“I just have to move on”: Women's coping experiences and reflections following their first year after primary breast cancer surgery

Drageset, Sigrunn; Lindstrøm, Torill Christine; Underlid, Kjell

doi:10.1016/j.ejon.2015.10.005

Cited by 61 publications

(56 citation statements)

References 53 publications

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“…In agreement with the present study, Drageset's study showed that leisure and work were among factors affecting adjustment. Income and social support play a key role in adjustment of cancer patients (Drageset et al, 2016). In the present study, patients with no metastasis had better levels of adjustment compared to other groups, with a significant difference between them.…”

Section: Discussionsupporting

confidence: 50%

“…Charmaine et al (2016) found medication therapy, rest, relaxation, and distraction to be effective for adjustment to physical problems, while social support and religion were important for adjustment to psychological problems (D'Souza et al, 2016). Drageset et al (2015) considered intimate family relationships, positive thinking, physical activity, self-care, nature, hobbies, and jobs (Drageset et al, 2016). Moreover, Jeremy et al (2015) considered acceptance of the disease and humor (Shapiro et al, 2010) and Gonzales et al (2015) considered emotional support, religious/spiritual strategies, benefit, belief in destiny, optimism, denial, distraction, and a fighting information-seeking spirit as factors affecting a patient's adjustment to cancer (Gonzales et al, 2015;Gonzalez et al, 2016).…”

Section: Introductionmentioning

confidence: 99%

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Psychosocial adjustment to cancer and its associated factors in patients undergoing chemotherapy: A cross-sectional study

2017

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Background: Adjustment to cancer refers to functions adopted by an individual for sustaining health and well-being, and leads to a better life and improved quality of life. Failure to adjust causes anxiety, depression, distress, and behavioral problems. The aim of study was to assess psychosocial adjustment to cancer and its associated factors in patients undergoing chemotherapy. Methods: This cross-sectional study recruited 260 cancer patients undergoing chemotherapy at a hospital center in Kashan, Iran in 2016. Data collection tools included demographic details, Psychological Adjustment to Illness Scale (PAIS), and adherence to religious beliefs (Temple). Samples were selected by convenience sampling method. Data were analyzed in SPSS-16 software using descriptive statistics, Chi-square test, and Pearson's correlation coefficient. Results: The mean age of participants was 54.76±13.82 years, duration with cancer was 10.11±18.89 months, duration of treatment with chemotherapy was 4.8±6.2 months, and the mean score adjustment was 50.1±17.18. Adjustment was found to be significantly related to education, marital status, financial status, employment, and adherence to religious beliefs, but not to age, duration with cancer, duration of chemotherapy, or place of residence. Patients with no metastasis were better adjusted compared to other groups, with a significant difference from the other groups.

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Section: Discussionsupporting

confidence: 50%

Section: Introductionmentioning

confidence: 99%

Psychosocial adjustment to cancer and its associated factors in patients undergoing chemotherapy: A cross-sectional study

2017

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“…Research into coping and/or living with cancer which has taken a qualitative approach supports many of the main findings of this study: that positive experiences are important and strategies for living can be developed[52]; that whilst living with cancer is disruptive it is possible to make sense of the experience and ‘find a path’ which enables coping[53]; that a focus on life priorities and everyday tasks such as work or hobbies can be helpful[13]; the importance of ‘holding on to life’ by enjoying life in the present[14] that people use emotional and problem focused coping strategies, often focused on maintaining normality[19]; and that supportive relationships with and trust in clinicians are important[19, 54, 55]. The narratives commonly included expressions of ‘hope’ which is a factor considered by other work on coping with cancer [56].…”

Section: Discussionmentioning

confidence: 64%

Coping Well with Advanced Cancer: A Serial Qualitative Interview Study with Patients and Family Carers

et al. 2017

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ObjectivesTo understand successful strategies used by people to cope well when living with advanced cancer; to explore how professionals can support effective coping strategies; to understand how to support development of effective coping strategies for patients and family carers.DesignQualitative serial (4–12 week intervals) interview study with people with advanced cancer and their informal carers followed by focus groups. The iterative design had a novel focus on positive coping strategies. Interview analysis focused on patients and carers as individuals and pairs, exploring multiple dimensions of their coping experiences. Focus group analysis explored strategies for intervention development.Participants26 people with advanced (stage 3–4) breast, prostate, lung or colorectal cancer, or in receipt of palliative care, and 24 paired nominated informal/family carers.SettingParticipants recruited through outpatient clinics at two tertiary cancer centres in Merseyside and Manchester, UK, between June 2012 and July 2013.Results45 patient and 41 carer interviews were conducted plus 4 focus groups (16 participants). People with advanced cancer and their informal/family carers develop coping strategies which enable effective management of psychological wellbeing. People draw from pre-diagnosis coping strategies, but these develop through responding to the experience of living with advanced cancer. Strategies include being realistic, indulgence, support, and learning from others, which enabled participants to regain a sense of wellbeing after emotional challenge. Learning from peers emerged as particularly important in promoting psychological wellbeing through the development of effective ‘everyday’, non-clinical coping strategies.ConclusionsOur findings challenge current models of providing psychological support for those with advanced cancer which focus on professional intervention. It is important to recognise, enable and support peoples’ own resources and coping strategies. Peer support may have potential, and could be a patient-centred, cost effective way of managing the needs of a growing population of those living with advanced cancer.

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“…This may be interpreted as a self-management coping mechanism whereby the participants tried to leave their cancer experiences behind them in an attempt to adopt some form of normality. Indeed, reminders of cancer have been found to induce fear and increased insecurity of cancer recurrence in breast cancer survivors (Drageset, Lindstrom, & Underlid, 2016).…”

Section: Discussionmentioning

confidence: 99%

Acceptability and utilisation of patient-initiated follow-up for endometrial cancer amongst women from diverse ethnic and social backgrounds: A mixed methods study

et al. 2019

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Introduction A shift in focus towards risk stratification and survivorship in early stage endometrial cancer (EC) has led to the replacement of hospital follow‐up (HFU) with patient‐initiated follow‐up (PIFU) schemes. Methods A mixed methods study was undertaken prospectively to investigate utility and patient satisfaction with a newly introduced PIFU scheme. Results Two hundred and twenty‐eight women were enrolled onto PIFU in the first 18 months, median age 65 years (range 42–90 years). Twenty‐four (10.5%) women were non‐British White ethnicity. Forty‐five women contacted the Clinical Nurse Specialist (CNS) at least once (19.7%), the primary reason being vaginal bleeding/discharge (42%). Contact was greater in first six months on the scheme compared to the second 6 months, and women who made contact were significantly younger than those who did not (57 years vs. 65 years, p < 0.001). Conclusions PIFU appears to be well received by the majority of women. Although many of the CNS contacts were due to physical symptoms, a number were for psychological support or reassurance. Younger women had greater CNS contact indicating that they may benefit from a greater level support. Patient feedback of the PIFU scheme was positive, with many women reporting that it enabled them to have more control over their own health.

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“I just have to move on”: Women's coping experiences and reflections following their first year after primary breast cancer surgery

Cited by 61 publications

References 53 publications

Psychosocial adjustment to cancer and its associated factors in patients undergoing chemotherapy: A cross-sectional study

Psychosocial adjustment to cancer and its associated factors in patients undergoing chemotherapy: A cross-sectional study

Coping Well with Advanced Cancer: A Serial Qualitative Interview Study with Patients and Family Carers

Acceptability and utilisation of patient-initiated follow-up for endometrial cancer amongst women from diverse ethnic and social backgrounds: A mixed methods study

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