“I am not only a disease, I am so much more”. Patients with rheumatic diseases’ experiences of an emotion-focused group intervention

Zangi, Heidi A.; Hauge, Mona‐Iren; Steen, Eldri; Finset, Arnstein; Hagen, Kåre Birger

doi:10.1016/j.pec.2010.12.032

Cited by 36 publications

(33 citation statements)

References 29 publications

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“…Nevertheless, sharing experiences was chosen as an aspect of the Delphi panel and nearly 100% of the patients in the study reported this aspect as important. This corresponds to previous studies showing that sharing experiences may influence the acceptance and management of life with a chronic disease (Gronning, Midttun, & Steinsbekk, ; Hamnes, Hauge, Kjeken, & Hagen, ; Zangi, Hauge, Steen, Finset, & Hagen, ). Consequently, sharing experiences may be a component of PE with an indirect effect on the other outcomes.…”

Section: Discussionsupporting

confidence: 89%

Outcomes in patient education programmes for people with rheumatic diseases: Results from a Delphi process and a study of feasibility and responsiveness

Røe

Grønning

Eriksson

et al. 2020

Musculoskeletal Care

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Section: Discussionsupporting

confidence: 89%

Outcomes in patient education programmes for people with rheumatic diseases: Results from a Delphi process and a study of feasibility and responsiveness

Røe

Grønning

Eriksson

et al. 2020

Musculoskeletal Care

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“…HPs should have the ability to provide emotional support59 64 and to focus on acceptance of the patient's illness and its consequences 106. Moreover, patients experienced that the use of creative learning methods, such as guided discovery, metaphors, poetry, music and visual materials in groups facilitated their emotional and behavioural change processes57 65 and they wanted to have the possibility to exchange knowledge and experiences with other patients 56 65. HPs, on the other hand, perceived that their delivery of knowledge and advice was influenced by their own attitudes and their abilities to interact with the patients 107…”

Section: Resultsmentioning

confidence: 99%

EULAR recommendations for patient education for people with inflammatory arthritis

et al. 2015

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ObjectivesThe task force aimed to: (1) develop evidence-based recommendations for patient education (PE) for people with inflammatory arthritis, (2) identify the need for further research on PE and (3) determine health professionals' educational needs in order to provide evidence-based PE. Methods A multidisciplinary task force, representing 10 European countries, formulated a definition for PE and 10 research questions that guided a systematic literature review (SLR). The results from the SLR were discussed and used as a basis for developing the recommendations, a research agenda and an educational agenda. The recommendations were categorised according to level and strength of evidence graded from A (highest) to D (lowest). Task force members rated their agreement with each recommendation from 0 (total disagreement) to 10 (total agreement). Results Based on the SLR and expert opinions, eight recommendations were developed, four with strength A evidence. The recommendations addressed when and by whom PE should be offered, modes and methods of delivery, theoretical framework, outcomes and evaluation. A high level of agreement was achieved for all recommendations (mean range 9.4-9.8). The task force proposed a research agenda and an educational agenda. Conclusions The eight evidence-based and expert opinion-based recommendations for PE for people with inflammatory arthritis are intended to provide a core framework for the delivery of PE and training for health professionals in delivering PE across Europe.

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“…Morone et al (2008a) suggested mindfulness meditation based on MBSR may lead to improvement in pain acceptance and physical function after they that found older adults with chronic lower back pain who participated in a mindfulness meditation group significantly improved on the Chronic Pain Acceptance Questionnaire. A study exploring the indirect benefits of an emotion-focussed group on patients with rheumatic diseases which incorporated learning methods intended to enhance awareness found that emotional well-being and coping behaviour were enhanced (Zangi et al 2011). A recent systematic review and metaanalysis of acceptance-based interventions for the treatment of chronic pain suggested that MBSR and ACT are not superior to cognitive behaviour therapy (CBT) but deemed good alternatives (Veehof et al 2011).…”

Section: Introductionmentioning

confidence: 99%

Using MBCT in a Chronic Pain Setting: A Qualitative Analysis of Participants’ Experiences

Moore

Martin

2014

Mindfulness

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An estimated 20 % of the global population experiences chronic pain, and comorbidity with emotional disorders such as depression is high. While the use of mindfulness-based cognitive therapy (MBCT) as an intervention for recurrent depression is escalating in both popularity and evidence-based success, MBCT is being increasingly utilised in a range of areas including chronic pain management. The current study was designed to conceptualise chronic pain patients' perceived benefits of an MBCT programme. Semi-structured interviews were conducted with 17 chronic pain patients who had participated in MBCT group training within a public hospital pain unit between 8 and 50 months previously. The recorded interviews were transcribed and interpreted using thematic analysis to identify key themes in participants' comments. Four overarching themes were extracted: patients' belief in the programme, patients' perception of control, patients' struggles and patients' acceptance of the presence of pain. Participants who perceived benefits from the MBCT programme were most motivated to continue mindfulness practice. Identifying patients' perspectives on their pain and the benefits of ongoing mindfulness practice following participation in an MBCT group intervention provided opportunity to discuss ways to best assist patients in developing and consolidating their practice. Clinical and research implications are discussed.

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“I am not only a disease, I am so much more”. Patients with rheumatic diseases’ experiences of an emotion-focused group intervention

Cited by 36 publications

References 29 publications

Outcomes in patient education programmes for people with rheumatic diseases: Results from a Delphi process and a study of feasibility and responsiveness

Outcomes in patient education programmes for people with rheumatic diseases: Results from a Delphi process and a study of feasibility and responsiveness

EULAR recommendations for patient education for people with inflammatory arthritis

Using MBCT in a Chronic Pain Setting: A Qualitative Analysis of Participants’ Experiences

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