Identifying and classifying quality-of-life tools for assessing pressure ulcers after spinal cord injury

Hitzig, Sander L.; Balioussis, Christina; Nussbaum, Ethne L.; McGillivray, Colleen; Craven, B. Catharine; Noreau, Luc

doi:10.1179/2045772313y.0000000129

Cited by 5 publications

(10 citation statements)

References 73 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…QoL outcomes were then classified according to Dijkers' theoretical framework by one rater and verified by a second rater. 19,22 Similar to previous studies that classified QoL tools used to assess the influence of different SCI-related secondary conditions, [23][24][25] Dijkers' QoL framework was used to categorize outcome measures as being either objective or subjective and was used to provide a deeper understanding of the QoL constructs underlying each measure (see Figure 1). 19,22 Briefly described, the model categorizes measures into three categories: QoL as "utility," "achievements," and "subjective well-being.…”

Section: Methodsmentioning

confidence: 99%

“…20 QoL outcomes related to the influence of spasticity, pressure ulcers, and neurogenic bladder have been classified and documented using the aforementioned framework. [23][24][25] Objective measures are based on the assumption that there is widespread consensus on the constituents of QoL, 19,22 meaning that objective measures focus on external conditions and contain items that can be defined and quantified to reflect societal standards. Conversely, subjective measures follow a more individualistic approach and the assumption that QoL can only be judged by the individual or individual's experiencing it.…”

mentioning

confidence: 99%

See 1 more Smart Citation

Identifying and Classifying Quality of Life Tools for Assessing Neurogenic Bowel Dysfunction After Spinal Cord Injury

Choukou

Best

Craven

et al. 2019

Topics in Spinal Cord Injury Rehabilitation

Self Cite

View full text Add to dashboard Cite

Objectives: To identify and classify tools for assessing the influence of neurogenic bowel dysfunction (NBD) on quality of life (QoL) after spinal cord injury (SCI). Methods: In this systematic review, MEDLINE/PubMed, CINAHL, and PsycInfo were searched to identify studies assessing the influence of NBD on QoL (or related construct) after SCI. Two independent reviewers screened titles and abstracts, and both reviewers classified tools as subjective or objective according to Dijkers' theoretical QoL framework. Results: Seventy-two studies were identified, and 35 studies met the inclusion criteria. Five objective measures assessed the influence of NBD on QoL, which were validated for use in SCI, but no measure was condition-specific to NBD. Eight measures were classified as subjective tools; two had an established reliability and validity for SCI while six had some psychometric evidence for use in the SCI population. Five subjective measures (NBD score, Burwood QoL Questionnaire, Impediments to Community Integration [ICI] Scale, SCI-QoL Bowel Management Difficulties, and Survey of Neurogenic Bowel Characteristics) were developed specifically for SCI. The NBD score showed sensitivity to the influence of NBD on QoL in experimental trials. Conclusion: Thirteen tools assessed the influence of NBD on QoL in SCI. Although not developed specifically for SCI, the Health Utility Index (HUI-III) was the only tool identified that provided data on "QoL as utility" on the impact of NBD. The validated NBD score was the only condition-specific tool to assess QoL as "subjective well-being." Further validation of existing tools could help to inform practice and policy related to resource allocation for bowel care post SCI.

show abstract

Section: Methodsmentioning

confidence: 99%

mentioning

confidence: 99%

Identifying and Classifying Quality of Life Tools for Assessing Neurogenic Bowel Dysfunction After Spinal Cord Injury

Choukou

Best

Craven

et al. 2019

Topics in Spinal Cord Injury Rehabilitation

Self Cite

View full text Add to dashboard Cite

show abstract

“…Other researchers have utilized generic measures of health status and life satisfaction in studies examining HRQOL in individuals with PrUs and SCI. 35 For example, the Medical Outcomes Study Short Form-36 36 is a health status measure intended for a general health population but also contains items about such diverse areas as physical and emotional functioning. Hitzig et al .…”

Section: Introductionmentioning

confidence: 99%

“…Hitzig et al . 35 also reported that the Life Situation Questionnaire-Revised 37 and the Ferrans and Powers Quality of Life Index for SCI v3, 38 two PRO measures of subjective HRQOL have been used in individuals with SCI and pressure ulcers, but neither of these instruments contain items that specifically address PrUs or how skin problems impact HRQOL.…”

Section: Introductionmentioning

confidence: 99%

Development and psychometric characteristics of the SCI-QOL Pressure Ulcers scale and short form

Kisala

Tulsky

Choi

et al. 2015

The Journal of Spinal Cord Medicine

View full text Add to dashboard Cite

ObjectiveTo develop a self-reported measure of the subjective impact of pressure ulcers on health-related quality of life (HRQOL) in individuals with spinal cord injury (SCI) as part of the SCI quality of life (SCI-QOL) measurement system.DesignGrounded-theory based qualitative item development methods, large-scale item calibration testing, confirmatory factor analysis (CFA), and item response theory-based psychometric analysis.SettingFive SCI Model System centers and one Department of Veterans Affairs medical center in the United States.ParticipantsAdults with traumatic SCI.Main Outcome MeasuresSCI-QOL Pressure Ulcers scale.Results189 individuals with traumatic SCI who experienced a pressure ulcer within the past 7 days completed 30 items related to pressure ulcers. CFA confirmed a unidimensional pool of items. IRT analyses were conducted. A constrained Graded Response Model with a constant slope parameter was used to estimate item thresholds for the 12 retained items.ConclusionsThe 12-item SCI-QOL Pressure Ulcers scale is unique in that it is specifically targeted to individuals with spinal cord injury and at every stage of development has included input from individuals with SCI. Furthermore, use of CFA and IRT methods provide flexibility and precision of measurement. The scale may be administered in its entirety or as a 7-item “short form” and is available for both research and clinical practice.

show abstract

“…impact of neurogenic bladder on QoL). 6 Moreover, tools that are not developed specifically for SCI lack reliability and validity for application in SCI populations.…”

mentioning

confidence: 99%

Identifying and classifying quality of life tools for neurogenic bladder function after spinal cord injury: A systematic review

Best

Ethans

Craven

et al. 2016

The Journal of Spinal Cord Medicine

Self Cite

View full text Add to dashboard Cite

Several objective and subjective tools exist to assess the influence of neurogenic bladder on QoL in SCI. The QLI and Qualiveen, both subjective tools, were the only validated SCI-specific tools that showed sensitivity to neurogenic bladder. Further validation of existing subjective SCI-specific outcomes is needed. Research to validate objective measures of QoL would be useful for informing practice and policy related to resource allocation for bladder care post-SCI.

show abstract

Identifying and classifying quality-of-life tools for assessing pressure ulcers after spinal cord injury

Cited by 5 publications

References 73 publications

Identifying and Classifying Quality of Life Tools for Assessing Neurogenic Bowel Dysfunction After Spinal Cord Injury

Identifying and Classifying Quality of Life Tools for Assessing Neurogenic Bowel Dysfunction After Spinal Cord Injury

Development and psychometric characteristics of the SCI-QOL Pressure Ulcers scale and short form

Identifying and classifying quality of life tools for neurogenic bladder function after spinal cord injury: A systematic review

Contact Info

Product

Resources

About