Identifying and Classifying Quality of Life Tools for Assessing Spasticity After Spinal Cord Injury

Abstract

Two condition-specific subjective measures the SCI-SET and PRISM emerged as the most promising tools for the assessment of spasticity impact on QOL after SCI. Further research should focus on establishing the psychometric properties of these measures for use in the SCI population.Key words: outcome measurement quality of life spasticity spinal cord injury.

The experience of spasticity after spinal cord injury: perceived characteristics and impact on daily life

“…Comprehensive clinical measurement of spasticity includes an assessment of the impact it has on the daily functioning and quality of life experienced by people with SCI. The Patient Reported Impact of Spasticity Measure (PRISM) [16] is a validated tool that characterizes the ways that spasticity impacts quality of life for people with SCI [17], and provides self-reported, condition-specific measurement of the impact of spasticity on the quality of life [18]. Although such measures offer a way to understand the degree to which spasticity impacts daily life, they do not describe the characteristics of spasticity that people with SCI attribute to limitations in their daily lives and ultimately, overall quality of life.…”

A review and evaluation of patient-reported outcome measures for spasticity in persons with spinal cord damage: Recommendations from the Ability Network – an international initiative

“…Condition-specific outcome measures for the assessment of spasticity (PRISM and SCI-SET) have been used in relatively few studies. In carrying out a COSMIN assessment and ICF mapping of these measures we have added to the previous work published by Balioussis et al 22 As experience with their use grows, it will be possible to more accurately evaluate aspects of their validity, as well as their responsiveness to change. Ongoing work by the Ability Network to develop a Spasticity Set within the ICF framework will provide further insight into any gaps in the coverage of currently available measures, and may suggest directions for further development.…”

“…As additional assurance that all relevant measures were captured, the results of existing systematic literature reviews assessing quality of life instruments in an SCD population were also consulted. [21][22][23][24][25] We also undertook a literature review to identify measures of caregiver burden that have been previously used in studies of the caregivers of people with SCD. The databases searched were Medline, EMBASE, The University of Oxford Patient Reported Outcomes Database (UO-PROD), and the Patient-reported Outcome and Quality of Life Instrument Database (PROQOLID).…”

“…The literature review identified 56 studies that met inclusion criteria. In addition, one systematic review was identified (Balioussis et al 22 ) that specifically addressed measuring the impact of spasticity in SCD on HRQoL. The measures identified by Balioussis et al…”

“…Sickness impact profile (SIP) The Sickness Impact Profile (SIP) 46 has been used in a small number of spasticity-related studies in SCI and found to be sensitive to spasticity. 22 The SIP assesses physical, and psychosocial dimensions of healthrelated functioning and behavior using 12 categories. It is comprised of a list of statements addressing the impact of sickness, to which respondents indicate which items describe their health status.…”