How’s Your Health at Home: Frail Homebound Patients Reported Health Experience and Outcomes

McGregor, Margaret J.; Slater, Jay; Sloan, John P.; McGrail, Kimberlyn; Martin-Matthews, Anne; Berg, Shannon; Plecash, Alyson; Sloss, Leila; Trimble, Johanna; Murphy, Janice M.

doi:10.1017/s0714980817000186

Cited by 8 publications

(19 citation statements)

References 41 publications

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“…[41][42][43] One article reported findings from a mixedmethods study. 44 Only 3 of the eligible articles in this review explicitly focused on primary care: these included a commentary, 37 a literature review, 30 and a mixed-methods study. 44 Among the 21 articles, 4 mentioned primary care 4,8,27,42 and 6 reported findings that were applicable to primary care settings.…”

Section: --Synthesis--mentioning

confidence: 99%

“…44 Only 3 of the eligible articles in this review explicitly focused on primary care: these included a commentary, 37 a literature review, 30 and a mixed-methods study. 44 Among the 21 articles, 4 mentioned primary care 4,8,27,42 and 6 reported findings that were applicable to primary care settings. 3,28,29,32,34,39 Although assessing the quality of the studies is outside the scope of this review framework, 24 it is important to note that most of the data in this review are from commentaries and survey data.…”

Section: --Synthesis--mentioning

confidence: 99%

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A rapid scoping review of end-of-life conversations with frail older adults in Canada

et al. 2021

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ObjectiveTo explore what is known about end-of-life (EOL) conversations with frail older adults across all settings including primary care in Canada, and to understand the barriers to, and recommendations for, EOL conversations. Data sourcesComprehensive searches were conducted in CINAHL (EBSCO), Embase (Ovid), MEDLINE (Ovid), AgeLine (EBSCO), Sociological Abstracts (ProQuest), and Applied Social Sciences Index and Abstracts (ProQuest).Searches used text words and subject headings (eg, MeSH, Emtree) related to 3 concepts: frailty, Canada, and EOL conversations.Study selection Twenty-one English-language articles were selected (ie, 4 reviews, 10 commentaries, 3 quantitative studies, 3 qualitative studies, 1 mixedmethods study) that included information about EOL conversations with frail older adults in the Canadian health care context.

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Section: --Synthesis--mentioning

confidence: 99%

Section: --Synthesis--mentioning

confidence: 99%

A rapid scoping review of end-of-life conversations with frail older adults in Canada

et al. 2021

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“…The findings showed that participants, who were more satisfied with this aspect of usability, also rated their health higher. Social contact and possibility to engage in social activities is related to higher self-rated health in several previous studies [ 35 , 36 , 37 ]. Some of the participants in this study are considered as frail elderly and might have limited possibility to engage in social activities outside the home, which makes the own home and its usability more important.…”

Section: Discussionmentioning

confidence: 91%

Health-Related Quality of Life among People Applying for Housing Adaptations: Associated Factors

Boström

Chiatti

Thordardottir

et al. 2018

IJERPH

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Housing adaptations (HA) clients are a heterogeneous group of people with disabilities experiencing restricted performance and participation in everyday life. While health-related quality of life is a common and relevant outcome in health care research, associated factors among HA clients are largely unknown. Thus, the aim of this study was to investigate which factors are associated with health-related quality of life among HA clients in Sweden. The study has a cross-sectional design, using baseline data collected among 224 participants in three municipalities in Sweden. The main outcome was health-related quality of life measured by the EQ-5D. Factors investigated as potentially associated were age, sex, living conditions, cognitive impairment, usability of the home, activities of daily living (ADL) dependence, participation, and fear of falling. The associations were explored using multiple linear regression analysis. Younger age and higher dependence in ADL were associated with lower scores on the EQ-5D. The social aspect of usability in the home had a positive association with the EQ VAS. Results suggest that certain groups of HA clients might be at risk for low health-related quality of life. Knowledge of their characteristics can potentially improve development and implementation of tailored interventions aiming at increasing their health-related quality of life.

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“…Thus, a successful SAINT must aim to serve, not just survey. Our SAINT was developed for people aged two and older and includes tools that support general problem-solving and decision-making, as well as special versions for homebound patients and those in the hospital [ 26 , 27 ]. Variations of the SAINT have also been developed to comply with different types of regulatory requirements, including those of the Center for Medicare Services and state Medicaid authorities, as detailed at https://howsyourhealth.org/static/HYHModifications.pdf .…”

Section: Characteristics Of An Effective Saintmentioning

confidence: 99%

Standardized assessment, information, and networking technologies (SAINTs): lessons from three decades of development and testing

Wasson

2020

Qual Life Res

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Purpose To rectify the significant mismatch observed between what matters to patients and what clinicians know, our research group developed a standardized assessment, information, and networking technology (SAINT). Methods Controlled trials and field tests involving more than 230,000 adults identified characteristics of a successful SAINT—www.HowsYourHealth.org—for primary care and community settings. Results Evidence supports SAINT effectiveness when the SAINT has a simple design that provides a service to patients and explicitly engages them in an information and communication network with their clinicians. This service orientation requires that an effective SAINT deliver easily interpretable patient reports that immediately guide provider actions. For example, our SAINT tracks patient-reported confidence that they can self-manage health problems, and providers can immediately act on patients’ verbatim descriptions of what they want or need to become more health confident. This information also supports current and future resource planning, and thereby fulfills another characteristic of a successful SAINT: contributing to health care reliability. Lastly, SAINTs must manage or evade the “C-monsters,” powerful obstacles to implementation that largely revolve around control and commercialism. Responses from more than 10,000 adult patients with diabetes illustrate how a successful SAINT offers a standard and expedient guide to managing each patient’s concerns and adjusting health services to better meet the needs of any large patient population. Conclusion Technologies that evolve to include the characteristics described here will deliver more effective tools for patients, providers, payers, and policymakers and give patients control over sharing their data with those who need it in real time.

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How’s Your Health at Home: Frail Homebound Patients Reported Health Experience and Outcomes

Cited by 8 publications

References 41 publications

A rapid scoping review of end-of-life conversations with frail older adults in Canada

A rapid scoping review of end-of-life conversations with frail older adults in Canada

Health-Related Quality of Life among People Applying for Housing Adaptations: Associated Factors

Standardized assessment, information, and networking technologies (SAINTs): lessons from three decades of development and testing

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