‘I'm happy that I can still walk’ – Participation of the elderly in home care as a specific group with specific needs and wishes

Bagchus, Charlotte; Dedding, Christine; Bunders, Joske

doi:10.1111/hex.12188

Cited by 12 publications

(9 citation statements)

References 31 publications

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“…Professionals do not often consider patients and informal caregivers to be part of the team . However, viewing patients and informal caregivers as team members is important for delivering high‐quality care, as some patients and informal caregivers have vital experiential knowledge and can therefore play crucial roles in the care‐provision process . Recognizing the roles of both patients and their informal caregivers in the team could help professionals to understand and collaborate better with them and thus limit the likelihood of challenges occurring in their interactions.…”

Section: Discussionmentioning

confidence: 99%

“…The patient can be seen as the single binding factor of the primary care team, as actual care delivery should depend on a patient's specific wishes and needs . Various patient involvement models see the patient as an expert with experiential knowledge of their own condition that could complement the knowledge of professionals . Both patients and professionals often rely heavily on informal care .…”

Section: Introductionmentioning

confidence: 99%

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The different perspectives of patients, informal caregivers and professionals on patient involvement in primary care teams. A qualitative study

Doekhie

Strating

Buljac-Samardžić

et al. 2018

Health Expectations

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BackgroundPatient involvement in the decision‐making process, especially for chronically ill elderly patients, has become an important element of patient‐centred primary care in many countries, including the Netherlands. This study openly explores different perspectives of patients, informal caregivers and primary care professionals on patient involvement in primary care team interactions.MethodsSixty‐four qualitative semi‐structured interviews with chronically ill elderly patients, informal caregivers and primary care professionals from various disciplines. Underpinned by a phenomenology approach, this study used conventional content analysis for data analysis.ResultsParticipants have different views of the roles of patients and informal caregivers in the primary care team and thus different expectations of the extent and level of patient involvement. Three challenges impact patient involvement in the team: (a) patients feel misunderstood and less involved that they would like when professionals take control, (b) patients have to balance the conflicting opinions of different professionals and (c) informal caregivers act undesirably as team leaders due to their own view of the level of patient involvement.Discussion and conclusionPatient involvement is formed in complex interactions between patients, informal caregivers and multiple professionals whose perspectives and expectations can be misaligned. Recognizing the value of patients and informal caregivers on the team could help professionals to understand them better and thus limit the likelihood of challenges arising in team interactions.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The different perspectives of patients, informal caregivers and professionals on patient involvement in primary care teams. A qualitative study

Doekhie

Strating

Buljac-Samardžić

et al. 2018

Health Expectations

View full text Add to dashboard Cite

show abstract

“…Given the advantages of including patients’ perspectives, patients are increasingly involved in healthcare services (Bagchus et al 2014 ; Larsson et al 2007 ), healthcare quality (e.g. guideline development) (Pittens et al 2013 ) and health-related research (e.g.…”

Section: Introductionmentioning

confidence: 99%

The challenges of living with bipolar disorder: a qualitative study of the implications for health care and research

Maassen

Regeer

et al. 2018

Int J Bipolar Disord

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BackgroundIn mental health care, clinical practice is often based on the best available research evidence. However, research findings are difficult to apply to clinical practice, resulting in an implementation gap. To bridge the gap between research and clinical practice, patients’ perspectives should be used in health care and research. This study aimed to understand the challenges people with bipolar disorder (BD) experience and examine what these challenges imply for health care and research needs.MethodsTwo qualitative studies were used, one to formulate research needs and another to formulate healthcare needs. In both studies focus group discussions were conducted with patients to explore their challenges in living with BD and associated needs, focusing on the themes diagnosis, treatment and recovery.ResultsPatients’ needs are clustered in ‘disorder-specific’ and ‘generic’ needs. Specific needs concern preventing late or incorrect diagnosis, support in search for individualized treatment and supporting clinical, functional, social and personal recovery. Generic needs concern health professionals, communication and the healthcare system.ConclusionPatients with BD address disorder-specific and generic healthcare and research needs. This indicates that disorder-specific treatment guidelines address only in part the needs of patients in everyday clinical practice.

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“…People have different ideas and preferences regarding participation [ 21 , 36 ]. Groot and Abma [ 37 ] found that different generations of older people have different preferences and needs in the participation process, linked to that particular generation.…”

Section: What Do Older People Expect From Participation?mentioning

confidence: 99%

The Participation of Older People in the Concept and Design Phases of Housing in The Netherlands: A Theoretical Overview

et al. 2021

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In the Netherlands, there is a growing need for collective housing for older people to bridge the gap between ageing-in-place and institutional care facilities. Participation of older people in the concept and design phases is important to tune the market supply to the needs of (future) residents, yet social entrepreneurs find it challenging to involve older people. This commentary explores various ways older people can participate in the development of new housing initiatives. The ladder of citizen participation is applied to explore different roles that (future) residents could play with levels of influence varying from non-participation to citizen power. Considerations for meaningful participation are discussed, in order to show how collaborations can be formed between (future) residents and decision makers.

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‘I'm happy that I can still walk’ – Participation of the elderly in home care as a specific group with specific needs and wishes

Cited by 12 publications

References 31 publications

The different perspectives of patients, informal caregivers and professionals on patient involvement in primary care teams. A qualitative study

The different perspectives of patients, informal caregivers and professionals on patient involvement in primary care teams. A qualitative study

The challenges of living with bipolar disorder: a qualitative study of the implications for health care and research

The Participation of Older People in the Concept and Design Phases of Housing in The Netherlands: A Theoretical Overview

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