“I want to really crack this nut”: an analysis of parent-perceived policy needs surrounding food allergy

Abrams, Elissa M.; Simons, Elinor; Gerdts, Jennifer; Nazarko, Orla M.; Povolo, Beatrice; Protudjer, Jennifer L. P.

doi:10.1186/s12889-020-09309-w

Cited by 7 publications

(9 citation statements)

References 37 publications

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“…No differences in overall indirect costs between cases and controls; higher indirect costs for medical-related costs, seeking healthcare, and food shopping Abrams (2020) [23] Canada Qualitative Semi-structured interviews Allergist-diagnosed allergy to any food…”

Section: Resultsmentioning

confidence: 99%

The Indirect Costs of Avoidance in Food Allergy Management: A Scoping Review

Protudjer,

Engel

2024

Allergies

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Background: Food allergy management requires avoidance of allergenic food. While the direct costs of food allergy management have been described, avoidance may also contribute to time and opportunity costs. We aimed to conduct a scoping review of the peer-reviewed literature on the indirect costs of food allergy, and to characterise these costs through a series of fictitious case studies. Methods: We performed a scoping review, guided by Arskey and O’Malley’s methodological framework, and reported using the Preferred Reporting Items for Systematic Reviews and Meta-analyses extension for Scoping Reviews. Eligible studies included original, peer-reviewed, English language literature with no lower limits to publication dates, which addressed the indirect costs of food allergy, including time and opportunity costs. A search strategy was developed by content experts with experience performing multi-database scoping reviews. The search was performed on 10 July 2023, managed using Rayyan (Cambridge, USA), and screened for eligibility. Results: Searches yielded 104 articles. After deduplication, 96 articles were screened at the title and abstract level; 12 articles were included following full-text screening. Of these, three studies were performed on adults with food allergy, eight studies were based on data collected from caregivers of children with food allergy, and one study made use of data reflecting adults and caregivers of children with food allergy. Collectively, indirect costs were identified as higher amongst those with vs. without food allergy. The few studies on age and food allergy differences (e.g., type and number of food allergies, history of reaction) are equivocal. Conclusions: The limited body of peer-reviewed literature supports that food allergy commonly carries substantial indirect costs across diverse measurement tools, albeit with age-group differences.

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Section: Resultsmentioning

confidence: 99%

The Indirect Costs of Avoidance in Food Allergy Management: A Scoping Review

Protudjer,

Engel

2024

Allergies

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“…Parental attitudes towards foods allergies may also influence their child’s perceptions. Published studies highlight misconceptions regarding food allergy for people without food allergy experience, including potential triggers and severity [ 4 , 13 , 14 ].…”

Section: Discussionmentioning

confidence: 99%

It takes a village: perceptions of Winnipeg parents, students, teachers and school staff regarding the impact of food allergy on school-age students and their families

Ross

Dalke

Filuk

et al. 2022

Allergy Asthma Clin Immunol

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Background The entire school community contributes to the safety of students with food allergy. We sought to determine the food allergy perceptions and education needs of parents, students and school staff, with the goal of enhancing food allergy education in schools. Methods With ethics approval from the University of Manitoba and participating school divisions, elementary school principals emailed SurveyMonkey® Questionnaire Links to their parent/caregiver contact list and school staff. We compared anonymous responses of parents of children with and without food allergy, students with and without food allergy, and parents and school staff using chi-squared tests. Results Participants included 561 parents of school-age children (ages 7–12 years, 19% with food allergy), 61 students (23% with food allergy), and 203 school staff (62% teachers, 88% with experience managing food allergies in the classroom). Parents of children with and without food allergy considered food allergy when sending food to school (98% vs. 96%, p = 0.39). More parents of children with food allergy thought that greater information and awareness about food allergy was needed (74% vs. 44%, p < 0.0001). Students with food allergy were most interested (100%) in having other students learn not to bully and how to help during a reaction. Students without food allergy were most interested in learning how to prevent a reaction (70%). Fewer parents than school staff thought that food allergies in the classroom impacted teachers’ time (2.1% vs. 21%, p < 0.0001) and that teachers knew how to treat allergic reactions to foods (34% vs. 94%, p < 0.0001). More parents than school staff thought that banning foods from classrooms kept allergic students safe (65% vs. 34%, p = 0.006) and that having a Food Allergy Educator speak at school would be helpful (99% vs. 67%, p < 0.0001). Conclusions Food allergy education is necessary for the entire school community and should include parents of school-aged children with and without food allergy, students with and without food allergy, and teachers and school staff. These members of the school community recognized their own and others’ needs for increased food allergy education and awareness in the school setting.

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“…65 Glabau, for example, cautions that the political aspects of U.S. allergy advocacy rest on 'well-off mothers performing white, feminine norms of socially appropriate American motherhood for lawmakers' (px). 65 A number of studies have illustrated how particular stakeholders have more influence over both research and policy agendas, 49,51,52,63,65,112 and some authors have argued that when mothers are the main voice in food allergy advocacy this shapes the agenda is specific ways that leaves important gaps in representation. 51,63,65 Other studies have illustrated that women have been assumed to be more 'emotional' and potentially 'neurotic' 70,95 with implications for how medical professionals may engage with them in clinical encounters.…”

Section: Gender Mothering Advocacy and Emotionsmentioning

confidence: 99%

Anthropological and sociological perspectives on food allergy

Cook

2023

Clin Experimental Allergy

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This review explores the anthropological and sociological literature on food allergy and identifies four primary areas of research to date. The first explores the relationality and management of risk, uncertainty and stigma among parents and sufferers of food allergies. The second analyses the influence of intersectionality, specifically the effects of class, gender, race/ethnicity and disability on experiences of food allergy. The third discusses diagnostic difficulties and the impact these have on legitimacy and believability, both in the context of clinician–patient relations and in managing food allergies in public spaces. The fourth explores the ethics and uncertainties in food allergy treatments and how scientific knowledge of emerging treatments is constructed. This body of research illustrates that although an individual disease, food allergy experiences are significantly affected by socio‐cultural structures, institutions, ideologies and discourses. The review concludes with four primary recommendations. First, there should be more incorporation of anthropological or sociological methodologies and perspectives into studies of food allergy. Second, studies are needed from more countries exploring lived experience of food allergy. Third, research on food allergy needs to incorporate an analysis of intersectional factors such as gender, class and race/ethnicity, and should explore the experiences of minority populations. Fourth, more research is needed on the interactions between biomedicine and local systems of knowledge, as well as the factors that shape what treatments become available, for whom it becomes available, experiences of treatment and aspects (including biases) that influence patient–clinician interactions.

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“I want to really crack this nut”: an analysis of parent-perceived policy needs surrounding food allergy

Cited by 7 publications

References 37 publications

The Indirect Costs of Avoidance in Food Allergy Management: A Scoping Review

The Indirect Costs of Avoidance in Food Allergy Management: A Scoping Review

It takes a village: perceptions of Winnipeg parents, students, teachers and school staff regarding the impact of food allergy on school-age students and their families

Anthropological and sociological perspectives on food allergy

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