How to Reduce Stigma and Bias in Clinical Communication: a Narrative Review

Healy, Megan; Richard, Alison F.; Kidia, Khameer

doi:10.1007/s11606-022-07609-y

Cited by 30 publications

(10 citation statements)

References 46 publications

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“…Even when such care is lawful, data redaction could prevent the stigma and bias experienced by some patients when providers are aware of the care. 40 42 43 44 45 46 47…”

Section: Methodsmentioning

confidence: 99%

“…Furthermore, patients may face implicit and explicit biases basheron EHR information. [40][41][42][43][44][45][46][47] Patients may wish to block certain data from being shared, but due to limitations in segmentation abilities, must share data in an all or none fashion regardless of platform. Furthermore, requesting that data not be shared through the HIE and the health system requires a savvy patient and institutional compliance.…”

Section: Sensitive Datamentioning

confidence: 99%

“…Even when such care is lawful, data redaction could prevent the stigma and bias experienced by some patients when providers are aware of the care. 40,[42][43][44][45][46][47] Existing Work Some EHR vendors have, and continue to, develop vendorspecific functionality that supports tagging of sensitive data, specifically for release to the portal. These development efforts accelerated in response to the 21st Century Information Blocking Final Rule.…”

Section: Ethical Legal Administrative and Policy Challengesmentioning

confidence: 99%

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Shifting into Action: from Data Segmentation to Equitable Interoperability for Adolescents (and Everyone Else)

et al. 2023

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Background Technological improvements and, subsequently, the federal 21st Century Cures Act have resulted in increased access to and interoperability of electronic protected health information (ePHI). These not only have many benefits, but also have created unique challenges for privacy and confidentiality for adolescent patients. The inability to granularly protect sensitive data and a lack of standards have resulted in limited confidentiality protection and inequitable access to health information. Objectives This study aimed to understand the challenges to safe, equitable access, and interoperability of ePHI for adolescents and to identify strategies that have been developed, ongoing needs, and work in progress. Methods Shift, a national task force formalized in 2020, is a group of more than 200 expert stakeholder members working to improve functionality to standardize efforts to granularly identify and protect sensitive ePHI to promote equitable interoperability. Results Shift has created high-priority clinical use cases and organized challenges into the areas of Standards and Terminology; Usability and Implementation; and Ethics, Legal, and Policy. Conclusion Current technical standards and value sets of terminology for sensitive data have been immature and inconsistent. Shift, a national diverse working group of stakeholders, is addressing challenges inherent in the protection of privacy and confidentiality for adolescent patients. The diversity of expertise and perspectives has been essential to identify and address these challenges.

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“…Even when such care is lawful, data redaction could prevent the stigma and bias experienced by some patients when providers are aware of the care. 40 42 43 44 45 46 47…”

Section: Methodsmentioning

confidence: 99%

Section: Sensitive Datamentioning

confidence: 99%

Section: Ethical Legal Administrative and Policy Challengesmentioning

confidence: 99%

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Shifting into Action: from Data Segmentation to Equitable Interoperability for Adolescents (and Everyone Else)

et al. 2023

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“…Language is a powerful tool for promoting inclusivity and advocating for change within the academic community [25]- [28]. Recognize shortcomings in language use; acknowledge that we all are continuously learning.…”

Section: Create and Respect Safe Spacesmentioning

confidence: 99%

Leveraging individual power to improve racial equity in academia

Monari¹,

Hammond²,

Malone³

et al. 2023

Preprint

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Academia in the United States continues to grapple with its longstanding history of racial discrimination and its active perpetuation of racial disparities. To this end, universities and academic societies must grow in ways that reduce racial minoritization and foster racial equity. What are the effective and long-lasting approaches we as academics should prioritize to promote racial equity in our academic communities? To address this, the authors held a diversity, equity, and inclusion (DEI) panel during the Society for Behavioral Neuroendocrinology 2022 annual meeting, and in the following commentary synthesize the panelists’ recommendations for fostering racial equity in the US academic community.

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“…A recent review of published literature, anti-stigma campaigns, and guidance from public health and advocacy campaigns identified stigmatizing language principles, examples, and alternatives (Healy, Richard, and Kidia 2022). Recommendations to reduce stigma and bias in clinical communication include using person-first and inclusive language, avoiding labels and pejorative terms, and avoiding attributions of responsibility or words that undermine patients' experiences.…”

Section: Social Stigma In Diabetesmentioning

confidence: 99%

The Language of Type 1 Diabetes: Why It Matters in Online Patient Education

Acuff

Wolfe

Bowler-Hill

2023

Journal of Consumer Health on the Internet

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This article discusses online patient education materials (PEMs) in the context of type 1 diabetes and the language used to describe the disease. The role of healthcare providers and health information professionals in the delivery of online PEMs is described. Relevant theories regarding the impact of language are discussed. A theoretical framework for understanding and assessing PEMs is presented, along with the introduction of in-progress research on the use of empowering language in online PEMs for adults with type 1 diabetes.

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How to Reduce Stigma and Bias in Clinical Communication: a Narrative Review

Cited by 30 publications

References 46 publications

Shifting into Action: from Data Segmentation to Equitable Interoperability for Adolescents (and Everyone Else)

Shifting into Action: from Data Segmentation to Equitable Interoperability for Adolescents (and Everyone Else)

Leveraging individual power to improve racial equity in academia

The Language of Type 1 Diabetes: Why It Matters in Online Patient Education

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