How do recorded mental health recovery narratives create connection and improve hopefulness?

Ng, Fiona; Newby, Christopher; Robinson, Paul H.; Llewellyn-Beardsley, Joy; Yeo, Caroline; Roe, James; Rennick-Egglestone, Stefan; Smith, Roger; Booth, Susie; Bailey, Sylvia; Castelein, Stynke; Callard, Felicity; Arbour, Simone; Slade, Mike

doi:10.1080/09638237.2021.2022627

Cited by 9 publications

(12 citation statements)

References 26 publications

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“…It was estimated that 60% of these workshops were necessary for the development of NEON as opposed to other research-related activities by examining the workshop agendas. The LEAP members had personal experiences of mental health problems and advised on the ethical principles of curating narratives, categorizing narrative content warnings, general issues raised by the research team, and the types of narratives to be included/excluded from the NEON Collection ( 28 ). As with all in-person meetings/workshops run by the NEON study all participants were paid for their attendance.…”

Section: Methodsmentioning

confidence: 99%

“…A systematic review ( 23 ) and qualitative validation study ( 24 ) defined mental health recovery narratives as first-person lived experience accounts of recovery from mental health problems, which include elements of adversity or struggle and of self-defined strengths, successes or survival. The impact of recovery narratives was then investigated in a systematic review ( 25 ), qualitative interviews ( 26 ), and experimental studies ( 27 , 28 ). Approaches to curation of recorded recovery narrative collections were developed through systematic review ( 29 ), stakeholder consultation ( 30 ) and best practice guidelines development ( 31 ).…”

Section: Introductionmentioning

confidence: 99%

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Development and delivery cost of digital health technologies for mental health: Application to the Narrative Experiences Online Intervention

et al. 2022

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BackgroundThe increasing development and use of digital health interventions requires good quality costing information to inform development and commissioning choices about resource allocation decisions. The Narrative Experiences Online (NEON) Intervention is a web-application that delivers recorded mental health recovery narratives to its users. Two randomized controlled trials are testing the NEON Intervention in people with experience of psychosis (NEON) and people experiencing non-psychosis mental health problems (NEON-O).AimThis study describes and estimates the cost components and total cost of developing and delivering the NEON Intervention.Materials and methodsTotal costs for the NEON Trial (739 participants) and NEON-O Trial (1,024 participants) were estimated by: identifying resource use categories involved in intervention development and delivery; accurate measurement or estimation of resource use; and a valuation of resource use to generate overall costs, using relevant unit costs. Resource use categories were identified through consultation with literature, costing reporting standards and iterative consultation with health researchers involved in NEON Intervention development and delivery. Sensitivity analysis was used to test assumptions made.ResultsThe total cost of developing the NEON Intervention was £182,851. The largest cost components were software development (27%); Lived Experience Advisory Panel workshops (23%); coding the narratives (9%); and researchers' time to source narratives (9%). The total cost of NEON Intervention delivery during the NEON Trial was £118,663 (£349 per NEON Intervention user). In the NEON-O Trial, the total delivery cost of the NEON Intervention was £123,444 (£241 per NEON Intervention user). The largest cost components include updating the narrative collection (50%); advertising (19%); administration (14%); and software maintenance (11%). Uncertainty in the cost of administration had the largest effect on delivery cost estimates.ConclusionOur work shows that developing and delivering a digital health intervention requires expertise and time commitment from a range of personnel. Teams developing digital narrative interventions need to allocate substantial resources to curating narrative collections.Implications for practiceThis study identifies the development and delivery resource use categories of a digital health intervention to promote the consistent reporting of costs and informs future decision-making about the costs of delivering the NEON Intervention at scale.Trial registrationNEON Trial: ISRCTN11152837, registered 13 August 2018, http://www.isrctn.com/ISRCTN11152837. NEON-O Trial: ISRCTN63197153, registered 9 January 2020, http://www.isrctn.com/ISRCTN63197153.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Development and delivery cost of digital health technologies for mental health: Application to the Narrative Experiences Online Intervention

et al. 2022

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“…Recipient characteristics and narrative characteristics moderate the impact of a narrative on a sense of connection [28]. For example, people in ethnic minority groups felt a lower level of connection when a RRN collection marginalized these groups [41]. Diverse narratives are needed to ensure that recipients from different backgrounds and with different identities have the greatest opportunity to feel connected with both a narrative and a narrator, as both types of connection are known to maximize the positive effects of RRNs [39].…”

Section: Diversity and Inclusivitymentioning

confidence: 99%

Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice (Preprint)

Kotera¹,

Rennick-Egglestone²,

Ng³

et al. 2022

Preprint

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UNSTRUCTURED Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, including struggles and successes over time. Helpful impacts of recorded mental health recovery narratives include connectedness with the narrative and validation of experiences. Possible harms include feeling disconnected and excluded from others. Diverse narrative collections from many types of narrators and describing multiple ways to recover are important, to maximize the opportunity for service users to benefit through connection, and to minimize the likelihood of harm. Mental health clinicians need to know whether narrative collections are sufficiently diverse to recommend to service users. However, no method exists for assessing diversity and inclusivity of existing or new narrative collections. We argue assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice. This is important but methodologically and ethically complex. In this viewpoint article, we evaluated one diversity and two inclusivity assessment methods. The diversity assessment method used Simpson’s Diversity Index. The two inclusivity assessment methods were based on comparator demographic rates and arbitrary thresholds. These methods were applied to four narrative collections as a case study. Refinement needs to be made regarding a narrative assessment tool, practicality and cultural adaptation.

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“…Recipient characteristics and narrative characteristics moderate the impact of a narrative on a sense of connection [ 28 ]. For example, people in ethnic minority groups felt a lower level of connection when an RRN collection marginalized these groups [ 40 ]. Diverse narratives are needed to ensure that recipients from different backgrounds and with different identities have the greatest opportunity to feel connected with both a narrative and a narrator, as both types of connection are known to maximize the positive effects of RRNs [ 38 ].…”

Section: Introductionmentioning

confidence: 99%

“…A tool to characterize individual RRNs has been developed. The Inventory of Characteristics of Recovery Stories (INCRESE) is a standardized 77-item instrument characterizing narrative mode, narrator and narrative characteristics, content warnings, turning points, and narrative content [ 45 ]. Although INCRESE is used to characterize individual RRNs, no method currently exists to assess the diversity and inclusivity of an RRN collection.…”

Section: Introductionmentioning

confidence: 99%

Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice

Kotera¹,

Rennick-Egglestone²,

Ng³

et al. 2023

JMIR Ment Health

Self Cite

View full text Add to dashboard Cite

Demand for digital health interventions is increasing in many countries. The use of recorded mental health recovery narratives in digital health interventions is becoming more widespread in clinical practice. Mental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, including struggles and successes over time. Helpful impacts of recorded mental health recovery narratives include connectedness with the narrative and validation of experiences. Possible harms include feeling disconnected and excluded from others. Diverse narrative collections from many types of narrators and describing multiple ways to recover are important to maximize the opportunity for service users to benefit through connection and to minimize the likelihood of harm. Mental health clinicians need to know whether narrative collections are sufficiently diverse to recommend to service users. However, no method exists for assessing the diversity and inclusivity of existing or new narrative collections. We argue that assessing diversity and inclusivity is the next frontier in mental health recovery narrative research and practice. This is important, but methodologically and ethically complex. In this viewpoint, we propose and evaluate one diversity and two inclusivity assessment methods. The diversity assessment method involves use of the Simpson Diversity Index. The two inclusivity assessment methods are based on comparator demographic rates and arbitrary thresholds, respectively. These methods were applied to four narrative collections as a case study. Refinements are needed regarding a narrative assessment tool in terms of its practicality and cultural adaptation.

show abstract

How do recorded mental health recovery narratives create connection and improve hopefulness?

Cited by 9 publications

References 26 publications

Development and delivery cost of digital health technologies for mental health: Application to the Narrative Experiences Online Intervention

Development and delivery cost of digital health technologies for mental health: Application to the Narrative Experiences Online Intervention

Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice (Preprint)

Assessing Diversity and Inclusivity is the Next Frontier in Mental Health Recovery Narrative Research and Practice

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