“I Feel Guilty”. Exploring Guilt-Related Dynamics in Family Caregivers of People with Dementia

Gallego-Alberto, Laura; Losada, Andrés; Cabrera, Isabel; Romero‐Moreno, Rosa; Pérez-Miguel, Ana; Pedroso-Chaparro, María Del Sequeros; Márquez‐González, María

doi:10.1080/07317115.2020.1769244

Cited by 33 publications

(22 citation statements)

References 28 publications

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“…Both types of behaviors are coherent with the different types of guilt evoking behaviors suggested by Gallego‐Alberto et al. (2020) and Samuelsson et al. (2001).…”

Section: Discussionsupporting

confidence: 87%

“…www.FamilyProcess.org 1430 / suggested by Gallego-Alberto et al (2020) and Samuelsson et al (2001). The results obtained suggest that criticism of the caregiver's role was more frequent than personal criticism.…”

Section: Care Recipient Behavior and Its Impact On Caregivers' Psycho...mentioning

confidence: 84%

“…In this scenario, many caregivers report facial and verbal expressions made by their relatives that lead them to feel guilty, such as verbalizations like “you are a bad caregiver, you leave me here alone!”. A recent qualitative study along these lines has revealed that the person with dementia being cared for and other close relatives are relevant factors for the guilt experienced by dementia family caregivers (Gallego‐Alberto et al., 2020). Specifically, the results showed that several types of comments and behaviors made by the care recipients (such as criticism or behavioral disruption when it is time to go to the Day Care Center) lead the caregivers to feel guilty.…”

Section: Introductionmentioning

confidence: 99%

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Family Dynamics in Dementia Caregiving: Development and Validation of the Interpersonal Triggers of Guilt in Dementia Caregiving Questionnaire (ITGDCQ)

et al. 2021

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The objective was to develop the Interpersonal Triggers of Guilt in Dementia Caregiving Questionnaire (ITGDCQ). An emotion frequently experienced by caregivers is guilt. However, the studies analyzing potential factors that generate guilt are scarce. Guilt may be generated through interpersonal interactions. A total of 201 dementia caregivers were evaluated for frequency of leisure, guilt, anxiety, depression, and a pool of items measuring the frequency, and guilt was derived from different behaviors performed by the care recipient (ITGDCQ‐CR) and other relatives (ITGDCQ‐OR). Exploratory factor analysis of the ITGDCQ‐CR showed a two‐factor solution, explaining 56.24% of the variance. The ITGDCQ‐OR subscale also showed two factors, explaining 63.24% of the variance. All the factors had acceptable to good reliability indexes. Positive associations were found between both subscales and depression, anxiety, guilt, and stress associated with CR’s behavioral problems. ITGDCQ‐CR was negatively correlated with frequency of leisure. The interpersonal dynamics assessed with the ITGDCQ generated other emotions such as anger or sadness. Through structural equation modeling, 28% of the variance of caregivers’ distress was explained by the assessed variables, including a significant contribution of the interpersonal dynamics assessed with the ITGDCQ. The results provide preliminary support for the use of the ITGDCQ as a valid and reliable measure of care recipients’ or other relatives’ factors that trigger or facilitate the experience of guilt in the caregivers. The association between these factors and caregiver distress suggests potential clinical implications for the findings.

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“…Both types of behaviors are coherent with the different types of guilt evoking behaviors suggested by Gallego‐Alberto et al. (2020) and Samuelsson et al. (2001).…”

Section: Discussionsupporting

confidence: 87%

Section: Care Recipient Behavior and Its Impact On Caregivers' Psycho...mentioning

confidence: 84%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Family Dynamics in Dementia Caregiving: Development and Validation of the Interpersonal Triggers of Guilt in Dementia Caregiving Questionnaire (ITGDCQ)

et al. 2021

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“…Some examples could be thinking that it is logical for caregivers to take their own needs into the background, putting aside their satisfaction in favour of the needs of their family member, that it is selfish for them to take time for themselves or that they should never ask for help. There is evidence that these thoughts are the origin of negative repercussions on the caregiver, and that interventions which address this type of thinking have good results in caregivers (Gallego‐Alberto et al., 2020; Losada et al., 2010, 2020; Saavedra et al., 2013).…”

Section: Discussionmentioning

confidence: 99%

Do the caregiving spouses of people with dementia in Spain perceive the same barriers for taking part in interventions as caregiving offspring?

Jiménez

Martínez

Navarro

2021

Health Social Care Comm

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The aim of this qualitative research is to examine the difficulties perceived by caregivers for taking part in an offered intervention, exploring whether there are differences depending on caregiver's degree of kinship. Forty-two family caregivers from Salamanca (Spain) were interviewed after declining an invitation to take part in an intervention programme. All the telephone conversations were transcribed verbatim. The transcriptions were subject to a thematic content analysis using QDA MINER software. The barriers identified were (1) difficulties adapting to the intervention's schedule due to a lack of time, or incompatibility with its dates or timetables, (2) belief among the caregivers that they do not need or are not interested in the support the intervention provides, (3) impossibility to separate from the family member to attend due to the absence of relief or a feeling of guilt, (4) caregiver's health issues, (5) difficulties with accessibility, and (6) belief that the therapies serve no useful purpose. Certain differences were identified depending on the caregiver's kinship. Understanding the difficulties caregivers face for taking part in the interventions will enable steps to be taken to remove and/or reduce such barriers, whereby more caregivers will benefit from interventions.

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“…Family members of PwDs may not only experience physical burdens, but also psychological or emotional burdens such as guilt arising from the belief that it is their responsibility to care for their relative [6,7]. Thus, being a caregiver may be associated with exposure to stress, a decrease in subjective physical health and social networking, and an increased risk of depression and mortality [8][9][10].…”

Section: Introductionmentioning

confidence: 99%

Association Between Cohabitation Status and Sleep Quality in Families of Persons With Dementia in Korea: A Cross-sectional Study

Kim

Park

Jeong

et al. 2021

J Prev Med Public Health

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Objectives: The aim of this study was to identify the association between cohabitation status and sleep quality in family members of people with dementia (PwDs).Methods: Data of 190 365 participants aged ≥19 years from the 2018 Korea Community Health Survey were analyzed. Participants were categorized according to their cohabitation status with PwDs. Multiple logistic regression and ordinal logistic regression analyses were performed to evaluate the relationship between the cohabitation status of PwDs’ relatives and sleep quality measured using the Pittsburgh Sleep Quality Index (PSQI) and PSQI subscales.Results: Compared to participants without PwDs in their families, both cohabitation and non-cohabitation with PwDs were associated with poor sleep quality (cohabitation, male: odds ratio [OR],1.28; 95% confidence interval [CI], 1.08 to 1.52; female: OR, 1.40; 95% CI, 1.20 to 1.64; non-cohabitation, male: OR, 1.14; 95% CI, 1.05 to 1.24; female: OR, 1.23; 95% CI, 1.14 to 1.33). In a subgroup analysis, non-cohabiting family members showed the highest odds of experiencing poor sleep quality when the PwD lived alone (male: OR, 1.48; 95% CI, 1.14 to 1.91; female: OR, 1.58; 95% CI, 1.24 to 2.01). Cohabiting male and female participants had higher odds of poor subjective sleep quality and use of sleeping medications than non-cohabiting male and female participants, respectively.Conclusions: The residence of PwDs and cohabitation status may contribute to poor sleep quality among PwDs’ family members. The circumstances faced by cohabiting and non-cohabiting family members should be considered when evaluating sleep quality in family members of PwDs, and appropriate interventions may be needed to improve sleep quality in both cohabiting and non-cohabiting family members.

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“I Feel Guilty”. Exploring Guilt-Related Dynamics in Family Caregivers of People with Dementia

Cited by 33 publications

References 28 publications

Family Dynamics in Dementia Caregiving: Development and Validation of the Interpersonal Triggers of Guilt in Dementia Caregiving Questionnaire (ITGDCQ)

Family Dynamics in Dementia Caregiving: Development and Validation of the Interpersonal Triggers of Guilt in Dementia Caregiving Questionnaire (ITGDCQ)

Do the caregiving spouses of people with dementia in Spain perceive the same barriers for taking part in interventions as caregiving offspring?

Association Between Cohabitation Status and Sleep Quality in Families of Persons With Dementia in Korea: A Cross-sectional Study

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