Identifying gaps in knowledge about Parkinson disease among medical professionals in Thailand

Bhidayasiri, Roongroj; Brenden, Neil; Viwattanakulvanid, Pramon; Jitkritsadakul, Onanong; Tabucanon, Ray; Jagota, Priya; Höjer, H

doi:10.1212/wnl.0000000000000515

Cited by 25 publications

(18 citation statements)

References 4 publications

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“…Since the difficulties are varied for all patients, prioritizing their difficulties differs among all cases. Furthermore, there are still some identifying gaps in the knowledge about PD among medical professionals [ 1 ]. All these elements prevent physicians from helping PD patients more precisely.…”

Section: Discussionmentioning

confidence: 99%

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Patients and Their Caregivers’ Burdens for Parkinson’s Disease in Korea

Baik¹,

Kim²,

Koh³

et al. 2017

JMD

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ObjectiveMany patients with Parkinson’s disease (PD) suffer from motor and non-motor symptoms. According to these variable symptoms of PD, patients or caregivers have a poorer quality of life than patients with other neurodegenerative diseases. Since the difficulties are varied for all patients, prioritizing their difficulties differs among all cases. The goal of this study was to investigate the burdens of PD among the caregivers as well as patients and to identify areas requiring aid from the government.MethodsWe surveyed the awareness and perceptions of PD in patients and caregivers of PD by a face-to-face questionnaire. The questionnaire was divided into three sections: symptoms of PD (part A), desire for policies (part B), and difficulties faced by their caregivers (part C). Part A comprised 8 questions, Part B had 2 questions, and Part C had 3 questions.ResultsIn total, 853 subjects (702 patients and 151 caregivers) were enrolled in this study. The major difficulties experienced by PD patients were physical (67%), psychiatric (60%) and socio-economic (52%). Assessing the physical difficulties, more than half the patients experienced severe difficulties (29% very severe, 39% severe). Psychiatric difficulties were assessed as severe (35%) and very severe (21%) among the patients. Severe difficulties were also experienced socio-economically, at 52% in patients and 49% in caregivers, especially among patients in their fifties (58%) and those with their spouse (65%) as caregivers. The topmost need was the introduction of new technology for treatment of PD (62%), followed by relief of costs for treatment (38%) and a family support system (31%). The majority (91%) of the patients were diagnosed with PD within two years after onset of symptoms.ConclusionWe know that the difficulties of PD and the needs for government assistance are different between patients and caregivers. These results emphasize that perceiving the difficulties and needs of patients and caregivers early can help to prevent and ameliorate the burden of disease.

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Section: Discussionmentioning

confidence: 99%

“…Previous survey studies about PD indicate gaps in disease awareness and its management among the patients, physicians, caregivers and the general population [ 1 - 4 ]. The awareness and knowledge of PD is different with respect to age, income and education levels [ 4 ], or cultural differences among the racially or ethnically diverse populations [ 5 ].…”

mentioning

confidence: 99%

Patients and Their Caregivers’ Burdens for Parkinson’s Disease in Korea

Baik¹,

Kim²,

Koh³

et al. 2017

JMD

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“…Detailed activities are provided in Additional file 5. We conducted pre-and post-course evaluations to identify participants' background and after course knowledge using a validated PD questionnaire [4]. The full agenda is presented in Additional file 4.…”

Section: Preparatory Field Experience and Setting Of A One-day Teachimentioning

confidence: 99%

“…A 26-item, three-domain, true or false questionnaire was created to investigate PD knowledge [4]. The three domains included diagnosis (13 items; total score 13), therapeutic options (7 items; total score 7), and disease course (6 items; total score 6).…”

Section: Pd Knowledge Questionnairementioning

confidence: 99%

Addressing knowledge gaps in Parkinson’s disease: a report on the Movement Disorder Society’s Centre-to-Centre initiative to improve Parkinson’s disease services in Lao People’s Democratic Republic

et al. 2020

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Background: Lao People's Democratic Republic (Lao PDR) has only nine neurologists for seven million people; none have formal training in Parkinson's disease (PD). Medical specialists require sufficient PD knowledge to provide high-quality care. Methods: This study outlines a Centre-to-Centre programme for developing PD expertise in underserved regions through a tailored two-year educational enterprise between an established movement disorder mentor centre at Chulalongkorn University in Thailand and mentee centres in Lao PDR. Background knowledge of 80 Laotian physicians was assessed using a validated PD knowledge questionnaire containing 26 questions divided into 3 sections (diagnosis, therapeutic options, disease course) before and immediately after one-day kick-start training. Responses were compared across physicians' demographic groups. Results: Of 80 respondents, 50 (62.5%) were board-certified physicians, of which 27 (54%) specialised in internal medicine. Apparent knowledge gaps were shown by a 51.2% correct response rate for total score, 52.8% for diagnosis, 50.6% for therapeutic options, and 48.2% for disease course. No significant differences in total score or any domain sub-scores between neurologists and other specialties were found. Many did not know which non-motor symptoms could occur as prodromal symptoms or late in course of PD. Incorrect responses mainly reflected a lack of knowledge of the impact of medication on disease. Total and domain sub-scores significantly improved after the course (p < 0.05, each). The size of difference of the means was

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“…Although gaps in PD knowledge have been studied among medical professionals [9], to our knowledge there are no published studies from Asia (which accounts for >40% of the global PD burden) on knowledge and attitudes towards PD among the general public [10,11]. One online survey conducted among more than 5,000 members of the European general public by the European PD Association (EPDA) was interpreted by the Association as revealing a "shocking .…”

Section: Introductionmentioning

confidence: 99%