Hospital passports, patient safety and person‐centred care: A review of documents currently used for people with intellectual disabilities in the<scp>UK</scp>

Northway, Ruth; MSc, RN Stacey Rees; BSc, RN Michelle Davies; BSc, RN Sharon Williams

doi:10.1111/jocn.14065

Cited by 38 publications

(44 citation statements)

References 25 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Tools such as health passports can be helpful in this regard (Northway et al . ; Heifetz & Lunsky ), along with a shared electronic platform whereby information can be communicated and relative roles can be clarified. To reduce the likelihood of rehospitalisation, planning in hospital for discharge and appropriate community‐based supports and follow‐up are required.…”

Section: Discussionmentioning

confidence: 99%

“…When adults with IDD have complex health issues, there needs to be cooperation between providers and shared understanding of issues and clear communication, particularly during transitions. Tools such as health passports can be helpful in this regard (Northway et al 2017;Heifetz & Lunsky 2018), along with a shared electronic platform whereby information can be communicated and relative roles can be clarified. To reduce the likelihood of rehospitalisation, planning in hospital for discharge and appropriate community-based supports and follow-up are required.…”

Section: Stability Of Health Care Costs Over 2 Yearsmentioning

confidence: 99%

See 1 more Smart Citation

High health care costs among adults with intellectual and developmental disabilities: a population‐based study

Lunsky

Oliveira

Wilton³

et al. 2018

J intellect Disabil Res

View full text Add to dashboard Cite

Objective While it is generally accepted that adults with intellectual and developmental disabilities (IDDs) use health services to a greater extent than the general population, there is remarkably little research that focuses on the costs associated with their health care. Using population‐based data from adults with IDD in Ontario, this study aimed to estimate overall health care costs, classify individuals into high and non‐high cost categories and describe differences in the demographics, clinical profiles and health care use patterns between these groups. Design A retrospective cohort study based in Ontario, Canada, was conducted with the use of linked administrative health data. Methods A costing algorithm developed for the general population in Ontario was applied to estimate health care costs of adults with IDD under age 65 for 2009 and 2010. Individuals were categorised into two groups according to whether their total annual health care costs were among the highest decile in the general population. These groups were compared on demographic and clinical variables, and relative mean costs for six types of health care services in the two groups were computed. In addition, we computed the proportion of individuals who remained in the high cost group over 2 years. Results Among adults with IDD, 36% had annual health care expenditures greater than $2610 CAD (top decile of all Ontario adults under 65). These individuals were more likely to be female, to be in the oldest age groups, to live in group homes and to be receiving disability income support than individuals whose expenditures were below the high cost threshold. In addition, they had higher rates of all the physical and mental health conditions studied. Greatest health care expenses were due to hospitalisations, especially psychiatric hospitalisations, continuing care/rehabilitation costs and medication costs. The majority of individuals whose health care costs placed them in the high cost category in 2009 remained in that category a year later. Discussion Adults with IDD are nearly 4 times as likely to incur high annual health care costs than those without IDD. Individuals with IDD and high health care costs have unique health and demographic profiles compared with adults with IDD whose annual health care costs are below the high cost threshold. Attending to their health care needs earlier in their health care trajectory may be an opportunity to improve health and reduce overall health care costs. It is important that we explore how to best meet their needs. Models proposed to meet the needs of adults with high health care costs in the general population may not apply to this unique group.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Stability Of Health Care Costs Over 2 Yearsmentioning

confidence: 99%

High health care costs among adults with intellectual and developmental disabilities: a population‐based study

Lunsky

Oliveira

Wilton³

et al. 2018

J intellect Disabil Res

View full text Add to dashboard Cite

show abstract

“…This was provided to the learning disability student nurses in advance so that they were familiar with the individuals care as would be reflected in practice. Sharing of this information with the paramedic students would then be vital to enhance safety and person centred care (Northway et al, 2017).…”

Section: Educational Designmentioning

confidence: 99%

Reflections on an inter-professional simulation event for paramedic science and learning disability nursing students

Harper

Pavoni

Garvey

et al. 2019

Journal of Interprofessional Education & Practice

View full text Add to dashboard Cite

Format.Two educational activities were developed the first was a simulated learning experience which took place in the simulation suite at St Georges University Hospital. The second educational activity was facilitated in a seminar room and included a case discussion that encouraged problem based learning across small groups of students from the two healthcare disciplines. Target audience.Second year student nurses for people with a learning disability working towards registration on the Nursing and Midwifery Council, part 5 (n= 18) and third year paramedic science students (n= 48) from Kingston University and St George's University of London. Objectives.The most commonly accepted definition of the term learning disability in the UK includes the presence of a "significantly reduced ability to understand new or complex information or to learn new skills; a reduced ability to cope independently; and an impairment that started before adulthood, with a lasting effect on development" (Department of Health, 2001). People with a learning disability are more likely to experience health inequalities compared to the general population (Emerson and Baines, 2010); are more likely to be admitted to hospital and are more likely to be admitted for an ambulatory care sensitive condition (ACSC) (Glover and Evison, 2013). ACSCs are conditions that should not require admission to hospital given effective management in the community. Glover and Evison (2013) conclude that common ACSCs in people with a learning disability include epilepsy, complications of diabetes, constipation and pneumonia; with trends suggesting that emergency admissions for these ACSCs are increasing over recent years.

show abstract

“…Despite increased use across UK, many different versions are currently in place and few evaluations of their impact have been conducted. The thorough review by Northway et al 3 considers common elements, differences between existing passports in terms of content and structure, summarising barriers to uptake and directions for future research.…”

Section: Contextmentioning

confidence: 99%

Hospital passports require standardisation to improve patient safety and person-centred care for those with intellectual disability

Lunsky

2018

Evid Based Nurs

View full text Add to dashboard Cite

Hospital passports, patient safety and person‐centred care: A review of documents currently used for people with intellectual disabilities in theUK

Cited by 38 publications

References 25 publications

High health care costs among adults with intellectual and developmental disabilities: a population‐based study

High health care costs among adults with intellectual and developmental disabilities: a population‐based study

Reflections on an inter-professional simulation event for paramedic science and learning disability nursing students

Hospital passports require standardisation to improve patient safety and person-centred care for those with intellectual disability

Contact Info

Product

Resources

About