‘I felt I have grown up as an adult’: caregiving experience of children affected by HIV/AIDS in China

Zhang, L.; Li, Xiaoming; Kaljee, Linda; Fang, Xiaoyi; Lin, Xiuyun; Zhao, Guoxiang; Zhao, Junfeng; Hong, Yan

doi:10.1111/j.1365-2214.2009.00973.x

Cited by 20 publications

(13 citation statements)

References 32 publications

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“…Although child gender was not reported to play a role in children’s education in our study, our findings support the review article in that mothers in our study also mentioned that their living arrangement and poverty were barriers to their children attending school. Children from families living with HIV in Haiti and elsewhere often also face psychosocial stressors related to HIV/AIDS stigma from community members and increased responsibilities in housework and caring for self, younger siblings and parents with illness (Ji et al, 2007; Skovdal, Ogutu, Aoro, & Campbell, 2009; Xu, Wu, Duan, Han, & Rou, 2010; Zhang et al, 2009). Among the children who were able to attend school in our study, the psychosocial stressors they experienced influenced their behaviors and school performance.…”

Section: Discussionmentioning

confidence: 99%

Maternal HIV Illness and its Impact on Children’s Well-being and Development in Haiti

Conserve

Eustache²,

Oswald³

et al. 2014

J Child Fam Stud

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Little is known about the impact of parental HIV illness on children’s well-being and development in the island nations of the Caribbean. Study objectives were to examine mothers’ experiences of impact of HIV illness on their children’s well-being and development in Haiti. Baseline interviews were conducted between 2006 and 2007 with 25 HIV-positive mothers as part of a larger study that examined the feasibility of a psychosocial support group intervention for HIV-affected youth and their caregivers in central Haiti. Interviews were transcribed verbatim and coded for topical themes by two investigators. Main themes related to impact of maternal HIV illness on children’s well-being were the lack of mothers’ physical strength to take care of their children, and their difficulties in providing housing and food for their children. Children’s school enrollment, attendance, and performance were also affected by their mother’s illness. Mothers reported that although their children were HIV-negative, children were distressed by HIV-related stigma that they and their mothers experienced. Findings suggest that children living in HIV-affected families in this region face disadvantages in nutritional, educational, and psychological outcomes. These considerations should be taken into account when designing interventions to support children living in HIV-affected families in this setting.

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Section: Discussionmentioning

confidence: 99%

Maternal HIV Illness and its Impact on Children’s Well-being and Development in Haiti

Conserve

Eustache²,

Oswald³

et al. 2014

J Child Fam Stud

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“…Most of the measures/scales in the inventory were culturally adapted from existing measures in literature through qualitative studies (Zhang et al, 2009; Zhao et al, 2007; Zhao, Li, Kaljee, Zhang, et al, 2009). During the survey, clarification and/or instruction were provided promptly when needed.…”

Section: Methodsmentioning

confidence: 99%

Childhood Sexual Abuse and Its Relationship With Psychosocial Outcomes Among Children Affected by HIV in Rural China

Zhao¹,

Zhao²,

Li³

et al. 2011

Journal of the Association of Nurses in AIDS Care

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This study assessed the prevalence of childhood sexual abuse (CSA) and its association with psychosocial outcomes among children in high HIV-prevalence communities in rural China. Data were collected from HIV orphans (n = 417; children who had lost one or both parents to HIV), vulnerable children (n = 326; children living with HIV-infected parents), and comparison children (n = 276; children who had not experienced HIV-related familial illness or death). About 30% reported having experienced at least 1 form of CSA; more boys (37%) than girls (24%) reported CSA; 24% reported only non-physical CSA, 5% reported both physical and non-physical CSA; 2% reported only physical CSA. Multivariate analysis revealed that CSA was significantly associated with problem behaviors and quality of life independent of key demographic factors. Findings suggest that these children were vulnerable to CSA and highlight the need to address the issues of CSA in this population.

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“…These physical and emotional demands may comprised the parenting quality, disrupted family routines (Murphy & Marelich, 2008). Children may be required to take the adult responsibility to provide care to ill adults, perform household work, taking care of younger siblings (Zhang et al, 2009) or even become the breadwinners in the family. These can increase the children's risk to poor health, school drop-out, and child labor (Xu, Wu, Duan, Han, & Rou, 2010).…”

Section: Impact Of Parental Hivmentioning

confidence: 99%

“…Self-esteem, self-confidence, and coping self-efficacy were associated with increased resilience in a study conducted in Africa (Betancourt et al, 2011). Worldwide studies suggested that caregiving responsibilities among children affected by HIV may have some positive effect on personal growth and contribute to a child's positive competence in supporting their households (Campbell et al, 2012; Skovdal, 2010; Zhang et al, 2009). …”

Section: Resilience Processmentioning

confidence: 99%

Psychological resilience among children affected by parental HIV/AIDS: a conceptual framework

Chi²,

Sherr³

et al. 2015

Health Psychology and Behavioral Medicine

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HIV-related parental illness and death have a profound and lasting impact on a child's psychosocial wellbeing, potentially compromising the child's future. In response to a paucity of theoretical and conceptual discussions regarding the development of resilience among children affected by parental HIV, we proposed a conceptual framework of psychological resilience among children affected by HIV based on critical reviews of the existing theoretical and empirical literature. Three interactive social ecological factors were proposed to promote the resilience processes and attenuate the negative impact of parental HIV on children's psychological development. Internal assets, such as cognitive capacity, motivation to adapt, coping skills, religion/spirituality, and personality, promote resilience processes. Family resources and community resources are two critical contextual factors that facilitate resilience process. Family resources contain smooth transition, functional caregivers, attachment relationship, parenting discipline. Community resources contain teacher support, peer support, adult mentors, and effective school. The implications of the conceptual framework for future research and interventions among children affected by parental HIV were discussed.

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‘I felt I have grown up as an adult’: caregiving experience of children affected by HIV/AIDS in China

Cited by 20 publications

References 32 publications

Maternal HIV Illness and its Impact on Children’s Well-being and Development in Haiti

Maternal HIV Illness and its Impact on Children’s Well-being and Development in Haiti

Childhood Sexual Abuse and Its Relationship With Psychosocial Outcomes Among Children Affected by HIV in Rural China

Psychological resilience among children affected by parental HIV/AIDS: a conceptual framework

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