I Collect Therefore I am—<i>Autonoetic</i> Consciousness and Hoarding in Asperger Syndrome

Skirrow, Paul; Jackson, Paul; Perry, Ewan P.; Hare, Dougal Julian

doi:10.1002/cpp.1889

Cited by 12 publications

(6 citation statements)

References 29 publications

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“…They are thought to help maintain a sense of the past which is necessary in order to establish a sense of self as continuous (Belk, 2000;Tabin, 1992). This finding is particularly interesting in light of a recently proposed model of "collecting and hoarding behaviours among individuals diagnosed with autism" (Skirrow, Jackson, Perry, & Hare, 2015). Skirrow et al hypothesise that individuals with autism may lack a sense of internal self-continuity and that the collecting and hoarding behaviours as well as rigid routines that often characterise ASCs may help maintain a sense of continuity through external means, a scaffolding of identity.…”

Section: Discussionmentioning

confidence: 89%

Using photographs to explore self-understanding in adolescent boys with an autism spectrum condition

King

Williams

Gleeson

2017

Journal of Intellectual & Developmental Disability

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Background: Research evidence suggests that self-understanding is likely to be limited in\ud individuals with autism.

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Method: Photo-elicitation interview was used to explore self-understanding in five adolescent boys\ud diagnosed with an autism spectrum condition.

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Results: An interpretative phenomenological analysis yielded three superordinate themes: self in\ud action, self extended in time and self in relation to others. These themes captured how\ud participants understood themselves in terms of their actions and abilities, in the context of their\ud past and future and in relation to others.

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Implications: The findings suggested that self-understanding is informed by relationships with\ud parents, self-other comparisons and by reflecting on past and future selves, as well as on\ud activities engaged in. Photo-elicitation was effective in engaging participants with the research\ud process.

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Section: Discussionmentioning

confidence: 89%

Using photographs to explore self-understanding in adolescent boys with an autism spectrum condition

King

Williams

Gleeson

2017

Journal of Intellectual & Developmental Disability

View full text Add to dashboard Cite

Background: Research evidence suggests that self-understanding is likely to be limited in\ud individuals with autism.

\ud

Method: Photo-elicitation interview was used to explore self-understanding in five adolescent boys\ud diagnosed with an autism spectrum condition.

\ud

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“…During dinnertime conversations, youth with autism are more likely to spontaneously recount a pre-existing narrative they read or viewed, than a personal event they experienced, compared with their TD interlocutors (Solomon, 2004 ). Furthermore, ASD individuals' personal interests in finance, dinosaurs, and religious narratives, or even their tendency to hoard, can become woven into their identities and sense of self (Nickrenz, 2007 ; Sirota, 2010 ; Brezis, 2012 ; Skirrow et al, 2014 ). Returning to Ben Shalom's hypothesis, spared semantic memory in individuals with high-functioning ASD may indeed serve them as a compensatory mechanism for episodic AM.…”

Section: Introductionmentioning

confidence: 99%

Memory integration in the autobiographical narratives of individuals with autism

Brezis

2015

Front. Hum. Neurosci.

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“…While it is reasonable to assume that in the general population possessions commonly hold sentimental value, the intensity and vividness of the descriptions in this study suggest that there might be greater emotional significance to collecting and retaining objects for autistic people. In support of this finding, Skirrow et al (2015) proposed that for this population, collecting and hoarding behaviors serve the need for a sense of continuity over time. They suggest that autistic people may hoard items that help them “code” autobiographical memory and form an integrated “sense of self” over time.…”

Section: Discussionmentioning

confidence: 82%

Autistic adults’ subjective experiences of hoarding and self-injurious behaviors

Goldfarb

Zafrani

Hedley

et al. 2021

Autism

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Restrictive and Repetitive Behaviors and Interests represent a core feature of autism since the earliest conceptualization of the condition. Related behaviors, such as hoarding and self-injurious behaviors, are under-researched in adulthood, resulting in limited knowledge about their various manifestation through the life span. This study expands our understanding of hoarding and self-injurious behaviors through subjective experiences shared by autistic adults. Ten adults with an autism diagnosis (aged 18–55 years, five females) participated in semi-structured, in-depth interviews. Thematic analysis identified a cluster of behaviors related to hoarding and self-injurious behaviors. Further analysis sub-categorized each theme according to the underlying purpose of the behavior. Hoarding behaviors were motivated by (1) a need for emotional aids, (2) disposing difficulties, and (3) collecting items related to special interests. Reasons for engaging in self-injurious behaviors were (1) an urge for sensory stimulation and (2) emotional regulation purposes. Discussion focuses on the underlying motives of the participants for engaging in these behaviors, in respect to current research knowledge. Relations to the general construct of Restrictive and Repetitive Behaviors and Interests are discussed along with implications for research and practice. Lay abstract Hoarding and self-injurious behaviors are relatively common in autism, but knowledge about their expressions in adulthood is scarce. Through interviews collecting subjective experiences of autistic adults, these behaviors were explored, and categorized to their underlying purposes. Findings portray the occurrence of these behaviors in the lives of autistic adults, their self-regulatory purposes, and their relationship to other behaviors in the domain of Restrictive and Repetitive Behaviors and Interests.

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I Collect Therefore I am—Autonoetic Consciousness and Hoarding in Asperger Syndrome

Cited by 12 publications

References 29 publications

Using photographs to explore self-understanding in adolescent boys with an autism spectrum condition

Using photographs to explore self-understanding in adolescent boys with an autism spectrum condition

Memory integration in the autobiographical narratives of individuals with autism

Autistic adults’ subjective experiences of hoarding and self-injurious behaviors

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