Hospice Family Caregiver Perceptions of Benefits and Challenges of a Telenovela Educational Intervention

Cruz‐Oliver, Dulce M.; Abshire, Martha; Nelson, Katie; Milner, Gabrielle E; Blinka, Marcela; Durkin, Nowell; Budhathoki, Chakra; Parker-Oliver, Debra; Smith, Thomas J.

doi:10.1089/jpm.2021.0628

Cited by 6 publications

(3 citation statements)

References 21 publications

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“…Actualmente, el Ministerio de Salud (MINSAL) cuenta con una plataforma digital denominada "Hospital Digital", que es un modelo de atención en salud en base a tecnologías, el cual cuenta con cápsulas educativas desarrolladas por expertos a la ciudadanía 26 . Otra estrategia desarrollada en el área de la educación son las llamadas "telenovelas", un sistema de educación innovador que mejora la capacidad de los cuidadores familiares de personas a fin de vida al controlar su angustia y dolor 27 .…”

Section: ¿Qué Aporta Este Estudio a Lo Ya Conocido?unclassified

Aportes de la E-heath en cuidados paliativos pediátricos

Vega

Gradón

2022

Andes pediatr

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Se ha demostrado que el cuidado domiciliario de niños con necesidades especiales de atención en salud y con enfermedades de alta complejidad, ha permitido bajar los costos asociados a la hospitalización y disminuir el riesgo de mortalidad, por lo que un acompañamiento oportuno, seguro y continuo de los padres o cuidadores es una importante tarea de los equipos de salud. Esta atención puede verse dificultada por problemas de comunicación y capacidad de reacción a las demandas de atención, lo que genera ansiedad en los cuidadores al momento de tomar decisiones, barrera que se ha logrado minimizar con la incorporación de modernas tecnologías. En esta actualización presentamos un análisis y reflexión respecto a la implementación de la tecnología como una herramienta al servicio de los cuidadores de niños con necesidades especiales, basándose en la aplicabilidad existente en cuidados paliativos.

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Section: ¿Qué Aporta Este Estudio a Lo Ya Conocido?unclassified

Aportes de la E-heath en cuidados paliativos pediátricos

Vega

Gradón

2022

Andes pediatr

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“…11,12 In hospice care, previous research has used story-based educational videos as a means of conveying important EoL issues that caregivers routinely face. 13 Storytelling can be a powerful medium to convey information tailored to different ethnic/racial groups and support their caregiving experience. Although story-based educational videos have been studied with Latino/a caregivers in hospice, 13 to the knowledge of this study team, there have not been any educational-based interventions targeting Black hospice caregivers.…”

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confidence: 99%

“…Providing tailored information around relevant caregiving issues can improve preparedness and competence while imparting essential knowledge that could benefit caregivers and/or the patients for whom they care 11,12 . In hospice care, previous research has used story-based educational videos as a means of conveying important EoL issues that caregivers routinely face 13 . Storytelling can be a powerful medium to convey information tailored to different ethnic/racial groups and support their caregiving experience.…”

mentioning

confidence: 99%

Pilot Testing Educational Videos for Black Caregivers Receiving Home Hospice Care

Park,

Parillon,

Cruz-Oliver

et al. 2024

J Hosp Palliat Nurs

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Black caregivers face distinct challenges in symptom management when providing end-of-life care. Educational interventions may improve caregiver preparedness and competency by providing information on symptom management. This study pilot tested 4 culturally tailored caregiver educational videos about symptom management for Black caregivers receiving home hospice care at a large, urban, nonprofit hospice organization to determine feasibility and acceptability, along with their potential impact on caregiver outcomes. All participants (N = 10) agreed to watch the 4 videos and found the videos to be helpful; 90% (n = 9) shared that they would recommend them to other Black caregivers receiving home hospice care. Total preparedness scores increased from a mean score of 23.5 preintervention to 28.3 postintervention. Caregiver competency scores increased from 13.8 at preintervention to 14.3 at postintervention. Caregivers' comfort and knowledge scores increased from preintervention to postintervention for all 7 end-of-life topics presented in the 4 videos. This study found that it was feasible and acceptable to show Black caregivers culturally tailored educational videos related to issues regarding symptom management. Many found the videos to be helpful and the topics to be relatable. There were trends toward improvement in preparedness and competency. Future studies examining efficacy are needed to determine the impact of this intervention.

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