How Culture Shapes Informal Caregiver Motivations: A Meta-Ethnographic Review

Zarzycki, Mikołaj; Seddon, Diane; Bei, Eva; Dekel, Rachel; Morrison, Valerie

doi:10.1177/10497323221110356

Cited by 23 publications

(9 citation statements)

References 95 publications

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“…Apart from the limitations mentioned above, the Bahasa Indonesia version of DFPS possesses initial evidence of factorial validity (Azwar, 2013), thus can be used to explore the relationship between filial piety and other variables related to parent-child relationship dynamics. Previous studies have shown the role of reciprocal and authoritarian filial piety in elderly parents' caregiving, such as caregiving motivation or burden (e.g., Pan et al, 2022;Zarzycki et al, 2022). Parental caregiving is a common practice in Indonesian society, where adult children live with their parents or in-laws after marriage.…”

Section: Discussionmentioning

confidence: 99%

Reliability and Validity of the Indonesian Version of the Dual Filial Piety Scale

Sugianto,

Liem,

Sinaga

2024

JPU

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Filial piety (bakti) is a familiar concept within societies in the Chinese diaspora, including multicultural Indonesian society. This concept describes the relationship dynamics between parents and children. It includes obedience and affection that motivate a range of behaviours, including caring for elderly parents. Filial piety becomes an important construct to be studied in its relationship with the psychological process both in children and parents. A conceptual model commonly used to describe filial piety is the Dual Filial Piety Model, which has been operationalized in the Dual Filial Piety Scale (DFPS). This study aims to evaluate the psychometric properties of DFPS which have been translated into Bahasa Indonesia through forward and backward translation. Data was collected from 202 participants recruited using nonprobability sampling. The result suggests that the Indonesian version of DPFS shows adequate reliability and validity. The instrument was found to be consistent with its theoretical model. It can be used for further research on filial piety in Indonesian society.

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Section: Discussionmentioning

confidence: 99%

Reliability and Validity of the Indonesian Version of the Dual Filial Piety Scale

Sugianto,

Liem,

Sinaga

2024

JPU

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“…Similarly, not all OSGs consider the gender, racial, cultural, or faith-based background of participants, which may impact the efficacy of the support [ 74 ]. Motivations for caregiving can be influenced by cultural underpinnings, such as filial piety, familism, and repayment and reciprocity [ 75 ], and support services should be sensitive of specific cultural values [ 75 ]. Recent research on a culturally specific face-to-face OSG helped caregivers manage and rethink their caring processes and values [ 76 ].…”

Section: Discussionmentioning

confidence: 99%

Online Support Groups for Family Caregivers: Scoping Review

Daynes-Kearney,

Gallagher

2023

J Med Internet Res

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Background Caregiving can affect people of all ages and can have significant negative health impacts on family caregivers themselves. Research has shown that social support acts as a buffer against many negative health impacts. A common source of social support is support groups. Although traditionally, these groups were conducted in a face-to-face setting, the advent of the internet, social media applications, and the smartphone have seen online support groups (OSGs) develop as a space where many caregivers seek support. The number of OSGs has increased exponentially, but there is no clear consensus on what factors or characteristics of OSGs contribute to social support development within them or what types of OSGs are available to family caregivers. Objective This study aimed to conduct a scoping review to contribute to the understanding of the types and characteristics of OSGs for family caregivers. Methods Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews guidelines, the CINAHL, PsychInfo, Psych Articles, Social Sciences, Communication Source, Medline, and Web of Science databases were searched for studies (caregiver focused, adults aged 18 years or older, online social support groups, caring for a living person, peer-reviewed journal publications on empirical research). In total, 19 studies were included in the review. The research questions were (1) what type of social support groups are online for adult family caregivers, (2) what the communication mediums and characteristics of these OSGs are, and (3) what psychosocial or other factors make OSGs successful or unsuccessful for participants. Results In response to the first research question, we found that the majority of OSGs took place on public text-based forums and were illness specific. Where demographics were reported, participants were predominately women, White, and working with university-level education. There were a variety of caregiving relationships. For the second research question, the most common communication medium found was text-based communication, with the use of emojis, photos, and GIF (Graphics Interchange Format) files as part of these exchanges. Most frequently, the OSGs were asynchronous with a degree of anonymity, not time-limited by the frequency of contact or duration, and moderated by peer or professional moderators or facilitators. Results for the third research question explored the overarching categories of safe communication and engagement and group management. These described successful OSGs as having a focus on similar others with shared lived experiences communicated in a nonjudgmental space overseen by trained peer or professional facilitators. Conclusions There are several key considerations for OSGs to be successful for family caregivers. A general recommendation for practitioners is to give importance to building active moderation and multifaceted structures of support to meet different levels of caregiver needs and the ability to engage.

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“…Finally, whilst assessments were made on socio-economic status, religion and ethnicity, there was limited data provided through the datasets on culture and attitudes to caregiving. Given these may influence the types of activities, frequency and relationship with care recipients, 44 , 45 future assessment in indicated to consider these potentially important factors.…”

Section: Discussionmentioning

confidence: 99%

Caregiving for older people living with chronic pain: analysis of the English longitudinal study of ageing and health survey for England

Smith

Mansfield

Hanson

et al. 2022

British Journal of Pain

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Background Chronic pain is a disabling condition. Many people with chronic pain seek informal support for everyday activities of daily living (ADL). However, there remains uncertainty on the type of people with chronic pain who access this support, what types of support they need and who provides such support. The purpose of this analysis was to answer these uncertainties. Methods Data from the Health Survey for England (HSE) and English Longitudinal Study of Ageing (ELSA) were accessed. People who reported chronic pain (moderate or above for minimum of 12 months) were identified. From these cohorts, we determined if individuals self-reported receiving informal care. Data on caregiver profiles and caregiving activities were reported through descriptive statistics. Logistic regression analyses were performed to compare health status outcomes between people with pain who received and who did not receive informal care. Results 2178 people with chronic pain from the ELSA cohort and 571 from the HSE cohort were analysed. People who received care were frequently female, older aged with several medical morbidities including musculoskeletal diseases such as arthritis. People with chronic pain received informal care for several diverse tasks. Most frequently these related to instrumental activities of daily living (IADL) such as shopping and housework. They were most frequently provided by partners or their children. Although they reported greater disability and symptoms ( p < 0.001), people who received care did not report differences in health status, loneliness or wellbeing ( p = 0.27; p = 0.46). Conclusions Whilst it may be possible to characterise people living in chronic pain who receive informal care, there is some uncertainty on the impact of informal caregiving on their health and wellbeing. Consideration should now be made on how best to support both care recipients and informal caregivers, to ensure their health and quality of life is promoted whilst living with chronic pain.

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How Culture Shapes Informal Caregiver Motivations: A Meta-Ethnographic Review

Cited by 23 publications

References 95 publications

Reliability and Validity of the Indonesian Version of the Dual Filial Piety Scale

Reliability and Validity of the Indonesian Version of the Dual Filial Piety Scale

Online Support Groups for Family Caregivers: Scoping Review

Caregiving for older people living with chronic pain: analysis of the English longitudinal study of ageing and health survey for England

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