Identifying and prioritizing unmet research questions for people with tinnitus: the James Lind Alliance Tinnitus Priority Setting Partnership

Hall, Deborah A.; Mohamad, Najibah; Firkins, Lester; Fenton, Mark; Stockdale, David

doi:10.4155/cli.12.129

Cited by 48 publications

(57 citation statements)

References 19 publications

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“…Details of the methods agreed and adopted can be found in a number of publications [24][25][26][27][28], and therefore only a brief summary is presented here. Key stages involve:…”

Section: Methodsmentioning

confidence: 99%

Research priorities in mesothelioma: A James Lind Alliance Priority Setting Partnership

Stephens¹,

Whiting²,

Cowan³

2015

Lung Cancer

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The top 10 questions cover a wide portfolio of research (including assessing the value of immunotherapy, individualised chemotherapy, second-line treatment and immediate chemotherapy, monitoring patients with pleural thickening, defining the management of ascites in peritoneal mesothelioma, and optimising follow-up strategy). This list is an invaluable resource, which should be used to inform the prioritisation and funding of future mesothelioma research.

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“…Details of the methods agreed and adopted can be found in a number of publications [24][25][26][27][28], and therefore only a brief summary is presented here. Key stages involve:…”

Section: Methodsmentioning

confidence: 99%

Research priorities in mesothelioma: A James Lind Alliance Priority Setting Partnership

Stephens¹,

Whiting²,

Cowan³

2015

Lung Cancer

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“…Consequently, with the exception of CBT, 43,44 evidence for the eff ectiveness of diff erent treat ment strategies is insuffi cient. 40,47,57,67,98 Investigators under taking a UK-wide consultation of patients and clinicians made a priority list of ten unanswered questions (panel), 99,100 many of which could be addressed through high-quality randomised controlled trials.…”

Section: Clinical Trials In Tinnitusmentioning

confidence: 99%

Tinnitus

Baguley¹,

McFerran²,

Hall³

2013

The Lancet

1,061

911

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Tinnitus is a common medical symptom that can be debilitating. Risk factors include hearing loss, ototoxic medication, head injury, and depression. At presentation, the possibilities of otological disease, anxiety, and depression should be considered. No eff ective drug treatments are available, although much research is underway into mechanisms and possible treatments. Surgical intervention for any otological pathology associated with tinnitus might be eff ective for that condition, but the tinnitus can persist. Available treatments include hearing aids when hearing loss is identifi ed (even mild or unilateral), wide-band sound therapy, and counselling. Cognitive behavioural therapy (CBT) is indicated for some patients, but availability of tinnitus-specifi c CBT in the UK is poor. The evidence base is strongest for a combination of sound therapy and CBT-based counselling, although clinical trials are constrained by the heterogeneity of patients with tinnitus.

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“…Patients will be offered different management options depending on which country they reside in and which department they attend. Priority research questions from the perspective of patients, clinicians and members of the public in the UK have previously been identified through a James Lind Alliance priority setting partnership [30,38], (www.tinnitus.org.uk/jla) and registered on the UK Database of Uncertainties about the Effects of Treatments (UK DUETs: www.library.nhs.uk/duets/). These very specific interventions include specific questions around use of amplification, alternative therapies, insomnia, hyperacusis, managing tinnitus in deafness, assessment of tinnitus in paediatrics and more general questions such as which management options are more effective than a usual model of care.…”

Section: Resultsmentioning

confidence: 99%

“…The current evaluation provides evidence of capacity for exploring many of these issues in multi-centre studies. Notably, there are many departments offering a paediatric tinnitus service, but to date research activity in the field is low [38] despite apparent capacity. A service evaluation to more fully understand the structure of paediatric tinnitus services is warranted however.…”

Section: Resultsmentioning

confidence: 99%

Equity and person-centeredness in provision of tinnitus services in UK National Health Service audiology departments

Hoare

Broomhead

Stockdale

et al. 2015

EJPCH

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Rationale, aim and objective: Chronic tinnitus is a prevalent condition broadly managed using individualised sound-based interventions, individualised or group education, counselling, or cognitive therapies. In the UK, therapy is largely delivered by audiologists or hearing therapists and, where available, clinical psychologists and physicians. Changes in the structure of the health service necessitate ongoing evaluation to monitor equity and person-centeredness of care. The purpose of the current evaluation was to describe provision and explore diversities in the services provided for tinnitus patients across the four countries of the UK and consider these relative to current commissioning and clinical practice guidelines. Method: A 37 item questionnaire was devised and distributed via email and social media to reach audiology departments in the UK and 147 valid responses were acquired during the 3 month period of the evaluation. Results: The structure and provision of tinnitus services varies widely across the four countries of the United Kingdom in terms of which clinicians provide the services. Outside of England there was no report of clinical psychology or audiovestibular physician involvement in services. There is also variability in access to psychological therapy or support (little training in CBT in Scotland and none in Northern Ireland), self-help groups (little involvement but interest from clinicians) and devices (e.g., one quarter of departments do not currently offer combination hearing aid devices for tinnitus). Clinicians are increasingly using validated questionnaires to evaluate the effectiveness of tinnitus management in their departments. Conclusions: Training in and the provision of psychological support for tinnitus patients by audiologists is particularly a concern for Scotland and Northern Ireland and has implications for the person-centeredness of audiology services. Capacity and need for research in paediatric tinnitus, combination devices, non-ear level sound devices and audiologist-delivered psychological therapy, are noted.

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Identifying and prioritizing unmet research questions for people with tinnitus: the James Lind Alliance Tinnitus Priority Setting Partnership

Cited by 48 publications

References 19 publications

Research priorities in mesothelioma: A James Lind Alliance Priority Setting Partnership

Research priorities in mesothelioma: A James Lind Alliance Priority Setting Partnership

Tinnitus

Equity and person-centeredness in provision of tinnitus services in UK National Health Service audiology departments

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