“I Was Literally Just Not Myself”: How Chronic Pain Changes Multiple Frames of Identity

Voorhees, Heather L.

doi:10.1080/10410236.2022.2025702

Cited by 10 publications

(3 citation statements)

References 52 publications

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“…The self‐understanding as being ill is in the literature often connected to considerations of normality in social contexts (Allman et al., 2018; Di Risio et al., 2011; Jaworska, 2018; Koski, 2014; Koteyko & Hunt, 2016; Miller & Caughlin, 2013; Posa et al., 2021; Spencer & Almack, 2022; Voorhees, 2022; Wang et al., 2013), which in two cases is linked to an ableist discourse (Posa et al., 2021; Spencer & Almack, 2022). Examples include reports on ‘feeling defective, abnormal and shameful’ after being labelled ill (Allman et al., 2018, p. 15) or, when struggling with the possibility of being ill, asking: ‘Do I have postnatal depression or is this [a] normal feeling for a new mum of twins?’ (Jaworska, 2018, p. 28).…”

Section: Resultsmentioning

confidence: 99%

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I am what I am?—An integrative review of understandings of ‘health identity’ and ‘illness identity’ in scientific literature

Pelters

2024

Sociology Health & Illness

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Health and illness identities have been presented as important for the experience of health and illness, and they are a widespread research interest. However, these identities are conceptualised in many different ways. This conceptual diversity calls for us to take stock of existing understandings of health and illness identities to provide conceptual clarity and reliability. The study performs an integrative review of these understandings in scientific articles identified through the databases PsychInfo, Pubmed and Scopus. The final sample consists of 64 articles, on which a thematic analysis has been performed. Health and illness identities are regarded as constructed and can be understood in terms of being, acting and judging, answering the questions ‘Who are you, with regard to health/illness?’, ‘How do you deal with health/illness?’ and ‘How are people judged by their health/illness?’, respectively. The terms health identity and illness identity are understood in varied, not necessarily compatible ways, and need to be applied carefully. Health identity concepts appear to be less well established and based upon a more varied theoretical background, while illness identity concepts appear to be more well established and usually relate to a (bio‐)medical context. A potential understanding of health identity for medical sociology is suggested.

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Section: Resultsmentioning

confidence: 99%

“…On the other hand, as an inter-group visibility, it becomes obvious to everybody (cf. Voorhees, 2022). This obvious difference introduces uncertainty regarding the outcome of one's efforts to control impressions, as a social risk of being identified as being ill.…”

Section: � Jordan Et Al (2017) Introducementioning

confidence: 99%

I am what I am?—An integrative review of understandings of ‘health identity’ and ‘illness identity’ in scientific literature

Pelters

2024

Sociology Health & Illness

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“…Identity construction is a main function of narratives and storytelling (Cooper, 2021;Koenig Kellas & Trees, 2013), which is particularly important process for emerging adults experiencing the onset of AD. Individuals with chronic illness struggle with narrative coherence and identity (Charmaz, 1991;Voorhees, 2022), as the ambiguity, physical threat, and bodily changes that come with chronic illness disrupt their life stories (Charmaz, 2002). Narrative sense-making in AD has been explored in the context of women with systemic lupus erythematosus (SLE), shedding light on the meanings that they assign to their diagnostic journeys and illness.…”

Section: Autoimmune Disease In Emerging Adulthoodmentioning

confidence: 99%

“Being Sick Does Not Define You”: Communicated Narrative Sense-Making of Autoimmune Disease in Emerging Adult Women in the U.S.

Gunning,

Koenig Kellas

2023

Emerging Adulthood

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The onset of autoimmune disease (AD) in emerging adulthood is a disruptive illness experience that is difficult to make sense of. Compounded by hegemonic ideologies, including the master illness narrative of restitution and stereotype of the hysterical female patient, women with AD struggle with narrative coherency. Guided by the retrospective storytelling heuristic of communicated narrative sense-making theory (CNSM), the present study investigates the meanings, values, and beliefs found in emerging adult women’s narratives of AD onset and diagnosis. Using qualitative in-depth interviews, findings identify how young women experiencing disruptive chronic illness at a formative age make sense and meaning of their experience, highlighting the role of identity (re)construction and resistance to dominant narratives. Framed as lessons learned, themes include rediscovering trust in self, separating self from illness, creating and committing to new normals, challenging assumptions about illness, and recognizing privilege and disparities in care. Theoretical and practical implications are discussed.

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Patterns of disruptions: Complexities of discursive-embodied triggers and resilience responses of individuals with autoimmune diseases

Siegenthaler,

Worwood,

Craine

2024

Communication Monographs

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“I Was Literally Just Not Myself”: How Chronic Pain Changes Multiple Frames of Identity

Cited by 10 publications

References 52 publications

I am what I am?—An integrative review of understandings of ‘health identity’ and ‘illness identity’ in scientific literature

I am what I am?—An integrative review of understandings of ‘health identity’ and ‘illness identity’ in scientific literature

“Being Sick Does Not Define You”: Communicated Narrative Sense-Making of Autoimmune Disease in Emerging Adult Women in the U.S.

Patterns of disruptions: Complexities of discursive-embodied triggers and resilience responses of individuals with autoimmune diseases

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