2021
DOI: 10.1007/s10072-021-05396-8
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How to manage with telemedicine people with neuromuscular diseases?

Abstract: Introduction COVID-19 pandemic radically transformed our daily clinical practice, raising the need not to lose close contact with patients without being able to see them face-to-face. These issues are even more felt and evident in fragile patients, as those affected by neuromuscular disease. An important help came from new digital technologies that allow clinicians to remotely monitor health status and any deterioration of chronically ill patients. Methods … Show more

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Cited by 29 publications
(20 citation statements)
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“…Furthermore, these assessments could be carried out in the patients' homes. This fits in perfectly with telemonitoring [82] and the use of real-world data [83]. This would therefore allow the development (by increasing the number of potential users, companies may be more inclined to invest in such solutions) and wider use of these solutions.…”
Section: Discussionsupporting
confidence: 58%
“…Furthermore, these assessments could be carried out in the patients' homes. This fits in perfectly with telemonitoring [82] and the use of real-world data [83]. This would therefore allow the development (by increasing the number of potential users, companies may be more inclined to invest in such solutions) and wider use of these solutions.…”
Section: Discussionsupporting
confidence: 58%
“…The establishment of stroke networks using teleneurology provides early access for patients requiring thrombolysis [ 7 ]. Other explored methods of teleneurology are the utilization of self-administered questionnaires for the cognitive screening test for patients with dementia [ 23 ], evaluation of disability progression on patients with amyotrophic lateral sclerosis [ 22 ], and assessment of limitations in activities of daily living for patients with neuromuscular disease [ 20 , 21 ]. In patients with multiple sclerosis, their disability status is measured by incorporating data from wearable biosensors measuring average steps per day and applications such as Google Maps ™ that uses satellite imagery to measure the maximum walking distance [ 18 , 19 ].…”
Section: Introductionmentioning
confidence: 99%
“…Even in areas where there are neurologists, teleconsultations are advocated over in-person consultations for non-emergency cases to minimize unnecessary COVID-19 risks [ 2 , 3 ]. The COVID-19 pandemic prompted changes in the healthcare system to ensure continuity of care for patients with chronic neurological diseases such as neuromuscular [ 4 – 6 ], neurodegenerative [ 7 ], and neurovascular conditions [ 8 ]. Teleneurology may detect early symptoms and signs of disease worsening, prevent life-threatening complications, and notice changes in the clinical condition that would require further evaluation in a hospital setting [ 5 ], saving patients from unnecessary possible COVID-19 exposure in the clinics and hospitals.…”
Section: Introductionmentioning
confidence: 99%