Amigos de Fibro (Fibro Friends): validation of an e-book to promote health in fibromyalgia

Abstract

Background: Educational strategies are necessary for the care of patients with fibromyalgia. The objective was to develop and validate an e-book to promote the health of individuals with fibromyalgia. Methods: Methodological research in which, initially, through a bibliographic survey, the available publications on the subject were analyzed. Then, this knowledge was used to build the theoretical content addressed, and the art and layout of the e-book were elaborated. In the third phase, validation of the constructed material, content specialists (n = 23), technicians (n = 23) and design specialists (n = 23), and individuals with fibromyalgia (n = 45) evaluated the e-book through the Delphi technique. For data collection, different questionnaires were used, according to the evaluation focus of each participant group, analyzed for reliability using Cronbach’s Alpha (αC) and agreement using the Content Validity Index (CVI). Results: In the global assessment of agreement from all groups of judges, the CVI presented a considerable minimum: content (0.79), technical (0.89), design (0.92), and target audience (0.97). Regarding reliability, all groups also had a αC within the acceptable range: content (0.960), technical (0.963), design (0.977), and target audience (1.08). Conclusions: The e-book was developed and validated in terms of content and relevance and can be used to promote the health of individuals with fibromyalgia.

A web-based educational therapy intervention associated with physical exercise to promote health in fibromyalgia in Brazil: the Amigos De Fibro (Fibro Friends) study protocol

“…In addition, health education is one of the main items to enable the promotion of the health of patients with fibromyalgia, because this strategy must prepare people to take control and responsibility for their own health and the health of their environment, as well as prepare them for empowerment, decision-making, participation, social control, and action on the conditions and determinants of their health and quality of life [ 16 – 18 ]. Regarding the choice of comparing with only one educational material (e-book), the proposal was due to the fact that the material has already been validated and published and showed a good level of agreement between the evaluators [ 31 ]. Thus, this type of intervention only includes health education and is not associated with physical exercise.…”

“…In order to enrich the content, improve readability and general reader captivation of the e-book, and offer the target audience the opportunity to delve deeper into the topic, references, and links were added to the end of the material, which give access to the entirety of articles, books, theses, and websites that also support the material’s theoretical framework. The e-book has already been validated and published and showed a good level of agreement among evaluators [ 31 ]. The final version of the e-book is available at http://www.amigosdefibro.com.br .…”