Hoping to reach a safe haven - Swedish families' lived experience when a family member is diagnosed with breast cancer

Holst-Hansson, Annette; Idvall, Ewa; Bolmsjö, Ingrid; Wennick, Anne

doi:10.1016/j.ejon.2017.10.003

Cited by 21 publications

(20 citation statements)

References 177 publications

(201 reference statements)

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“…Previous studies have reported that in the home-setting, caregivers are often responsible for providing treatment decision-making, symptom management, physical as well as emotional support [13,14]. Traditionally, caregiving has also been described in terms of the functional status of the patient [15].…”

Section: Introductionmentioning

confidence: 99%

Caregiving motivations and experiences among family caregivers of patients living with advanced breast cancer in Ghana

Kusi

Mensah

et al. 2020

PLoS ONE

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Introduction Significant number of women present with advanced-stage breast cancer in Ghana. These women usually depend on family caregivers for their multi-dimensional needs. Yet, there are gaps in research about what motivates family caregivers to assume the caring role and their experiences with caregiving within the Ghanaian context. Aim To explore and describe the caregiving motivations and experiences among family caregivers of patients living with advanced breast cancer. Methods In-depth, semi-structured qualitative interviews were conducted with 15 family caregivers who were providing unpaid care for women living with advanced breast cancer. Colaizzi's thematic analysis was used to analyze the data. Results Family relationship normally prescribed the caregiving role among family caregivers. Due to the lack of home-based palliative services in Ghana, findings suggest that family caregivers are the main managers of advanced breast cancer-related symptoms in the home. These findings are discussed under three major themes: (i) motivation for assuming the caregiving role; (ii) meeting self-care and psychosocial needs of the patient; and (iii) symptom management and monitoring. Conclusion Socio-cultural values influence the role of family caregivers in Ghana. This presents opportunities for health professionals and relevant stakeholders to develop a culturally-PLOS ONE

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Section: Introductionmentioning

confidence: 99%

Caregiving motivations and experiences among family caregivers of patients living with advanced breast cancer in Ghana

Kusi

Mensah

et al. 2020

PLoS ONE

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“…The burden of breast cancer caregiving includes emotional distress, financial burden, physical stress, and fear of uncertainty among caregivers [11][12][13]. Furthermore, the advanced stage disease presentation, a hallmark of this disease in LMICs, can result in increased psychosocial morbidity, poor physical health, and overall poor quality of life among caregivers [6,10,11,14].…”

Section: Introductionmentioning

confidence: 99%

The experiences of family caregivers living with breast cancer patients in low-and middle-income countries: a systematic review

Kusi

Mensah

et al. 2020

Syst Rev

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Introduction: Caregivers of women with breast cancer in low-and-middle-income countries experience significant physical and economic burdens. The review aimed to map the evidence of studies that had reported on the experiences of family caregivers of women diagnosed with breast cancer. Methods: A systematic literature search was conducted in CINAHL, PubMed, PsycINFO, Scopus, and Web of Science databases using a combination of key search terms and medical subject heading terms such as "family caregiver," "breast cancer," "home care," "low-and-middle-income countries," "experience," "effect," and "coping mechanism." A total of 1781 articles were retrieved and screened. Nineteen studies addressing caregiving experiences were included in the final review based on the inclusion and exclusion criteria. Results: The systematic review yielded 19 studies that focused on caregivers' motivation, needs of caregivers, intervention for caregivers, and consequences of caregiving. The most significant correlates of the quality of life among caregivers were disease severity, functional status of patients, and family income. The challenges encountered by caregivers were mostly psychosocial. Conclusions: Caregivers play a crucial role in the management of women with breast cancer. However, they are faced with increasing challenges in their caregiving roles. Understanding the nature and extent of the burden experienced by family caregivers in developing countries will facilitate the development of appropriate interventions that can help improve caregivers' quality of life. Gaps in recent studies were identified, and suggestions for future research were also addressed in this review. Systematic review registration: PROSPERO CRD42019118391

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“…4,5 Studies have shown that hope is an important construct for breast cancer patients to cope with the associated stressors and difficulties associated with the disease. 5,6 Hope is defined as the perceived capability and motivation to pursue and achieve the desired goals. 7 Research has found hope to be an important factor for maintaining a commitment to favorable goals and coping skills in women with breast cancer.…”

Section: Introductionmentioning

confidence: 99%

“…Research has revealed that women with breast cancer can report a range of negative responses following diagnosis that include anger, anxiety related to death and fear of mastectomy, psychological distress, and self‐imposed social devaluation that may lead to feelings of hopelessness . Studies have shown that hope is an important construct for breast cancer patients to cope with the associated stressors and difficulties associated with the disease . Hope is defined as the perceived capability and motivation to pursue and achieve the desired goals .…”

Section: Introductionmentioning

confidence: 99%

The effects of perceived stress on hope in women with breast cancer and the role of psychological hardiness

et al. 2019

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Objective Diagnosis and treatment of breast cancer are psychologically stressful events, and hope and hardiness have been found to be important constructs for women with breast cancer. Therefore, this research sought to examine the relationships of perceived stress and hardiness with hope, and the buffering role of hardiness in the link between perceived stress and hope among Iranian women with breast cancer. Methods Two hundred and twenty Iranian women with breast cancer from three hospitals completed online measures evaluating perceived stress, hardiness, and hope. Results Using structural equation modelling, perceived stress was found to be negatively related to hope. Additionally, there was a positive relationship between hardiness and hope. The findings indicate that hardiness is a buffer in the link between perceived stress and hope for women with breast cancer. Conclusions These findings demonstrate the importance of hardiness in reducing the effects of perceived stress on hope and have clinical implications for health professionals.

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Hoping to reach a safe haven - Swedish families' lived experience when a family member is diagnosed with breast cancer

Abstract: Families experience an unmet need of information and support, which implies that healthcare professionals may want to acknowledge and include the family already at the time of diagnosis in order to help them endure and cope with the distressing experience and thus increase their wellbeing.

Cited by 21 publications

References 177 publications

Caregiving motivations and experiences among family caregivers of patients living with advanced breast cancer in Ghana

Caregiving motivations and experiences among family caregivers of patients living with advanced breast cancer in Ghana

The experiences of family caregivers living with breast cancer patients in low-and middle-income countries: a systematic review

The effects of perceived stress on hope in women with breast cancer and the role of psychological hardiness

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