How to run a multiple sclerosis relapse clinic

Tallantyre, Emma; Wardle, Mark; Robertson, Neil

doi:10.1136/practneurol-2015-001214

Cited by 6 publications

(7 citation statements)

References 39 publications

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“…The identified suboptimal organization of our health care services should be met and efforts provided accordingly. Solutions to be considered may be to ensure allocation of a contact physician to every MS patient, to increase MS nurse services [ 16 ], to develop open rapid-access services [ 17 ] and to improve the interaction between primary and secondary care. In this context it is noteworthy that as many as 14% of our patients did not consult their GP at all about their MS, and 52% did so but only to a small extent.…”

Section: Discussionmentioning

confidence: 99%

“…As expected, satisfaction with accessibility to a physician perceived as trustworthy and qualified was associated with high overall patient satisfaction. Previous studies have also indicated that available physician services of high quality, including good communication and information, influence patient satisfaction and outcome [ 1 , 2 , 7 , 12 , 14 , 15 , 17 ].…”

Section: Discussionmentioning

confidence: 99%

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Quality of multiple sclerosis out-patient health care services with focus on patient reported experiences

2017

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BackgroundTo investigate multiple sclerosis (MS) patients’ satisfaction with out-patient follow-up in a general neurological hospital department. Patients with definite MS living in Vest-Agder county, Norway were invited to answer a questionnaire comprising one question regarding overall satisfaction, and 24 questions regarding demographics, disease characteristics, and experiences with different aspects of the health care services.ResultsOut of 330 invited patients, 159 responded (48%). Mean overall satisfaction with health care was 3.5 (SD = 1.03) on a 1–5 Likert scale (1 = not at all, 5 = to a very large extent). The best sub scores were given on confidence in the physician’s competence (mean = 4.01), the physician speaks in an understandable way (mean = 4.07), expectation of good treatment (mean = 3.72), and perception of being submitted to wrong treatment (mean = 1.5). The worst scores were given on satisfaction with frequency of outpatient appointments (mean = 2.89) and delay of outpatient appointments (mean = 3.07). Four factors were associated with high overall satisfaction; receiving the disease modifying drug natalizumab (B = 0.549, p = 0.004), satisfaction with frequency of outpatient appointments (B = 0.242, p < 0.001), experience that the physician facilitates talking about what the patient finds important (B = 0.218, p = 0.001), and confidence with the physician’s competence (B = 0.453, p < 0.001).ConclusionThe patients were rather satisfied with the content of follow-up, and less satisfied with the structure. Regular and predictable contact with a trustworthy physician that facilitates that the patient is able to talk about what is important was associated with higher overall satisfaction.Electronic supplementary materialThe online version of this article (doi:10.1186/s13104-017-2568-y) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Quality of multiple sclerosis out-patient health care services with focus on patient reported experiences

2017

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“…Recent years have seen evaluation of the virtual house calls in MS care remotely conducted though audio-visual connection with the patient at home. [ 9 10 ]…”

Section: P Sychosocial C Oncernsmentioning

confidence: 99%

Integration of Teleneurology within the Health System to Manage Patients of Multiple Sclerosis and Other CNS Demyelinating Disorders During COVID-19 Pandemic

Thomas

Annam

Ravindu

et al. 2021

Annals of Indian Academy of Neurology

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“…The aim of this study was to estimate the real-world ARRs from contemporary MS clinics in the UK, in order to improve the feasibility estimations for clinical trials [ 7 ] and facilitate MS service planning [ 12 ].…”

Section: Introductionmentioning

confidence: 99%

Real-world annualized relapse rates from contemporary multiple sclerosis clinics in the UK: a retrospective multicentre cohort study

Papathanasiou,

Hibbert,

Tallantyre

et al. 2023

Neurol Sci

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Background Annualized relapse rate (ARR) is used as an outcome measure in multiple sclerosis (MS) clinical trials. Previous studies demonstrated that ARR has reduced in placebo groups between 1990 and 2012. This study aimed to estimate real-world ARRs from contemporary MS clinics in the UK, in order to improve the feasibility estimations for clinical trials and facilitate MS service planning. Methods A multicentre observational, retrospective study of patients with MS from 5 tertiary neuroscience centres in the UK. We included all adult patients with a diagnosis of MS that had a relapse between 01/04/2020 and 30/06/2020. Results One hundred thirteen out of 8783 patients had a relapse during the 3-month study period. Seventy-nine percent of the patients with a relapse were female, the mean age was 39 years, and the median disease duration was 4.5 years; 36% of the patients that had a relapse were on disease-modifying treatment. The ARR from all study sites was estimated at 0.05. The ARR for relapsing remitting MS (RRMS) was estimated at 0.08, while the ARR for secondary progressive MS (SPMS) was 0.01. Conclusions We report a lower ARR compared to previously reported rates in MS.

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How to run a multiple sclerosis relapse clinic

Cited by 6 publications

References 39 publications

Quality of multiple sclerosis out-patient health care services with focus on patient reported experiences

Quality of multiple sclerosis out-patient health care services with focus on patient reported experiences

Integration of Teleneurology within the Health System to Manage Patients of Multiple Sclerosis and Other CNS Demyelinating Disorders During COVID-19 Pandemic

Real-world annualized relapse rates from contemporary multiple sclerosis clinics in the UK: a retrospective multicentre cohort study

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