<i>Not Calm</i> and Aminoff Suffering Syndrome in Advanced Alzheimer’s Disease

Aminoff, Bechor Zvi

doi:10.1177/1533317515598858

Cited by 11 publications

(7 citation statements)

References 55 publications

(66 reference statements)

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“…In nursing homes generally, both cold and hot indoor temperatures should be avoided because they may impact health and well-being of residents, potentially leading to hypothermia, hyperthermia, and an increasing the risk of illness and death. [47][48][49][50][51][52] The CMAI Total Frequency scores increased when residents were exposed to either relatively cold or warm indoor temperatures at a statistically significant level. The best fit of the model was obtained using a quadratic function with a global minimum at 22.6°C.…”

Section: Discussionmentioning

confidence: 99%

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Indoor Air Temperature and Agitation of Nursing Home Residents With Dementia

Tartarini

Cooper

Fleming

et al. 2017

Am J Alzheimers Dis Other Demen

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This study aimed to determine the specific correlation between indoor air temperature and agitation of nursing home residents with dementia. Agitated behaviors of 21 residents, living in 1 nursing home, were assessed for a 10-month period using the Cohen-Mansfield Agitation Inventory (CMAI). The CMAI Total Frequency scores were found to increase significantly when indoor average temperatures deviated from 22.6°C. In addition, cumulative exposure to temperatures higher than 26°C and lower than 20°C was linearly correlated with CMAI Total Frequency scores. Results showed that agitated behaviors not only affected the person manifesting them but were found to be disruptive for other residents and the delivery of care. Agitation can, therefore, be potentially reduced by limiting the range of indoor air temperature variations, and aged care providers should ensure that a thermally comfortable environment is provided in nursing homes to enhance comfort and well-being of all occupants.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Indoor Air Temperature and Agitation of Nursing Home Residents With Dementia

Tartarini

Cooper

Fleming

et al. 2017

Am J Alzheimers Dis Other Demen

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“…It has been explicitly recommended to measure the quality of dying in populations with dementia and in mixed long-term care populations in nursing or residential care home settings [ 13 ]. The instrument’s developers suggested that it has performed well with people with “end-stage dementia” in Israel [ 12 , 14 ]. Another study maintained that there is a valid Dutch MSSE version available and that it performed well when used to measure the quality of dying among long-term care residents with dementia at the end-of-life stage [ 15 ].…”

Section: Introductionmentioning

confidence: 99%

The German version of the Mini Suffering State Examination (MSSE) for people with advanced dementia living in nursing homes

et al. 2022

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Background The Mini Suffering State Examination (MSSE) has been explicitly recommended to assess suffering in dementia patients. This study aimed to develop a German version of the MSSE and assess its psychometric properties involving people with advanced dementia (PAD) in a nursing home setting. Methods The MSSE was translated into German, and 95 primary nurses administered it cross-sectionally to 124 PAD in Zurich, Switzerland. The psychometric properties of the German MSSE version were calculated for this population. Results The mean age of the PAD was 83.3 years (SD = 9.1, range = 55–102 years), and 98 of them (79.0%) were women. The Kuder-Richardson Formula 20 coefficient for the entire scale (0.58), the eight items relating to objective health conditions (0.39), and the professional and family estimation of the patient’s suffering (0.64) indicated low internal consistency. A confirmatory factor analysis indicated an unsatisfactory fit to a one-factor structure, with a comparative fit index and root mean square error of approximation of 0.71 and 0.08, respectively, and a Tucker–Lewis index of 0.64. The MSSE total score was significantly but moderately correlated with the total scores of the Symptom Management–End-of-Life with Dementia (SM-EOLD) scale (Pearson’s correlation coefficient (r) = -0.44; p < 0.05), the physical suffering scores (r = 0.41; p < 0.05), and the psychological suffering scores (r = 0.55; p < 0.05). Conclusions The German version of the MSSE questionnaire did not perform well in the nursing home setting involving PAD. The instrument had low internal consistency, doubtful validity, and could not discriminate between suffering and other distressing symptoms. We do not recommend its use in this population.

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“…with "end-stage dementia" in Israel (12,14). Another study maintained that the Dutch MSSE version performed well when used to measure the quality of dying among long-term care residents with dementia at the end-of-life stage (15).…”

mentioning

confidence: 99%

The German version of the Mini Suffering State Examination (MSSE) for people with advanced dementia living in nursing homes

Zumstein

Yamada

Eicher

et al. 2022

Preprint

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Background The Mini Suffering State Examination (MSSE) has been explicitly recommended to assess suffering in dementia patients. This study aimed to develop a German version of the MSSE and assess its psychometric properties involving people with advanced dementia (PAD) in a nursing home setting.Methods The MSSE was translated into German, and 95 primary nurses administered it cross-sectionally to 124 PAD in Zurich, Switzerland. The psychometric properties of the German MSSE version were calculated for this population.Results The mean age of the PAD was 83.3 years (SD = 9.1, range = 55–102 years), and 98 of them (79.0%) were women. The Kuder-Richardson Formula 20 coefficient for the entire scale (0.58), the eight items relating to objective health conditions (0.39), and the professional and family estimation of the patient’s suffering (0.64) indicated low internal consistency. A confirmatory factor analysis indicated an unsatisfactory fit to a one-factor structure, with a comparative fit index and root mean square error of approximation of 0.71 and 0.08, respectively, and a Tucker–Lewis index of 0.64. The MSSE total score was significantly but moderately correlated with the total scores of the Symptom Management–End-of-Life with Dementia (SM-EOLD) scale (Pearson’s correlation coefficient (r)= -0.44; p < 0.05), the physical suffering scores (r = 0.41; p < 0.05), and the psychological suffering scores (r = 0.55; p < 0.05).Conclusions The German version of the MSSE questionnaire did not perform well in the nursing home setting involving PAD. The instrument had low internal consistency, doubtful validity, and could not discriminate between suffering and other distressing symptoms. We do not recommend its use in this population.

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Not Calm and Aminoff Suffering Syndrome in Advanced Alzheimer’s Disease

Cited by 11 publications

References 55 publications

Indoor Air Temperature and Agitation of Nursing Home Residents With Dementia

Indoor Air Temperature and Agitation of Nursing Home Residents With Dementia

The German version of the Mini Suffering State Examination (MSSE) for people with advanced dementia living in nursing homes

The German version of the Mini Suffering State Examination (MSSE) for people with advanced dementia living in nursing homes

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