“I want to become someone!” gender, reproduction and the moral career of motherhood for women with sickle cell disorders

Self‐management interventions for children and young people with sickle cell disease: A systematic review

“…SCD-related management strategies can negatively impact CYP's perceived quality of life, disrupt school and work attendance and participation and influence their social interactions and relationships. [9][10][11][12][13][14][15] This may reduce commitment to treatment plans and health maintenance practices. 16 Effective selfmanagement support can help mitigate treatment challenges, engage CYP, improve health and social outcomes and reduce illness burden and health costs.…”

“…66 In addition to previous research on the effectiveness of self-management for CYP with chronic illnesses, 66 in SCD self-management practices in these settings. 9,11,[13][14][15] The lack of accommodation for SCD self-management practices in the home, school and workplace has been highlighted, including how school policies and practices contradict self-management. 9,11,[13][14][15] At the same time, self-management practices may be (dis)regarded as interference and perceived as disruptive and stigmatizing by others and CYP themselves.…”

“…9,11,[13][14][15] The lack of accommodation for SCD self-management practices in the home, school and workplace has been highlighted, including how school policies and practices contradict self-management. 9,11,[13][14][15] At the same time, self-management practices may be (dis)regarded as interference and perceived as disruptive and stigmatizing by others and CYP themselves. [9][10][11][13][14][15]72 | 609…”

“…9,11,[13][14][15] At the same time, self-management practices may be (dis)regarded as interference and perceived as disruptive and stigmatizing by others and CYP themselves. [9][10][11][13][14][15]72 | 609…”

“…SCD‐related management strategies can negatively impact CYP's perceived quality of life, disrupt school and work attendance and participation and influence their social interactions and relationships 9‐15 . This may reduce commitment to treatment plans and health maintenance practices 16 .…”