‘I am free in my wheelchair but pain does have a say in it though’: The meaning and experience of quality of life when living with paraplegia and chronic pain

Hughes, Melanie; Burton, Amy; Dempsey, Robert C.

doi:10.1177/1359105317750254

Cited by 13 publications

(18 citation statements)

References 40 publications

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“…Chronic pain is complex, is difficult to manage, and is the leading cause of disability worldwide (Mills, Nicolson, & Smith, 2019). Moreover, chronic pain interferes with occupational, social, and recreational functioning and can negatively affect quality of life (Boonstra, Reneman, Stewart, Post, & Schiphorst Preuper, 2013; Hughes, Burton, & Dempsey, 2019; Kerr et al, 2004; Langerud, Rustøen, Småstuen, Kongsgaard, & Stubhaug, 2018; Lantéri-Minet, Radat, Chautard, & Lucas, 2005). Research with veterans has implicated chronic pain as a factor in several functional outcomes, including psychiatric comorbidity, poor sleep quality, and disability (Naylor et al, 2017).…”

Section: Introductionmentioning

confidence: 99%

Pain interference and quality of life in combat veterans: Examining the roles of posttraumatic stress disorder, traumatic brain injury, and sleep quality.

Ord

Lad

Shura

et al. 2021

Rehabilitation Psychology

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Objective: The goal of this study was to examine the associations among posttraumatic stress disorder (PTSD), traumatic brain injury (TBI), sleep quality, pain interference, and quality of life in combat veterans. Method: Veterans (N ϭ 289, 86.51% male) completed the Mid-Atlantic MIRECC Assessment of Traumatic Brain Injury, the Clinician-Administered PTSD Scale for DSM-5, and measures of sleep quality, pain interference, and quality of life. Results: Hierarchical linear regressions evaluated associations between PTSD severity, deployment TBI severity, sleep quality, and the outcomes of pain interference and quality of life after adjusting for demographic variables and the number of nondeployment TBIs. PTSD severity, B ϭ 0.15, SE B ϭ 0.04, deployment TBI severity, B ϭ 3.98, SE B ϭ 1.01, and sleep quality, B ϭ 0.74, SE B ϭ 0.13, were significantly associated with pain interference, p Ͻ .001. PTSD severity, B ϭ Ϫ0.57, SE B ϭ 0.07, and pain interference, B ϭ Ϫ0.45, SE B ϭ 0.11, were significantly, independently associated with quality of life, p Ͻ .001. However, pain interference, B ϭ Ϫ0.24, SE B ϭ 0.11, was no longer significantly associated with quality of life when sleep quality, B ϭ Ϫ1.56, SE B ϭ 0.25, was included in the model. There was no significant association between deployment TBI severity and quality of life. Interactions among the studied variables were not significant for either of the outcome variables. Conclusions: PTSD symptom severity, deployment TBI history, and sleep quality may be important to consider in treatment planning for veterans experiencing pain-related functional interference. For veterans with numerous conditions comorbid with pain, treatment plans may include interventions targeting sleep and PTSD to maximize quality of life improvements.

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Section: Introductionmentioning

confidence: 99%

Pain interference and quality of life in combat veterans: Examining the roles of posttraumatic stress disorder, traumatic brain injury, and sleep quality.

Ord

Lad

Shura

et al. 2021

Rehabilitation Psychology

View full text Add to dashboard Cite

show abstract

“…Participants were asked to spend one week taking photographs to capture day-to-day experiences [21,22]. In the information provided, participants were advised that photographs should illustrate "personal everyday lived experiences with coping with living with the condition" and could "reflect things/experiences which you find either help or hinder your coping".…”

Section: Methodsmentioning

confidence: 99%

“…Replicating the approach of previous photo-elicitation research [21,22], participants were asked to choose 6-7 of the photographs taken over the week that best represented their everyday experience of coping with T1D. Chosen photographs were emailed to the researcher prior to the arranged interview time to facilitate discussion and guide the semistructured interviews.…”

Section: Methodsmentioning

confidence: 99%

“No-one realises what we go through as Type 1s”: A qualitative photo-elicitation study on coping with diabetes

Nettleton

Burton

Povey

2022

Diabetes Research and Clinical Practice

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“…Similar to patients with PTSD, individuals with chronic pain may blame themselves for the injury and the subsequent effect on their family (Brito et al, 2021). Distress may also result from recognizing that the current self is different from the past self (M. Hughes et al, 2019).…”

Section: Current Models Of Co-occurring Chronic Pain and Ptsdmentioning

confidence: 99%

Introducing the integrated model of co-occurring chronic pain and posttraumatic stress disorder: Adding meaning-making and existential concepts to current theory.

Reed,

Williams,

Engel

et al. 2023

Psychological Trauma: Theory, Research, Practice, and

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Objective: Making meaning out of the experience of chronic pain and posttraumatic stress disorder (PTSD) is a core process of recovery and symptom management of the comorbidity and a key active ingredient in the treatment for these conditions. Managing the effects of chronic pain and PTSD symptoms often evokes anxieties that could be considered existential (e.g., loss of meaning in life and concerns about one's identity). However, current theoretical models of co-occurring chronic pain and PTSD do not capture core meaning-making processes involved in either condition, resulting in the potential to overlook their centrality. The objective of the current work is to integrate current theoretical models of co-occurring chronic pain and PTSD with theory and science related to meaning-making and existential anxiety. Method: A targeted literature review was used to develop a novel model of co-occurring chronic pain and PTSD. Results: The present work introduces the integrated model of co-occurring chronic pain and PTSD, which is a first attempt at integrating current theoretical perspectives of co-occurring chronic pain and PTSD with the literature on meaning-making and closely related existential perspectives. We outline model-specific hypotheses and describe model implications and future directions. Conclusions: The model provides clinicians and researchers with a more thorough conceptualization of how chronic pain and PTSD interact, which symptoms to target, and which outcomes may be important for individuals who have both chronic pain and PTSD. As a result, the model has the potential to improve pain and PTSD outcomes, and perhaps health outcomes more broadly, within this population. Clinical Impact StatementIndividuals with co-occurring chronic pain and posttraumatic stress disorder (PTSD) experience a multitude of physical and mental health symptoms. Treatment for either condition often includes making meaning out of their symptoms and managing anxieties that may be considered existential (e.g., loss of meaning in life). The current work is a first attempt at integrating current theoretical perspectives of co-occurring chronic pain and PTSD with the literature on meaning-making and related existential perspectives. The model provides clinicians and researchers with a more thorough understanding of co-occurring chronic pain and PTSD and has the potential to improve outcomes relevant to this population.

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‘I am free in my wheelchair but pain does have a say in it though’: The meaning and experience of quality of life when living with paraplegia and chronic pain

Cited by 13 publications

References 40 publications

Pain interference and quality of life in combat veterans: Examining the roles of posttraumatic stress disorder, traumatic brain injury, and sleep quality.

Pain interference and quality of life in combat veterans: Examining the roles of posttraumatic stress disorder, traumatic brain injury, and sleep quality.

“No-one realises what we go through as Type 1s”: A qualitative photo-elicitation study on coping with diabetes

Introducing the integrated model of co-occurring chronic pain and posttraumatic stress disorder: Adding meaning-making and existential concepts to current theory.

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