How does perceived fall risk influence decisions about whether to undertake activities in people with Parkinson’s disease and their care partners? A qualitative study

Huang, Yingli; Canning, Colleen G.; Song, Jooeun; Clemson, Lindy; Allen, Natalie E.

doi:10.1080/09638288.2021.1955983

Cited by 6 publications

(14 citation statements)

References 34 publications

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“…[54][55][56][57] Individuals with PD may constantly be weighing the risks and benefits of daily activities to lead as much of a normal, socially active life as possible. 58 Addressing catastrophizing and appropriate coping strategies for disease progression and FOF may help mitigate the development of disproportionate or maladaptive FFAB and prevent the downstream consequences of a sedentary lifestyle. Furthermore, interventions to assist individuals with PD in determining what level of risk is acceptable to balance physiological and perceived fall risk with quality of life may also mitigate catastrophizing and excessive FFAB.…”

Section: Discussionmentioning

confidence: 99%

“…Furthermore, interventions to assist individuals with PD in determining what level of risk is acceptable to balance physiological and perceived fall risk with quality of life may also mitigate catastrophizing and excessive FFAB. 58,59 As fall risk is multifactorial, intervention approaches should also be multifactorial and cover intrinsic and extrinsic fall risk factors. Physical activity or exercise, both individually and in the community and community fall prevention programs, has also demonstrated efficacy in reducing fall risk and preventing falls and may be underutilized by those with high FFAB.…”

Section: Discussionmentioning

confidence: 99%

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Psychological Factors Associated With Fear of Falling Avoidance Behavior in Parkinson’s Disease: The Role of Depression, Anxiety, and Catastrophizing

Rider

Longhurst

Lekhak

et al. 2022

J Geriatr Psychiatry Neurol

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Purpose The purpose of this study was to examine the relationship between psychological factors (depression, anxiety, and catastrophizing) and fear of falling avoidance behavior (FFAB) among individuals with Parkinson’s disease (PD). Methods A secondary analysis of cross-sectional data from 59 individuals with PD using hierarchical multiple regression. Results Disease severity (Movement Disorder Society - Unified PD Rating Scale) and catastrophizing (Consequences of Falling Questionnaire (CoF)) explained approximately 48.2% of the variance in the FFAB Questionnaire scores ( P < .001). Catastrophizing was the only significant psychological variable ( P < .001). The damage to identity subscale of the CoF was significant in the final model ( P < .001). Conclusions Catastrophizing about the consequences of falls explained the largest portion of variability in FFAB after controlling for disease severity. Catastrophizing about the immediate consequences of falling may play a prominent role in FFAB and may be a potential treatment target for mitigating FFAB.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Psychological Factors Associated With Fear of Falling Avoidance Behavior in Parkinson’s Disease: The Role of Depression, Anxiety, and Catastrophizing

Rider

Longhurst

Lekhak

et al. 2022

J Geriatr Psychiatry Neurol

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“…Falls efficacy is associated with depression, balance impairment, and use of assistive devices 109 . The degree to which people perceive falls risk can influence participation in falls prevention activities 110 . Falls‐related activity avoidance is a consequence of concern about falling that can lead to decreased overall activity and increased falls risk 90 .…”

Section: Resultsmentioning

confidence: 99%

“… 109 The degree to which people perceive falls risk can influence participation in falls prevention activities. 110 Falls‐related activity avoidance is a consequence of concern about falling that can lead to decreased overall activity and increased falls risk. 90 Strategies for the management of fear of falling and other factors that affect participation in exercise and other fall prevention activities require further study.…”

Section: Resultsmentioning

confidence: 99%

Prevention of Falls in Parkinson's Disease: Guidelines and Gaps

Camicioli

Morris

Pieruccini‐Faria

et al. 2023

Movement Disord Clin Pract

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BackgroundPeople living with Parkinson's disease (PD) have a high risk for falls.ObjectiveTo examine gaps in falls prevention targeting people with PD as part of the Task Force on Global Guidelines for Falls in Older Adults.MethodsA Delphi consensus process was used to identify specific recommendations for falls in PD. The current narrative review was conducted as educational background with a view to identifying gaps in fall prevention.ResultsA recent Cochrane review recommended exercises and structured physical activities for PD; however, the types of exercises and activities to recommend and PD subgroups likely to benefit require further consideration. Freezing of gait, reduced gait speed, and a prior history of falls are risk factors for falls in PD and should be incorporated in assessments to identify fall risk and target interventions. Multimodal and multi‐domain fall prevention interventions may be beneficial. With advanced or complex PD, balance and strength training should be administered under supervision. Medications, particularly cholinesterase inhibitors, show promise for falls prevention. Identifying how to engage people with PD, their families, and health professionals in falls education and implementation remains a challenge. Barriers to the prevention of falls occur at individual, environmental, policy, and health system levels.ConclusionEffective mitigation of fall risk requires specific targeting and strategies to reduce this debilitating and common problem in PD. While exercise is recommended, the types and modalities of exercise and how to combine them as interventions for different PD subgroups (cognitive impairment, freezing, advanced disease) need further study.This article is protected by copyright. All rights reserved.

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“…Perception bias has been noted that both underperceived and overperceived the risk of falls can be detrimental ( Aycock et al, 2019 ). People who overperceived their risk of falling often tend to hold excessive fear and consequently diminish their physical activities ( Huang et al, 2022 ), resulting in adverse outcomes including muscle atrophy, sarcopenia, and frailty, which ultimately impede long-term fall prevention efforts ( Tymkew et al, 2023 ). Conversely, individuals who hold insufficient perception toward fall risk would neglect established fall-prevention guidelines and are prone to engage in high-risk behaviors, thereby increasing their risk of falls ultimately ( Yardley et al, 2006 ).…”

Section: Introductionmentioning

confidence: 99%

Development and validation of fall risk perception scale for patients with Parkinson’s disease

Yang,

Yao,

Guo

et al. 2024

Front. Psychol.

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BackgroundPerception assessment plays an important role in fall risk awareness and fall prevention. Parkinson’s disease patients with motor dysfunction are at high risk of falling. Currently, no instrument has been explicitly crafted to assess the risk perception of fall in PD patients. The purpose of this study was to develop and validate the fall risk perception scale for PD patients (FRPS-PD), providing healthcare professionals with a effective assessment tool to enhance proactive fall prevention initiatives.MethodBased on the Proactive Health theory and Risk Perception Attitude (RPA) Framework, the questionnaire was developed through literature review, semi-structure interview, expert consultation and pilot testing. A total of 428 patients with PD from Grade A tertiary hospitals in Shanghai, Hangzhou and Anhui from January 2023 to July 2023 were recruited. The items and dimensions in the scale were explored and confirmed using item-analysis, content validity, exploratory factor analytical (EFA), confirmatory factor analytical (CFA), internal consistency and test–retest reliability analysis.ResultsA total of 16-items, 2-dimensions structure were identified, including 12 items of risk perception and 4 items of self-efficacy dimension. The cumulative variance of EFA model was 73.669%, further CFA showed that acceptable model fit (χ2/df = 2.226, RMSEA = 0.074, NF = 0.928, TLI = 0.951, CFI = 0.959, GFI = 0.887 and AGFI = 0.848). The content validity index was 0.956. The reliability of the scale was 0.952 using Cronbach’s α coefficient method. The test–retest reliability was 0.944.ConclusionThe FRPS-PD is a valid and reliable measurement for evaluating fall risk perception level for individuals with PD in mainland China.

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How does perceived fall risk influence decisions about whether to undertake activities in people with Parkinson’s disease and their care partners? A qualitative study

Cited by 6 publications

References 34 publications

Psychological Factors Associated With Fear of Falling Avoidance Behavior in Parkinson’s Disease: The Role of Depression, Anxiety, and Catastrophizing

Psychological Factors Associated With Fear of Falling Avoidance Behavior in Parkinson’s Disease: The Role of Depression, Anxiety, and Catastrophizing

Prevention of Falls in Parkinson's Disease: Guidelines and Gaps

Development and validation of fall risk perception scale for patients with Parkinson’s disease

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