Over the past 20 years, considerable healthcare resources have shifted from an inpatient to an outpatient setting. To be in an outpatient setting or at home after allogeneic haematopoietic stem cell transplantation (allo-HSCT) has been shown to be medically safe and beneficial to the patient. In this study we describe patients' experiences of different care settings (hospital or home) and a new life situation during the acute post-transplant phase after HSCT. Semi-structured interviews were conducted with 15 patients (six women and nine men) 29-120 days after HSCT. An inductive qualitative content analysis was performed to analyse the data. The analysis resulted in four categories: To be in a safe place, To have a supportive network, My way of taking control, and My uncertain return to normality. The findings showed that patients undergoing HSCT felt medically safe regardless of the care setting. The importance of a supportive network (i.e. the healthcare team, family and friends) was evident for all patients. Both emotional and problem-focused strategies were used to cope with an uncertain future.Being at home had some positive advantages, including freedom, having the potential for more physical activity, and being with family members. The study highlights some key areas thought to provide more personalised care after HSCT.
K E Y W O R D Sacute post-transplant phase, allogeneic stem cell transplantation, content analysis, home care, hospital care, patient experiences
| INTRODUCTIONAllogeneic haematopoietic stem cell transplantation (HSCT) may offer an option for cure and prolonged survival for many patients suffering from haematological malignancies. Nevertheless, it is one of the most intensive forms of cancer treatment (Gyurkocza, Rezvani, & Storb, 2010).During the past decade, the toxicity and mortality associated with HSCT have been reduced due to several improvements (e.g. the first 3 months after HSCT and mainly affects the skin, the liver, and the gastrointestinal tract. Acute GVHD is significantly associated with increased morbidity and mortality after HSCT (Gyurkocza et al., 2010).When engraftment occurs, patients are discharged from the transplantation unit; during the rest of the acute post-transplant phase (i.e. the first 3 months after HSCT), the patient continues with weekly follow-up (i.e. two to three times per week) in an outpatient setting.During this phase, psychological distress and negative moods due to anxiety and depression are common (Pidala, Anasetti, & Jim, 2009).The risk for GVHD and the symptom burden makes supportive care and surveillance as well as reducing the burden of symptoms important treatment goals for healthcare professionals in the post-transplant period (Grant, Cooke, Bhatia, & Forman, 2005).In HSCT treatment in particular and in cancer treatment in general there has been a major shift over the past decades from care in a hospital setting to treatment and care for selected patients in outpatient settings, including the patient's home. The rationale underlying this shift ...