How do prospective parents who decline prenatal screening account for their decision? A qualitative study

Gottfreðsdóttir, Helga; Björnsdóttir, Kristín; Sandall, Jane

doi:10.1016/j.socscimed.2009.05.004

Cited by 48 publications

(42 citation statements)

References 13 publications

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“…Some questions were not answered by all participants. DS Down syndrome, PND Prenatal diagnosis condition to justify termination of pregnancy.^Similar results have previously been reported by Garcia et al (2008) and Gottfredsdottir et al (2009b). Moreover, many women declining PND did so because they could not consider terminating the pregnancy, a finding in line with Garcia et al (2008).…”

Section: Discussionsupporting

confidence: 68%

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Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?

et al. 2016

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To investigate if actual knowledge of Down syndrome (DS), influences the decision to accept or decline prenatal diagnosis (PND). Secondary aims were to elucidate reasons for accepting or declining PND and investigate differences between the accepting and declining group in perceived information, knowing someone with DS and thoughts about decision-making. A questionnaire was completed by 76 pregnant women who underwent invasive testing and 65 women who declined tests for chromosomal aberrations in Uppsala, Sweden. Apart from one question no significant differences were found in knowledge of DS between women declining or accepting PND for DS. Both groups had varying and in several respects low levels of knowledge about DS and its consequences. Most common reasons to accept PND were 'to ease my worries' and 'to do all possible tests to make sure the baby is healthy'. Corresponding statements declining PND were 'termination of pregnancy is not an option' and 'because invasive tests increase the risk of miscarriage'. More women declining PND knew someone with DS. Knowledge of DS at these levels is not a major factor when women decide to accept or decline PND for DS. Their choice is mostly based on opinions and moral values.

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Section: Discussionsupporting

confidence: 68%

“…Women declining PND more often had someone with DS in their vicinity (Table 3). Does having personal experience with DS infer a more positive attitude toward DS, leading to a decision to decline PND for DS (Santalahti et al 1999;Gottfredsdottir et al 2009b)? Or is there an element of guilt involved in the decision to undergo PND for DS?…”

Section: Discussionmentioning

confidence: 99%

Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?

et al. 2016

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“…Studies in countries where prenatal screening is performed as routine prenatal care show that it is generally expected that women will participate in testing. A comparative study on the offer of prenatal screening showed that choice was mentioned only briefly or not at all in most of the leaflets (Lawson, 2003;Hall et al, 2007;Gottfrejsdó ttir et al, 2009). In these countries, the rates of termination of pregnancy for fetal anomaly following prenatal testing are high (EUROCAT, 2010).…”

Section: Discussionmentioning

confidence: 99%

Parental duties and prenatal screening: Does an offer of prenatal screening lead women to believe that they are morally compelled to test?

2012

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“…[52][53][54] Hunt et al [55] did a secondary analysis of narrative qualitative interview data on parents' experiences of decisions after ending a pregnancy for fetal abnormality. Many of the decisions that people face in the immediate aftermath of a termination for fetal abnormality are upsetting They described their experiences, and often distress, of facing painful decisions consequent upon their decision to terminate the pregnancy and their sense of being unprepared for these decisions.…”

Section: Discussionmentioning

confidence: 99%

Perceptions and experiences of pregnant Chinese women in Hong Kong on prenatal meditation: A qualitative study

Chan¹

2015

JNEP

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Background and Objective: Quantitative research has evidences that prenatal meditation has positive effects on maternal health but lack of qualitative data in this area. This study explored the perceptions and experiences of pregnant Chinese women in Hong Kong on prenatal meditation. Methods: A qualitative study. Data were collected using digitally recorded, face-to-face, semi-structured interviews. Data were analyzed using thematic analysis. Setting: Prenatal meditation program (Eastern Based Meditative Intervention, EBMI) for pregnant Chinese women in Hong Kong who were attending the hospital clinic for routine perinatal care. Participants: 43 participants were chosen from groups of pregnant Chinese women who attended the prenatal meditation program. Results: Six themes were developed during 1st interview when the participants first attended the course, including selfintroduction, changes during pregnancy and how to solve problems, self-reported difference in mental and social condition before and after pregnancy, acceptance of complications arise during pregnancy, beliefs about bio-psycho-socio-spiritual interaction in relation to pregnancy health and child health and reasons why they participate in the intervention. Three themes emerged from the data collected during 2nd interview at 36 weeks, including participants' opinion in practicing EBMI, effects of EBMI on bio-psycho-socio-spiritual aspects and suggestions on improvement of EBMI. Conclusions: This research adds to the overall body of knowledge that prenatal meditation is important to facilitate pregnant women in coping with physical distress, better equipped in crisis management, strengthen social relationship and result in spiritual empowerment. Incorporation of meditation in prenatal care will be a necessity in future.

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How do prospective parents who decline prenatal screening account for their decision? A qualitative study

Cited by 48 publications

References 13 publications

Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?

Why do pregnant women accept or decline prenatal diagnosis for Down syndrome?

Parental duties and prenatal screening: Does an offer of prenatal screening lead women to believe that they are morally compelled to test?

Perceptions and experiences of pregnant Chinese women in Hong Kong on prenatal meditation: A qualitative study

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