2023
DOI: 10.1186/s12955-023-02091-4
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How do common conditions impact health-related quality of life for children? Providing guidance for validating pediatric preference-based measures

Abstract: Background There is increasing interest in the validation of pediatric preference-based health-related quality of life measurement instruments. It is critical that children with various degrees of health-related quality of life (HRQoL) impact are included in validation studies. To inform patient sample selection for validation studies from a pragmatic perspective, this study explored HRQoL impairments between known-groups and HRQoL changes over time across 27 common chronic child health conditi… Show more

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Cited by 10 publications
(4 citation statements)
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“…This is especially true for future pandemics that should recognize how big the COVID-19 induced burden on lifestyle, mental health and HRQOL worldwide was for children and adolescents, with our study likely representing the least form of the negative, yet clinically meaningful impact in a country with the mildest form of restrictions and a socio-economically stable population. Although we could not find a more pronounced impact of the pandemic on some subgroups at increased risk for compromised lifestyles and HRQOL even during "out of pandemic" times, a special emphasis should be put on children and adolescents with overweight, chronic health conditions or psycho-social problems [52,53]. While we examined the relationship to adherence to WHO guidelines for physical activity and screen time, it may well be that a dose-response relationship exists where more physical activity and less screen time leads to higher HRQOL even if recommendations are not met.…”
Section: Figure 3 |mentioning
confidence: 69%
“…This is especially true for future pandemics that should recognize how big the COVID-19 induced burden on lifestyle, mental health and HRQOL worldwide was for children and adolescents, with our study likely representing the least form of the negative, yet clinically meaningful impact in a country with the mildest form of restrictions and a socio-economically stable population. Although we could not find a more pronounced impact of the pandemic on some subgroups at increased risk for compromised lifestyles and HRQOL even during "out of pandemic" times, a special emphasis should be put on children and adolescents with overweight, chronic health conditions or psycho-social problems [52,53]. While we examined the relationship to adherence to WHO guidelines for physical activity and screen time, it may well be that a dose-response relationship exists where more physical activity and less screen time leads to higher HRQOL even if recommendations are not met.…”
Section: Figure 3 |mentioning
confidence: 69%
“…CHU9D dimension-level HRQoL [ 29 ]. Agreement was compared between CHU9D dimensions and overlapping PedsQL TM item/s representing the corresponding CHU9D dimensions [ 30 ]. The statistical significance level was set at 0.05.…”
Section: Methodsmentioning
confidence: 99%
“…Care should be taken when children are targeted since they often report a variety of modifiable conditions such as anxiety and depression, musculoskeletal problems, and pain, affecting their quality of life. 29 Likewise, gender and age differences should be considered in questionnaires addressing the quality of life in association with mental health and social status. 30 Questionnaires for older adults may benefit from including questions about social support and assistance in the context of caring for aging diseases.…”
Section: Patient Knowledge and Perception Surveysmentioning
confidence: 99%