ICU-RESPECT: An index to assess patient and family experiences of respect in the intensive care unit

Geller, Gail; Branyon, Emily; Forbes, Lindsay; Topazian, Rachel J.; Weir, Brian W.; Carrese, Joseph A.; Beach, Mary Catherine; Sugarman, Jeremy

doi:10.1016/j.jcrc.2016.06.018

Cited by 14 publications

(12 citation statements)

References 21 publications

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“…With high ongoing physical, psychosocial and practical burden reported in individuals admitted to ICU, there is an increasing focus on identifying and improving patients experiences of care to optimise short-and long-term health outcomes (de-la-Cueva-Ariza et al, 2014;Geller et al, 2016Geller et al, , 2018Johannessen et al, 2011;Jongerden et al, 2013;Ramsay et al, 2016;Rattray et al, 2010;Thermaenius et al, 2019). Barriers to capturing feedback are well understood with up to 20% of patients dying in the ICU (Adhikari et al, 2010;Azoulay et al, 2009) and many too ill to provide experiential feedback in the twelve months after admission (Aitken et al, 2016).…”

Section: Backg Rou N Dmentioning

confidence: 99%

Measuring the intensive care experience: A cross‐sectional survey of patient and family experiences of critical care

Williams

Gow

Rana

et al. 2021

Journal of Clinical Nursing

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Aims and Objectives: To report patient and family intensive care experiences using the Measuring the Intensive Care Experience (MICE) tool across two intensive care units (ICU). Background:The patient and family experience of care is an important indicator for quality improvement of ICUs, yet few studies evaluate both patient and family experiences in relation to overall care quality as well as specifically measuring quality of medical care, nursing care and organisational care as well as overall experience of the quality of intensive care. Design: A cross-sectional survey.Methods: A 23 item survey was administered to ICU patients and their family members across two ICUs, a regional 189-bed hospital and a metropolitan 227-bed hospital in Queensland, Australia. The response rate was 272 of 394 ICU patients (36.4%). STROBE guidelines were used in reporting this study. Results: Findings indicate a highly positive overall experience of ICU care among patients and families. However, patients reported areas of unmet needs following their stay in ICU broadly related to (1) symptom management, education and information support, and (2) improving the incorporation of patient and family care ICU-related shared decision-making. Conclusions: Supportive interventions are needed that target improve symptom management and inform and education ICU patients. Relevance to clinical practice:The MICE survey facilitated the identification of a range of areas requiring quality improvement. Improving the integration of patients and families into shared decision-making and support is a key aspect for quality improvement.

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Section: Backg Rou N Dmentioning

confidence: 99%

Measuring the intensive care experience: A cross‐sectional survey of patient and family experiences of critical care

Williams

Gow

Rana

et al. 2021

Journal of Clinical Nursing

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“…The recently published ICU-RESPECT index could be used in the future to confirm our findings. 35 Third, the specific survey item used to measure respect actually measures “courtesy, respect, and compassion” shown toward either the patient or the family member. As this was a composite item, it is possible that the outcome represents emotional harms other than inadequate respect.…”

Section: Discussionmentioning

confidence: 99%

Failures in the Respectful Care of Critically Ill Patients

Law¹,

Roche²,

Reichheld³

et al. 2019

The Joint Commission Journal on Quality and Patient Safety

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“…8, 10 The study team reviewed the instrument internally and made revisions based on experience studying respect and dignity in ICU settings using a patient/family survey and direct observation. 9, 13, 14 The initial instrument consisted of 21 items.…”

Section: Methodsmentioning

confidence: 99%

“…We have also developed a systematic approach to directly observing the care in ICUs as well as an ICU patient (or family) reported measure of respect. 9, 13 However, like all patient experience measures, patient and family reports are highly skewed and there are dimensions of a respectful ICU environment identified in our clinician focus groups that may not be observed by patients/families (e.g., talking about patients behind their back in a demeaning manner). Therefore, the aim of this study was to develop a clinician-reported measure of the ICU’s climate of respect.…”

Section: Introductionmentioning

confidence: 99%