How do Parents Perceive the Initial Medical Consultation on their Child’s Developmental Disorder?

Abstract

Generally, parents perceive the initial medical consultation on the developmental disorder of their child well. Nevertheless, many parents state that they had unanswered questions after the consultation. The internet is one of the main sources parents use to answer those questions.

Counseling for Prenatal Congenital Heart Disease—Recommendations Based on Empirical Assessment of Counseling Success

“…This supports the AHA guidelines (7) and is further supported by Bratt et al (13) and Carlsson et al (14). The Internet as a secondary information source is commonly used by parents, which highlights the need to provide web sources of high quality, ideally in different languages (14,23).…”

How online ADHD-related information affects Chinese parents’ decisions?

“…As they get information on available treatment options, and the benefits and risks of each treatment option, and clarify which benefits and risks matter most to them, they are more able to state clearly what they believe is their best choice. The majority of those polled using the internet reported that the information they found influenced the health decisions they made [9–11], 77.7% of the parents in our survey still had significant difficulties during decision-making. Parents who searched more, assessed reliability of information more, and rated information according to its quality better, may have a lower decision conflict.…”

Assessment of Needs for Counseling After Prenatal Diagnosis of Congenital Heart Disease – A Multidisciplinary Approach

“…This was the case following antenatal di-agnosis of CHD but also for other specialist fields in Pediatrics, e. g., Neuropediatrics [6,11]. Hotopp et al described that internet was one main source for information parents used to answer open questions after initial consultation by a pediatrician following diagnosis of a developmental disorder in their child [11]. This shows the potential importance of constructing high quality web sites as information source, in our case with information on CHD, therapeutic strategies and long-term issues in an understandable manner for non-health care professionals.…”

“…Other studies could demonstrate that parents are frequently using the internet as secondary information source on the disease and aspects of outcome. This was the case following antenatal di-agnosis of CHD but also for other specialist fields in Pediatrics, e. g., Neuropediatrics [6,11]. Hotopp et al described that internet was one main source for information parents used to answer open questions after initial consultation by a pediatrician following diagnosis of a developmental disorder in their child [11].…”