How to Peddle Hope: An Analysis of YouTube Patient Testimonials of Unproven Stem Cell Treatments

Hawke, Bethany A.; Przybylo, Alexandra R.; Paciulli, Danielle; Caulfield, Timothy; Zarzeczny, Amy; Master, Zubin

doi:10.1016/j.stemcr.2019.05.009

Cited by 40 publications

(33 citation statements)

References 9 publications

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“…Questions persist about the degree to which this testing reifies scientifically inaccurate ideas of "race" and biological difference (Caulfield 2018;Phelan et al 2014;TallBear 2014;Roth and Ivemark 2013), and this study demonstrates that some individuals are intrigued and motivated to perform DNA testing and to discuss their results with the online public through YouTube. While YouTube videos certainly play some role in influencing audiences (Hawke et al 2019), it is worthwhile to consider, at least in this case, whether, the discourse plays a greater role in shaping viewers' perspectives towards YouTube and the stars of YouTube videos or the biotechnology itself. Regardless, the idea of a personal DNA self is worthy of exploring and discussing for a great number of individualsand YouTube is a platform where this can and does take place.…”

Section: Biotechnology Hypementioning

confidence: 99%

The consumer representation of DNA ancestry testing on YouTube

Marcon

Rachul

Caulfield

2020

New Genetics and Society

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The growth of consumer DNA ancestry testing has resulted in questions and critiques being raised in social and research contexts. This study examined individuals discussing their ancestry DNA testing results on YouTube by searching for the two most popular testing companies (23andMe; Ancestry) and the phrase "DNA results." The finalized dataset consisted of 117 videos, on which directed content analysis was performed. In the videos, individuals used results to clarify, confirm, question, and re-evaluate their previously held conceptions of racial/ethnic identities. Reactions were more positive than negative (88.1% vs. 8.1%), and results more commonly reaffirmed (77.8%) than re-conceptualized (40.0%) one's racial/ethnic identity. Ancestry testing and personal social media accounts were commonly promoted, demonstrating biotechnological hype where promotion abounds and critiques are scarce. Questions persist around the impact of ancestry DNA testing in reifying a scientifically inaccurate conception of race and what impact YouTube videos might have on audiences.

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Section: Biotechnology Hypementioning

confidence: 99%

The consumer representation of DNA ancestry testing on YouTube

Marcon

Rachul

Caulfield

2020

New Genetics and Society

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“…Use of autologous or allogeneic cells and tissues needs careful consideration of informed consent and property rights 20. Clinicians may also face patients who have been exposed to overly optimistic claims in press releases,26 media reports,27 or patient testimonials 28…”

Section: Challenges To Translationmentioning

confidence: 99%

Advances in regenerative medicine for otolaryngology/head and neck surgery

McPhail

Janus

Lott

2020

BMJ

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Head and neck structures govern the vital functions of breathing and swallowing. Additionally, these structures facilitate our sense of self through vocal communication, hearing, facial animation, and physical appearance. Loss of these functions can lead to loss of life or greatly affect quality of life. Regenerative medicine is a rapidly developing field that aims to repair or replace damaged cells, tissues, and organs. Although the field is largely in its nascence, regenerative medicine holds promise for improving on conventional treatments for head and neck disorders or providing therapies where no current standard exists. This review presents milestones in the research of regenerative medicine in head and neck surgery.

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“…Further, some CCEs have created a" big tent" approach to their accreditation standards and processes, resulting in all types of understanding of the term chiropractic [21,22]. This approach can make it difficult to define the practice and scope of chiropractic [34]. It has been argued that some CCEs have failed to wholeheartedly embrace an evidence-based approach to education and practice [35][36][37].…”

Section: The Role Of Accrediting Agenciesmentioning

confidence: 99%

Misinformation, chiropractic, and the COVID-19 pandemic

Axén

Bergström

Bronson³

et al. 2020

Chiropr Man Therap

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Background In March 2020, the World Health Organization elevated the coronavirus disease (COVID-19) epidemic to a pandemic and called for urgent and aggressive action worldwide. Public health experts have communicated clear and emphatic strategies to prevent the spread of COVID-19. Hygiene rules and social distancing practices have been implemented by entire populations, including ‘stay-at-home’ orders in many countries. The long-term health and economic consequences of the COVID-19 pandemic are not yet known. Main text During this time of crisis, some chiropractors made claims on social media that chiropractic treatment can prevent or impact COVID-19. The rationale for these claims is that spinal manipulation can impact the nervous system and thus improve immunity. These beliefs often stem from nineteenth-century chiropractic concepts. We are aware of no clinically relevant scientific evidence to support such statements. We explored the internet and social media to collect examples of misinformation from Europe, North America, Australia and New Zealand regarding the impact of chiropractic treatment on immune function. We discuss the potential harm resulting from these claims and explore the role of chiropractors, teaching institutions, accrediting agencies, and legislative bodies. Conclusions Members of the chiropractic profession share a collective responsibility to act in the best interests of patients and public health. We hope that all chiropractic stakeholders will view the COVID-19 pandemic as a call to action to eliminate the unethical and potentially dangerous claims made by chiropractors who practise outside the boundaries of scientific evidence.

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How to Peddle Hope: An Analysis of YouTube Patient Testimonials of Unproven Stem Cell Treatments

Cited by 40 publications

References 9 publications

The consumer representation of DNA ancestry testing on YouTube

The consumer representation of DNA ancestry testing on YouTube

Advances in regenerative medicine for otolaryngology/head and neck surgery

Misinformation, chiropractic, and the COVID-19 pandemic

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