How are decisions on care services for people with dementia made and experienced? A systematic review and qualitative synthesis of recent empirical findings

Larsson, Annika Taghizadeh; Österholm, Johannes

doi:10.1017/s104161021400132x

Cited by 69 publications

(60 citation statements)

References 39 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Some ways to handle the process of assessing needs and decide on social care services that are legal in other countries may not be legal in Sweden. In a systematic review of research on how decisions on care services for persons with dementia are made and experienced by those involved (Taghizadeh Larsson & Österholm, 2014), only one study was found with a broader focus on the needs assessment process and the performance of care managers (McDonald, 2010). The study was based on document reviews, reading of case files, and semi-structured interviews with care managers, with the aim of studying the impact of the Mental Capacity Act (MCA) in England and Wales on social workers' approaches to decision making in circumstances of risk.…”

Section: Decision-making Dementia and Social Care Servicesmentioning

confidence: 99%

“…Persons with dementia might also be deceived into becoming users of social care services (Elliott, Gessert & PedenMcAlpine, 2009;Forbes et al, 2012;Golden, 2010;Weber & Bailey, 2005). For example they might be told by their relatives that they are going to a hotel when they in fact are being moved to a residential care facility or being told that they are going to work when they are going to attend a day care center (Taghizadeh Larsson & Österholm, 2014). There are also instances when relatives inform the person with dementia that they are being relocated to a residential care facility and push through their decision even though the person with dementia objects (Chang, Schneider & Sessanna, 2011;Chene, 2006;Livingston et al, 2010).…”

Section: Decision-making Dementia and Social Care Servicesmentioning

confidence: 99%

“…Most studies have focused on informal and formal caregivers' experiences and less is known about the experiences of the person with dementia (Taghizadeh Larsson & Österholm, 2014). Exclusion of persons with dementia is not uncommon in the field of dementia studies.…”

Section: Decision-making Dementia and Social Care Servicesmentioning

confidence: 99%

“…As this area is under-researched, both in Sweden and internationally (Taghizadeh Larsson & Österholm, 2014), we do not know if this is the case. This is an additional imperative for investigating whether a decrease in cognitive capacities due to dementia results in difficulties for care managers to conduct their work with respect to integrity and self-determination (Janlöv, 2006), which according to the SocialIn this thesis the concept of citizenship as practice will be used as a frame for the study of the communication taking place in assessment meetings.…”

Section: Introductionmentioning

confidence: 99%

“…Stereotypical assumptions by others about persons with dementia and what they are capable of doing by themselves may result in demeaning positions ascribed to persons with dementia. To be positioned in a negative manner might also affect the person's ability to participate in the assessment meeting and negotiate their care needs and potential care services (Taghizadeh Larsson & Österholm, 2014). There is a risk that relatives or other proxies take over the negotiation about social care services instead of supporting the persons in presenting their own points of view.…”

Section: Introductionmentioning

confidence: 99%

See 4 more Smart Citations

Assessment meetings between care managers and persons living with dementia : Citizenship as practice

Österholm

2016

Linköping Studies in Arts and Sciences

View full text Add to dashboard Cite

Section: Decision-making Dementia and Social Care Servicesmentioning

confidence: 99%

Section: Decision-making Dementia and Social Care Servicesmentioning

confidence: 99%

Section: Decision-making Dementia and Social Care Servicesmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Assessment meetings between care managers and persons living with dementia : Citizenship as practice

Österholm

2016

Linköping Studies in Arts and Sciences

View full text Add to dashboard Cite

Medication use to manage comorbidities for people with dementia: a systematic review

Page

Etherton‐Beer

Seubert

et al. 2018

Pharmacy Practice and Res

View full text Add to dashboard Cite

Aim: People with dementia commonly live with multiple comorbidities. This review aimed to review medications to manage chronic conditions in people who also have a diagnosis of dementia. The secondary aim was to determine whether drug utilisation for other conditions change as a result of dementia diagnosis. Methods: Data source: We included experimental and observational studies where participants with dementia were diagnosed and treated for one or more comorbid conditions that reported health outcomes or drug utilisation. Study selection: MedLine and Embase databases were searched from inception to March 2016 (updated September 2016). Three researchers screened titles, abstracts and full-text articles, then extracted data using a data extraction sheet. Results: Six studies met inclusion criteria with 51 696 participants (mean age 81.1 AE 2.0 years, 78% female). One experimental study compared bisphosphonate use with placebo in people with mid-stage dementia and found reduced risk of non-vertebral fractures (OR = 0.27, 95% CI 0.12-0.61) in the bisphosphonate group. Five observational studies reported drug utilisation for people with dementia to treat comorbidities, namely depression, osteoporosis, diabetes and cardiovascular disease. Drug utilisation was found to be similar for depression, diabetes and cardiovascular disease for people with and without dementia, although bisphosphonate use was significantly reduced. Conclusion: Evidence on medication use for comorbidities in people with dementia is currently limited to drug utilisation patterns and treatment of one comorbidity: osteoporosis. Comorbidities for people with dementia appear to be managed pharmacologically until the late stages of disease without considering time to benefit or that it is a life-limiting condition. 1.13 (0.93-1.38) CHADS = congestive heart failure, hypertension, age >75, diabetic, history of stroke.

show abstract

Medication use to manage comorbidities in people with dementia: a systematic review

Wang

Alan

Page

et al. 2022

Pharmacy Practice and Res

View full text Add to dashboard Cite

Aim To investigate physical health outcomes associated with medications prescribed to manage chronic physical conditions in people living with dementia; and determine whether a dementia diagnosis altered drug utilisation patterns for physical health conditions. Data sources Medline, Embase, Central and Scopus were searched 01/2011 to 12/2020. Study selection Experimental and observational studies, where participants with dementia using medications prescribed by doctors to prevent or treat one or more chronic comorbid physical condition, were compared to no intervention, usual care, or a non‐dementia comparison group. The outcomes of interest were clinically meaningful physical outcomes, and medication utilisation patterns. Results Ten studies met the inclusion criteria. All were of medium to high quality relative to their study design. Mixed findings were reported for ischemic stroke (n = 3), all‐cause mortality (n = 3) and bleeding‐related outcomes (n = 2). This is likely due to the heterogeneity in exposures reported. One study found that people with dementia, receiving antidiabetic management, had a higher rate of severe hypoglycaemia compared to people without dementia. Medication utilisation pattern outcomes included oral anticoagulant use before stroke‐related hospitalisation (n = 1), antithrombotic medication use before stroke‐related hospitalisation (n = 1), cardiovascular medication use for secondary prevention of ischemic heart disease (n = 1), antidepressant medication discontinuation (n = 1), osteoporosis treatment (n = 1), diabetic medication use (n = 2), and antihypertensive medication discontinuation (n = 1). Conclusion This systematic review showed there is currently insufficient evidence to conclude that medication management in people with dementia should differ substantially to people without dementia. Comprehensive and high‐quality evidence is needed to improve confidence that medication prescribing achieves optimum clinical outcomes, quality of life, and benefit‐to‐risk determination in this vulnerable population.

show abstract

How are decisions on care services for people with dementia made and experienced? A systematic review and qualitative synthesis of recent empirical findings

Cited by 69 publications

References 39 publications

Assessment meetings between care managers and persons living with dementia : Citizenship as practice

Assessment meetings between care managers and persons living with dementia : Citizenship as practice

Medication use to manage comorbidities for people with dementia: a systematic review

Medication use to manage comorbidities in people with dementia: a systematic review

Contact Info

Product

Resources

About