<i>“Every time that month comes, I remember”:</i>using cognitive interviews to adapt grief measures for use with bereaved adolescents in South Africa

Taylor, Tory M.; Thurman, Tonya R.; Nogela, Lineo

doi:10.2989/17280583.2016.1210154

Cited by 4 publications

(9 citation statements)

References 29 publications

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“…Lacking evidence from the literature of grief measures validated for use with adolescents in South Africa, we opted to conduct cognitive interviews with previous Abangane participants to help to select and adapt grief measures for this study. 21 The grief subscale of the CBI was originally developed through factor analysis of candidate measures reflecting common grief-associated feelings, such as longing, loneliness, tearfulness, and sadness. 22 Respondents rate their frequency of experiencing these feelings ("never", "sometimes", "most of the time," or "all of the time") with corresponding values of 0 to 3 assigned.…”

Section: Discussionmentioning

confidence: 99%

Effect of a bereavement support group on female adolescents' psychological health: a randomised controlled trial in South Africa

Thurman

Luckett

Nice

et al. 2017

The Lancet Global Health

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Section: Discussionmentioning

confidence: 99%

Effect of a bereavement support group on female adolescents' psychological health: a randomised controlled trial in South Africa

Thurman

Luckett

Nice

et al. 2017

The Lancet Global Health

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“…For example, upon prompting, A02 said she would describe a valuable person as an 'important' person. In a similar study aimed at adapting a measure of grief among South African adolescents, it was noted that since cognitive interviewees are tasked with explaining how they experience and interpret specific words and phrases, polyglot contexts represent an exceedingly complex environment for research implementation [49]. This raises the question of whether participants' struggles to verbalize their thoughts are related to a lack of understanding.…”

Section: Resultsmentioning

confidence: 99%

“…This raises the question of whether participants' struggles to verbalize their thoughts are related to a lack of understanding. Indeed, the relationship between language and cognition is a persistent question in scientific inquiry [43,49].…”

Section: Resultsmentioning

confidence: 99%

Asking the Experts: Using Cognitive Interview Techniques to Explore the Face Validity of the Mental Wellness Measure for Adolescents Living with HIV

Orth

Wyk

2023

IJERPH

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There has been an increased focus on the mental health of adolescents living with HIV (ALHIV), because evidence shows that poor mental health outcomes are associated with lower rates of adherence and retention in HIV care. However, the research to date has predominantly focused on addressing mental health problems and reducing symptoms of mental illness rather than strengthening mental wellness [positive mental health]. Consequently, little is known about the critical mental wellness indicators that should be targeted in services for ALHIV. There is a need for valid and appropriate measures of mental wellness to drive research and provide evidence on the mental wellness needs of ALHIV that would inform service delivery as well as the monitoring and evaluation of treatment outcomes. To this end, we developed the Mental Wellness Measure for Adolescents Living with HIV (MWM-ALHIV) for ALHIV in the South African context. In this paper, we report on the findings from a cognitive interview study with nine ALHIV aged 15–19 years receiving treatment at a public healthcare facility in the Cape Metropole, South Africa. Through interviews, participants identified key issues related to the wording, relevance and understanding of the items and provided suggestions to improve the instrument’s overall face validity.

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“…Examining item content and interpretation through collaborative research methods, such as cognitive interviews and focus groups, can strengthen the content validity of a measure and increase its appropriateness for use in clinical practice. For example, Taylor et al (2016) utilized cognitive interviewing with bereaved adolescents, which helped to adapt a grief measure in a culturally and linguistically responsive manner. In addition, the use of grassroots collaborations to improve content validity promote a trauma-informed approach (Substance Abuse and Mental Health Services Administration, 2014) in the development of trauma screening and assessment measures.…”

Section: Improving Content Validity Through Collaborative Methodologi...mentioning

confidence: 99%

Improving the content validity of the Trauma and Adverse Childhood Experiences Survey (TRACES) and the Child and Adolescent PTSD Checklist for DSM–5 (CAPC-5): A collaborative research methodological approach.

Seifert¹,

Wise-Kriplani²,

Knox³

et al. 2022

Psychological Trauma: Theory, Research, Practice, and Policy

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Objective: The current study aimed to improve the content validity of the Trauma and Adverse Childhood Experiences Survey (TRACES) and the Child and Adolescent PTSD Checklist for the DSM-5 (CAPC-5). Method: Two community-based collaborative research methods were used-cognitive interviewing and focus groups. Three rounds of cognitive interviews included a racially and economically diverse sample of 12 trauma-exposed youth and 12 caregivers. Three focus groups involved 19 clinicians with diverse disciplines and years of practice. Modifications to the measures were made after each round of interviews and after completion of all focus groups. Results: Both methods provided beneficial information about issues with the measures. Feedback from youth, caregivers, and clinicians was distinct, though data across groups generally converged. Improvements were made to the measures in multiple areas, such as instructions and clarity. Conclusions: Incorporating feedback from multiple stakeholders increased the content validity of the TRACES and CAPC-5. Collaborative research methods provide a trauma-informed initial step in the development of assessment measures. Clinical Impact StatementThis study incorporated a trauma-informed approach to the development of child trauma history and symptoms measures. It provided a model of grassroots collaboration with youth, caregivers, and clinicians used to enhance the content validity of the TRACES and the CAPC-5. Results of two collaborative research methods highlighted the unique perspectives of each population, underscoring the benefits of incorporating feedback from all three groups during measure development. These approaches improved content validity of the two measures and supported the importance of collaborative research methods in trauma-informed measure development.

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“Every time that month comes, I remember”:using cognitive interviews to adapt grief measures for use with bereaved adolescents in South Africa

Cited by 4 publications

References 29 publications

Effect of a bereavement support group on female adolescents' psychological health: a randomised controlled trial in South Africa

Effect of a bereavement support group on female adolescents' psychological health: a randomised controlled trial in South Africa

Asking the Experts: Using Cognitive Interview Techniques to Explore the Face Validity of the Mental Wellness Measure for Adolescents Living with HIV

Improving the content validity of the Trauma and Adverse Childhood Experiences Survey (TRACES) and the Child and Adolescent PTSD Checklist for DSM–5 (CAPC-5): A collaborative research methodological approach.

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