VRE, which combines positive organisational scholarship in healthcare (POSH) with video‐reflexive ethnography (VRE). From August 2015 to May 2017, inclusive, nurses affiliated with a community health service who delivered palliative care, contributed to this study as co‐researchers (n = 4) or participants (n = 20). Patients who received palliative care (n = 30) and carers (n = 16) contributed as secondary participants, as they were part of observed instances of palliative care. With a particular focus on the practices and experiences that exceeded expectations and brought joy and delight, the study involved capturing video‐recordings of community‐based palliative care in situ; reflexively analysing the recordings with the nurses; as well as ethnography to witness, experience, and understand practices and experiences. Data were analysed, teleologically, to clarify what brilliant practices were supported and promoted. Results Brilliant community‐based palliative care nursing largely involved maintaining normality in patients’ and carers’ lives. The nurses demonstrated this by masking the clinical aspects of their role, normalising these aspects, and appreciating alternative ‘normals’. Conclusion Redressing the scholarly preoccupation with gaps, issues, and problems in palliative care, this article demonstrates how what is ordinary is extraordinary. Specifically, given the intrusiveness and abnormalising effects of technical clinical interventions, brilliant community‐based palliative care can be realised when nurses enact practices that serve to promote a patient or carer to normality. Patient or Public Contribution Patients and carers contributed to this study as participants, while nurses contributed to this study as co‐researchers in the conduct of the study, the analysis and interpretation of the data, and the preparation of the article.

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Section: Resultsmentioning

confidence: 99%

‘When a patient chooses to die at home, that's what they want… comfort, home’: Brilliance in community‐based palliative care nursing

Hodgins

Womsley

Collier

2023

Health Expectations

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“…Many factors affected a patient's level of hope, including interpersonal interactions, value evaluation, achievable goals, positive personality traits, and spiritual beliefs [ 44 ]. Therefore, understanding hope from a disease perspective may allow healthcare staff to develop strategies to better foster hope so that patients can cope with disease positively [ 45 ]. Thirdly, the study was underpowered due to the study sample, a larger study sample, significant between-group differences may be obtained.…”

Section: Discussionmentioning

confidence: 99%

Expressive Arts Therapy Combined with Progressive Muscle Relaxation following Music for Perioperative Patients with Gynecological Malignancies: A Pilot Study

Liu

Ren

Jiang

et al. 2022

Evidence-Based Complementary and Alternative Medicine

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Objective. We aimed to assess the impact of an expressive arts therapy combined with progressive muscle relaxation following music on mental health (anxiety and hope) in patients with gynecological malignancies undergoing surgery. Methods. This was a nonrandomized controlled trial. Eligible patients had a primary or recurrent gynecological malignancy scheduled to be treated with surgery. The intervention consisted of three sessions (preoperation, postoperation, and predischarge) during the perioperative period. Firstly, before starting the first session of intervention, all patients completed three questionnaires including a Hospital Anxiety and Depression Scale (HADS), a Herth Hope Index (HHI), and a State Anxiety Inventory (SAI), and the intervention group patients also had to complete the SAI questionnaire again after completing the intervention. Secondly, after the second session of intervention, all patients completed the SAI questionnaire, with the intervention group completed the SAI questionnaire before the intervention. Thirdly, after the third session of intervention, all patients completed HHI and SAI questionnaires, with the intervention group completed the SAI questionnaire before the intervention. Also, to subjectively rate the benefit of expressive arts therapy, the intervention group additionally completed a separate, supplemental questionnaire. Results. A total of 116 patients were enrolled and 110 included in the final analysis. No group differences were found for HHI scores between the intervention and control participants (Cohen’s d = 0.19, P = 0.31 ), although there was a substantial improvement in intervention participants’ HHI scores compared to the standard care control participants. There was a statistically significant improvement in intervention participants’ SAI from preintervention to postintervention of preoperation (Cohen’s d = −0.23, P = 0.002 ) and postoperation (Cohen’s d = −0.34, P ≤ 0.001 ). However, no differences were observed for the predischarge period (Cohen’s d = −0.09, P = 0.118 ). Besides, a supplemental questionnaire indicated that 52 (98%) patients felt that expressive arts therapy was beneficial. Conclusions. Expressive art therapy combined with progressive muscle relaxation under music may be of some effect on alleviating perioperative anxiety in patients with gynecologic malignancies. Therefore, further relevant studies with large samples and multicenters are urgently needed to provide a reliable evidence-based basis for perioperative psychological care of patients with gynecologic malignancies and to promote rapid recovery of patients. It is recommended that further art therapy studies to examine the impact of patient-tailored arts therapy interventions on spiritual well-being in patients with gynecological malignancies, especially in the perioperative period.

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“…Assim, ela é parte do indivíduo, está sempre em seu cotidiano; sua intensidade é variável e depende de inúmeros aspectos que causam interferência positiva ou negativa 1,5,9 . Destarte, essa energia parece conter aquilo que a pessoa é capaz de acreditar, relacionada às questões intrínsecas do ser, como valores, costumes, crenças e experiências de vida 8 .…”

Section: Constructo Da Esperançaunclassified

“…Pode-se melhorar a autoestima e o engajamento, sendo a esperança um mecanismo de enfrentamento positivo nas distintas fases da doença. Associado à atitude positiva e à manutenção do humor, vislumbra-se um "caminhar" com mais vigor, sem perder a esperança 8,13 . A resiliência é uma importante capacidade de adaptação, a qual é inter--relacionada com o bem-estar espiritual e a esperança 14 .…”

Section: Constructo Da Esperançaunclassified

“…O outro modelo teórico se encontra na psicologia, a teoria da esperança de Snyder, que compreende três componentes inter-relacionados (metas, caminhos e agência) que consistem em qualquer evento que a pessoa deseja 6 . Ambos os constructos teóricos apresentam o senso de expectativa focado em metas e no futuro, apoiados pela interconexão e relacionamentos 7,8 .…”

Section: Introductionunclassified

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Esperança da Pessoa com Câncer Avançado em Cuidados Paliativos

Ramos,

Silva,

Carvalho

et al. 2024

Rev. Bras. Cancerol.

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A esperança é um constructo multidimensional e multifacetado imbricado no processo de cuidar das pessoas com câncer, trata-se de estado emocional dinâmico, adaptativo e essencial para transcendência. O objetivo deste estudo é refletir sobre a esperança da pessoa com câncer avançado em cuidados paliativos. A esperança é multideterminada por diferentes fatores intrínsecos, funcionais, socioafetivos, psicoemocionais, terapêuticos; entre outros, ela é ancorada e potencializada pela espiritualidade, que propulsiona a transposição da adversidade imposta pela doença progressiva e busca de sentido da vida. Existe relação positiva entre a esperança e a qualidade de vida relacionada à saúde, além de ser parte de uma “engrenagem” dinâmica, intimamente associada ao bem-estar biopsicossocioespiritual. Faz-se importante a reflexão do impacto da esperança no cuidado da pessoa com câncer avançado para um planejamento holístico e fundamentado na avaliação e promoção da esperança no intuito de auxiliar na busca de equilíbrio.

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Hope in Palliative Care: A Thematic Analysis

Cited by 17 publications

References 13 publications

‘When a patient chooses to die at home, that's what they want… comfort, home’: Brilliance in community‐based palliative care nursing

‘When a patient chooses to die at home, that's what they want… comfort, home’: Brilliance in community‐based palliative care nursing

Expressive Arts Therapy Combined with Progressive Muscle Relaxation following Music for Perioperative Patients with Gynecological Malignancies: A Pilot Study

Esperança da Pessoa com Câncer Avançado em Cuidados Paliativos

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