ICF Core Sets for individuals with spinal cord injury in the long-term context

Cieza, Alarcos; Kirchberger, Inge; Biering‐Sørensen, Fin; Baumberger, Michael; Charlifue, Susan; Post, Marcel W.M.; Campbell, Ruth; Kovindha, Apichana; Ring, Haim; Sinnott, Anne; Kostanjsek, Nenad; Stucki, Gerold

doi:10.1038/sc.2009.183

Cited by 174 publications

(119 citation statements)

References 17 publications

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“…7 However, a limitation of the described tool might be the fact that the WHO qualifiers has not yet been validated and there is no generally accepted, psychometrically sound measure of participation. 12 During the systematic evaluation, which was undertaken 6 months after introduction of this tool, 98 different inputs and feedbacks of patients and team were analysed and the required adaptations were transferred.…”

Section: Resultsmentioning

confidence: 99%

Long-term follow-up of patients with spinal cord injury with a new ICF-based tool

et al. 2010

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Study design: To develop a computer program that supports the overview of a follow-up care process in people with spinal cord injury (SCI) in daily clinical practice. Objectives: To create a new electronic tool based on the International Classification of Functioning, Disability and Health (ICF) that enables information to be registered and visualized, including the use of a net-diagram ('spider') to show a patient's long-term development. This diagram helps the clinician to recognize predispositions over time, as well as making information accessible to the patient, so as to involve him as a participant in defining current and future treatment options. Furthermore, guidelines for the prevention of common diseases, based on the recommendations of internal medicine, rehabilitation medicine and findings in the SCI literature, were implemented to provide enhanced health coaching in the area of preventative care. Methods: In an outpatient setting, four perspectives were assessed: patient, physician, occupational therapist and physiotherapist for a comprehensive bio-psycho-social consideration. All categories were assessed and graphically visualized with the electronic tool, on the basis of the ICF domains: body function, activities/participation and environmental factors. Results: The assessed data were summarized and graphically represented using three spider charts. Conclusion: The tool facilitates the patient counselling and the interdisciplinary work in daily clinical practice. Such a visual report helps to recognize predispositions over time. Furthermore, it helps to explain the clinical and patient-related findings accessible to the patients, to involve them as participants in defining the goals and the treatment plan.

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Section: Resultsmentioning

confidence: 99%

Long-term follow-up of patients with spinal cord injury with a new ICF-based tool

et al. 2010

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“…14,15 The larger study involved 16 study centres from 14 countries worldwide and was conducted in 2006-2008.…”

Section: Study Design and Participantsmentioning

confidence: 99%

Quality of life after spinal cord injury: a comparison across six countries

et al. 2012

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Study design: An international cross-sectional study. Objective: To examine the quality of life (QoL) of people with spinal cord injury (SCI) across six countries worldwide, controlling for socio-demographic and lesion-related sample characteristics and using a cross-culturally valid assessment. Methods: Data from 243 persons with SCI from Australia, Brazil, Canada, Israel, South Africa and the United States were analyzed. QoL was measured using five satisfaction items from the World Health Organization Quality of Life Assessment. Cross-culturally valid, Rasch-transformed scores were used for comparison. Results: Analysis of variance showed a significant difference in QoL between countries (F ¼ 3.938; df ¼ 5; P ¼ 0.002). Shorter time since injury, no paid employment and living in Brazil were significant predictors of lower QoL, explaining 13% of variance in linear regression. Using multilevel regression with country as higher-order variable, time since injury and paid employment remained significant predictors and explained 18% of variance in QoL. The intraclass correlation coefficient (0.05) indicates that 5% of the variability can be accounted for by country. Conclusion: This study showed QoL differences between countries that could not be explained by differences in demographic and lesion-related characteristics. Results point to the relevance of reintegration of people with SCI into the workforce. Further international comparative research using larger samples is recommended.

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“…11,12 An efficient measurement of predefined relevant ICF categories in epidemiologic studies is highly important. 13 For the community survey of the Swiss Spinal Cord Injury Cohort Study, 14 a self-report version of SCIM III (SCIM-SR) was thus needed.…”

Section: Introductionmentioning

confidence: 99%

Development and validation of a self-report version of the Spinal Cord Independence Measure (SCIM III)

et al. 2012

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Study design: Cross-sectional validation study. Objectives: To develop and validate a self-report version of the Spinal Cord Independence Measure (SCIM III). Setting: Two SCI rehabilitation facilities in Switzerland. Methods: SCIM III comprises 19 questions on daily tasks with a total score between 0 and 100 and subscales for 'self-care', 'respiration & sphincter management' and 'mobility'. A self-report version (SCIM-SR) was developed by expert discussions and pretests in individuals with spinal cord injury (SCI) using a German translation. A convenience sample of 99 inpatients with SCI was recruited. SCIM-SR data were analyzed together with SCIM III data obtained from attending health professionals. Results: High correlations between SCIM III and SCIM-SR were observed. Pearson's r for the total score was 0.87 (95% confidence interval ( INTRODUCTIONThe Spinal Cord Independence Measure (SCIM), which was first published in 1997, 1 has become a widely used instrument to measure functioning in activities of daily living in persons with spinal cord injury (SCI). 2 Its main advantages over other instruments used for functional assessment in rehabilitation medicine are its sensitivity to changes in performance of tasks that are relevant for SCI patients, and the fact that it measures not only the burden of care, but also achievements, which have medical, psychological or social relevance for the SCI patient. The third version of the instrument, SCIM III, has been tested for validity and reliability in multicenter studies with satisfying psychometric properties. [3][4][5] SCIM III comprises items on 19 daily tasks grouped into three subscales. Item scores are weighted according to their clinical relevance and are graded for increasing difficulty, that is, requiring higher ability of the person with SCI. Each item has between 2 and 9 grades. The total SCIM III score ranges between 0 and 100, higher scores reflecting higher levels of performance or independence of a person. 3 The three subscales assess the areas of 'self-care' (six items, range 0-20), 'respiration & sphincter management' (four items, range 0-40) and 'mobility' (nine items, range 0-40).SCIM III is scored in observation of persons with SCI by health professionals. Ideally, each subscale is scored by clinical staff experienced in the assessment of the activities covered by the subscale. Such observations are time consuming and mainly applicable in inpatient settings. 6 In the outpatient setting, SCIM III data were collected by a single rater or in interviews previously, although with slightly decreased precision. 7,8 For research purposes, SCIM data are obtained by interview as part of the regular follow-up of large international studies, such as the European Multicenter Study about Spinal Cord Injury (EMSCI). 9 Studies conducted in the SCI community usually rely on selfadministered questionnaires for data collection. This method requires comparatively few resources, provides fast data collection and is applicable independent of the setting. 6,10 Using...

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ICF Core Sets for individuals with spinal cord injury in the long-term context

Cited by 174 publications

References 17 publications

Long-term follow-up of patients with spinal cord injury with a new ICF-based tool

Long-term follow-up of patients with spinal cord injury with a new ICF-based tool

Quality of life after spinal cord injury: a comparison across six countries

Development and validation of a self-report version of the Spinal Cord Independence Measure (SCIM III)

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