How sharp can a screening tool be? A qualitative study of patients’ experience of completing a bowel cancer screening questionnaire

Pugh, Wendy; Porter, Alison

doi:10.1111/j.1369-7625.2010.00629.x

Cited by 7 publications

(7 citation statements)

References 25 publications

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“…We have adopted a mixed approach to the development of the DELAY questionnaire, a tool to assess the drivers of and barriers to patient consultation at the onset of RA. This study, like others, has demonstrated that people with RA, relatives and carers have a valuable role to play in the development of research instruments . We have described aspects of face and content validity and test–retest reliability and how these were assessed through qualitative methods and statistical testing.…”

Section: Discussionmentioning

confidence: 75%

The development and initial validation of a questionnaire to measure help‐seeking behaviour in patients with new onset rheumatoid arthritis

Stack

Mallen

Deighton³

et al. 2014

Health Expectations

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Keywords: delay in accessing health services, face validity, patient involvement, questionnaire development, rheumatoid arthritis, test-retest reliability 1 Syndicate members are listed in Appendix 1. AbstractBackground Early treatment for rheumatoid arthritis (RA) is vital. However, people often delay in seeking help at symptom onset. An assessment of the reasons behind patient delay is necessary to develop interventions to promote rapid consultation.

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Section: Discussionmentioning

confidence: 75%

The development and initial validation of a questionnaire to measure help‐seeking behaviour in patients with new onset rheumatoid arthritis

Stack

Mallen

Deighton³

et al. 2014

Health Expectations

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“…Patients' perspectives and experience of using questionnaires have been addressed in different ways. Some papers have used patients' perspectives in order to assess and validate specific questionnaires in different hospital settings and amongst different cancer populations [27,28], while other studies have examined the effect of using questionnaires and assessment systems on cancer patients' well-being and experiences of communicating with clinicians [29][30][31][32].…”

Section: Introductionmentioning

confidence: 99%

Completing a Questionnaire at Home Prior to Needs Assessment in General Practice: A Qualitative Study of Cancer Patients’ Experience

Thayssen

Hansen

Søndergaard

et al. 2015

Patient

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The results demonstrate that completing a questionnaire seems to stimulate patients' ability to reflect on their situation, clarify the importance of different problems to their everyday lives, and articulate these considerations to their GPs. Furthermore, we have shown that a questionnaire has the ability to interact with the patient and instigate a process of awareness. It is important to acknowledge this process of interaction between patient and questionnaire as an important part of understanding how and why questionnaires may support the patient when completing a questionnaire prior to a clinical encounter.

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“…[19][20][21] Different studies emphasize on the need for the development of function-based HL tools, which measure actual ability to apply HL skills. 17,18,22,23 Functional HL has been defined as a term to describe basic HL skills that are sufficient for individuals to obtain relevant health information and to be able to apply that knowledge to a limited range of activities. 24 Functional-based measurement tools put patients in real-world situations and assess how they would act and perform in real-life situations, rather than what they perceive/imagine being capable of acting, which is mainly utilized in the existing self-rated tools.…”

Section: Introductionmentioning

confidence: 99%

<p>Development and Pretesting of a New Functional-Based Health Literacy Measurement Tool for Chronic Obstructive Pulmonary Disease (COPD) and Asthma Management</p>

Poureslami

Shum

Kopeć

et al. 2020

COPD

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Background: Health literacy (HL) is a person's ability to practically apply a wide range of cognitive and non-cognitive skills in health-related decisions. HL includes five domains: navigate/ access, understand, communicate, evaluate, and use of health information and services. Currently, no tool accurately captures and measures HL in adult patients with asthma and COPD, while utilizing all 5-HL domains. Objective: Develop a comprehensive functional-based measurement tool for adult asthma and/or COPD patients, while assessing HL on routine actions required to manage their chronic respiratory condition(s). Methods: We developed our HL tool based on a conceptualization of the link between HL and asthma and COPD management, during needs assessment stage including; a systematic review, which was followed by patient-oriented focus groups, and key-informant and respirologist interviews. Preliminary face and content validation were obtained by patients' and health professionals' input prior to the pretesting stage. The needs assessment information enabled us to develop passages in scenario-format and corresponding items to assess HL core domains, in addition to numeracy skills, across nine self-management topics: peak flow meters, prednisone use, pulmonary rehabilitation, action plans, flu shots, inhaler technique, lifestyle (nutrition and exercise), trigger control, and map navigation. The tool was pretested with asthma and COPD patients to assess its relevance, clarity, and difficulty. Results: Our systematic review identified the deficiencies of existing HL tools that assessed the HL skills of asthma and COPD patients. The patient-oriented focus groups (n=93) enabled us to identify self-management topics and develop items for our proposed HL tool, which were enriched by input from 45 key informants (eg, policy makers, clinicians, etc.) and 17 respiratory physicians. Preliminary pretesting with a new cohort of participants (36 asthma and COPD patients and 39 key informants) aided in the refinement and finalized our tool. The modified tool included passages and corresponding items related to asthma and COPD management was pretested with 75 asthma/COPD patients who completed the questionnaire and provided their feedback on the clarity, relevance, and difficulty of the tool. The main barrier to self-management pertained to "communication" skills. The flu shot was the most relevant topic (91.2%), while map navigation was the least relevant (63.9%). Action plans were the most difficult topic, where only 55% knew when to utilize their action plans. Numeracy items challenged COPD patients the most. Conclusion: We summarized findings from the development and preliminary testing stages of a new asthma/COPD HL tool. This tool will now be validated with a new cohort of patients.

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How sharp can a screening tool be? A qualitative study of patients’ experience of completing a bowel cancer screening questionnaire

Cited by 7 publications

References 25 publications

The development and initial validation of a questionnaire to measure help‐seeking behaviour in patients with new onset rheumatoid arthritis

The development and initial validation of a questionnaire to measure help‐seeking behaviour in patients with new onset rheumatoid arthritis

Completing a Questionnaire at Home Prior to Needs Assessment in General Practice: A Qualitative Study of Cancer Patients’ Experience

<p>Development and Pretesting of a New Functional-Based Health Literacy Measurement Tool for Chronic Obstructive Pulmonary Disease (COPD) and Asthma Management</p>

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