‘I don't want to talk about it.’ Raising public awareness of end-of-life care planning in your locality

Hickey, Deb; Quinn, Sharon

doi:10.12968/ijpn.2012.18.5.241

Cited by 15 publications

(18 citation statements)

References 1 publication

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“…[18][19][20] Death and dying remains taboo, making individuals reluctant to engage in ACP. 20 Although the participants did not disapprove the idea of ACP, they had an aversion to death with fear it would cause negative emotions. Aversion to planning for death might be related to the homeless individuals' witnessing or experiencing the deaths of family and friends.…”

Section: Discussionmentioning

confidence: 99%

Does End-of-Life Decision Making Matter?:

Nelson-Becker

2013

Am J Hosp Palliat Care

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This qualitative pilot study explored perspectives, needs, and concerns relating to advance care planning among older homeless adults. Twenty-one older adults residing at a transitional housing facility in an urban area of the West coast were interviewed in person. Key emergent themes included discomfort with the topic, trust in God's decisions, physicians preferred as decision makers, and planning is important but not an immediate concern. Further, people who are homeless want to be approached with sensitivity. Instead of simply eliciting life-sustaining treatment preferences of homeless people, health care professionals should assess their unique concerns and needs regarding death and dying, prepare them to consider their possible end-of-life situation, and assist them to plan in accordance with their needs.

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Section: Discussionmentioning

confidence: 99%

Does End-of-Life Decision Making Matter?:

Nelson-Becker

2013

Am J Hosp Palliat Care

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“…A public information road show engaged people using an informal questionnaire survey and eased conversations between those who participated. 37 4. A module on end-of-life planning delivered as part of ''expert patient'' education program on the management of chronic illness was not well received by participants.…”

Section: Palliative Care Campaigns S-31mentioning

confidence: 99%

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

Seymour

2018

Journal of Palliative Medicine

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Objective: The right to health includes a right of access to good quality palliative care, but inequalities persist. Raising awareness is a key plank of the public health approach to palliative care, but involves consideration of subjects most of us prefer not to address. This review addresses the question: ''do public health awareness campaigns effectively improve the awareness and quality of palliative care''? Background: The evidence shows that public awareness campaigns can improve awareness of palliative care and probably improve quality of care, but there is a lack of evidence about the latter. Methods: Rapid review and synthesis. Results: A comprehensive public awareness campaign about palliative care (including advance care planning and end-of-life decision making) should be based on clear and shared terminology, use well piloted materials, and the full range of mass media to suit different ages, cultures, and religious/spiritual perspectives. Arts and humanities have a role to play in allowing individuals and communities to express experiences of illness, death, and grief and encourage conversation and thoughtful reflection. There is evidence about key factors for success: targeting, networking, and use of specific, measurable, achievable, realistic time-bound objectives; continuous evaluation; and complementarity to national and international policy. Discussion: Campaigns should be located within the framework of public health promotion and the synergy between short national mass media campaigns and longer term local community action initiatives carefully considered. National and local projects to raise awareness should identify and address any barriers at the level of individuals, communities, and systems of care, for example, literacy skills and unequal access to resources.

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“…However, to the extent that contemplating future nursing home residency triggers mortality salience, the current approach would predict this kind of avoidance behavior. Similarly, the relatively low level of participation in prepaid funeral plans (Hickey & Quinn, 2012) is unsurprising. In retirement spending, the current approach would suggest a particular attraction to spending no more than current income (from assets or otherwise), as this is the highest level of spending that does not require contemplation of the timing of one's own death.…”

Section: Other Personal Financial Behaviorsmentioning

confidence: 99%

An Economic Model of Mortality Salience in Personal Financial Decision Making: Applications to Annuities, Life Insurance, Charitable Gifts, Estate Planning, Conspicuous Consumption, and Healthcare

James¹

2016

Journal of Financial Therapy

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The study of personal mortality salience and the denial of death have a long history in psychology leading to the modern field of Terror Management Theory. However, a simple consumer utility function predicts many of the outcomes identified in experimental research in this field. Further, this economic approach explains a range of otherwise unexpected financial decision-making behaviors in areas as diverse as annuities, life insurance, charitable gifts and bequests, intra-family gifts and bequests, conspicuous consumption, and healthcare. With its relevance to such a wide range of personal financial decisions, understanding the impact of mortality salience can be particularly useful to advisors in related fields.

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‘I don't want to talk about it.’ Raising public awareness of end-of-life care planning in your locality

Cited by 15 publications

References 1 publication

Does End-of-Life Decision Making Matter?:

Does End-of-Life Decision Making Matter?:

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

An Economic Model of Mortality Salience in Personal Financial Decision Making: Applications to Annuities, Life Insurance, Charitable Gifts, Estate Planning, Conspicuous Consumption, and Healthcare

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