Human Experimentation and Research

Annas, George J.

doi:10.1007/978-1-4612-0397-1_9

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Unanticipated Circumstances and The Appointment Of A Surroga...1

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1998

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“…However, we really do not have particular knowledge about our future circumstances until we actually experience them. Because research by its very nature "designates an activity designed to test a hypothesis" (National Commission, 1979, p. 3) and is characterized by uncertainty as to outcome (Annas, 1994), there…”

Section: Unanticipated Circumstances and The Appointment Of A Surroga...mentioning

confidence: 99%

Anticipatory planning for research participants with psychotic disorders like schizophrenia.

Backlar

1998

Psychology, Public Policy, and Law

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Current and coincident biomedical advances make this an opportune time to encourage research with individuals who have fluctuating periods of incapacity caused by psychotic disorders like schizophrenia. Effecting research with this heterogeneous population who may have impaired decision-making capacity that diminishes their autonomy, while honoring their liberty and safeguarding their well-being, may be difficult to achieve. Federal regulations and guidelines in regard to research with this population are insufficient and cause additional obstacles. Use of research advance directives that allow for the appointment of a surrogate decision maker, the designation of a research monitor, and delineation of specific safeguards for the research participants also may provide protection for investigators and foster and improve community trust in medical research.

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Section: Unanticipated Circumstances and The Appointment Of A Surroga...mentioning

confidence: 99%

Anticipatory planning for research participants with psychotic disorders like schizophrenia.

Backlar

1998

Psychology, Public Policy, and Law

View full text Add to dashboard Cite

show abstract

Human Experimentation and Research

Cited by 1 publication

References 14 publications

Anticipatory planning for research participants with psychotic disorders like schizophrenia.

Anticipatory planning for research participants with psychotic disorders like schizophrenia.

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